Problems with Rectal Meds

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kaykay29
Regular Member


Date Joined Aug 2008
Total Posts : 28
   Posted 8/20/2008 7:18 PM (GMT -6)   
I know this sounds weird, but has anyone had problems getting Rowasa in "where it needs to go" so to speak?  I feel like my left side is so swollen that the Rowasa won't even go in there.  I squeeze the bottle and it is meeting so much resistance that it leaks out around the bottle neck.  I have tried positioning myself and the bottle different ways but that doesn't seem to resolve the problem.

Dx UC 1979 at age 14 - (I know, some kind of record)
Was Mildly Chronic (flares every couple of years) until last 2 years now Chronically Acute
Can only get about a month symptom free between flares now
Asacol, Canasa, Rowasa, Cortifoam (on Sulfasalazine for 28 years previously also Pred)
GI Doc recently told me I have "lead pipe syndrome" which is advanced scarring of colon
No surgery - multiple colonoscopies reveal uc "from rectum to appendix"
My Best Friend is My Shih Tzu/My worst enemy is uc


barbl
Regular Member


Date Joined Jul 2006
Total Posts : 320
   Posted 8/20/2008 7:22 PM (GMT -6)   
In the past during really bad flares it has been difficult to insert due to the extreme inflamation mad
Dx'D in 1990. Remission 1991 - 1/2005
Both flares were in extremely stressful times in my life
Colonoscopy 10/2005 80% of Colon diseased, or as I like to say "Intestinely challenged"
*****9/2007 dumped my GI who I refer to as "Satan" New GI, new med TOTAL remission with in 2 weeks.
Colazal 9 capsules a day*****


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 8/20/2008 7:47 PM (GMT -6)   
I can get the enema in there, but I can't hold it. The instructions say to lay on your side. But that didn't work for me at all. I get on my hands and knees with my bum in the air. I also put a little KY jelly on the tube. (I do this for cortifoam and Canasa supps too). The GI turned me on to this little tricks. If I don't use the KY, insertion hurts like hell!
Age: 48
location: Seattle, Wa
currently in small flare, tail end of colon
Diagnosed with UC in June 2006
Medications: Asacol 3 pills 3 x/day, Cortifoam at bedtime, Canansa in the morning
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis


kaykay29
Regular Member


Date Joined Aug 2008
Total Posts : 28
   Posted 8/20/2008 7:51 PM (GMT -6)   
That "position" seems to work the best for me too. I do ok holding it but just having it in there makes my left side feel like it is going to explode - - so much pressure on that side. When I look down at the floor, the left side of my abdomen actually sticks out further than my right side by quite a bit. I am pretty skinny, so maybe it looks worse to me. Geez, this is a weird disease.
Dx UC 1979 at age 14 - (I know, some kind of record)
Was Mildly Chronic (flares every couple of years) until last 2 years now Chronically Acute
Can only get about a month symptom free between flares now
Asacol, Canasa, Rowasa, Cortifoam (on Sulfasalazine for 28 years previously also Pred)
GI Doc recently told me I have "lead pipe syndrome" which is advanced scarring of colon
No surgery - multiple colonoscopies reveal uc "from rectum to appendix"
My Best Friend is My Shih Tzu/My worst enemy is uc


potato
Regular Member


Date Joined Jun 2008
Total Posts : 281
   Posted 8/20/2008 11:59 PM (GMT -6)   
You might try getting most of the air out of the bottle before trying to insert it.  It can be a little tricky because you have to keep the bottle at the same pressure or air will go back in, but it can be done.  It's much more comfortable without all the extra air. 
 
Using additional KY or vaseline helps, too.  I think rowasa is more uncomfortable inserting than cortenema. 
Potato...  Female, 58, dx mild left sided ulcerative colitis 11/07
asacol 3 3x a day 
cortenema (generic) am & pm 
culturelle, benefiber wafers 
children's vitamin, Vitamin E 400 mg
omeprazole 2x a day
oxazepam when needed, lomotil or ImodiumAD (but not in the same day)
 
 
 
 
 
 


Knitty_Cat
Regular Member


Date Joined Jun 2006
Total Posts : 105
   Posted 8/21/2008 5:08 AM (GMT -6)   
Adding some lube (ky or similar) onto the applicator helps me.
Left Sided UC
Maintenance Meds: Salofalk tablets (Asacol) 2 tablets 4 times daily (4gm total) plus 2 Salofalk foam enemas per week.
Flare Meds: Salofalk enemas and/or Colifoam
Oat bran 60grams daily, Metamuscil and multivitamins


howdyho
Regular Member


Date Joined Aug 2005
Total Posts : 56
   Posted 8/21/2008 12:39 PM (GMT -6)   
"I squeeze the bottle and it is meeting so much resistance that it leaks out around the bottle neck."
 
In my experience, some of the enema bottles (depending on which generic manufacturer made the bottle) are tougher than others.  There was one generic manufacturer whose bottles always seemed to offer more resistance in the sqeezing part and usually seemed to leak at the bottle neck.  My advice is to either put tape around the neck of the bottle or to ask the pharmacy if they can give you enemas made by another manufacturer.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 8/21/2008 12:48 PM (GMT -6)   
Have you tried taking the Canasa suppositories instead of the enemas? When I was in a severe flare and couldn't get the enemas "up there" my GI prescribed Canasa. Quite expensive, but worked okay. I am now back on the Cort enemas alternately with Canasa...still bleeding though and in a mild flare. Oh well.
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