Is this just a coincedence?

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Susiebuddy
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Date Joined Feb 2005
Total Posts : 1373
   Posted 8/20/2008 11:27 PM (GMT -6)   
I got diagnosed with U/C almost 4 years ago..... Well, this last June, my husband started having abdominal pain and constipation. He went to his GP who prescribed him a laxative and sent him home. He took the laxative and it had no effect on his problem. So he went back to the dr because his pain was getting worse and they ordered a CT scan... The scan came back positive for Diverticulitis.. So, his GP (who should have referred him IMMEDIATLY to a GI) prescribed Cipro for 7 days..  He took it perfectly, felt better and 4 days later after stopping the antibiotics the pain and constipation came back, but worse...  So he called his GP who again prescribed him Cipro for 10 days this time.. He again took the meds perfectly and this time felt better for about 10 days. Then WHAMO, the pain came back and was really bad, so his GP finally referred him to a GI.... (GOOD CALL).. So he went to see the GI and got prescribed Cipro AND Flagyl and was to take them both for 14 days.... Once again, he did the meds perfectly, even though they made him nauseas the entire time he was on them and this time it was only 3 days and the pain came back and was so severe he made me take him up to the E.R..... While there, they gave him diluadid (sp) for pain and he felt better so they sent him home.... All was well until the very next night in the middle of the night(about 2am tuesday)... He woke up around midnight and started having to go poopie.... They were very smalll pieces and black in color, he was in INTENSE pain and began to vomit about every 5 minutes.... This went on for almost 2 hours, him sitting on the pot and leaning over into the bathtub to vomit.. At about 3am, when he could hardly walk, I finally called 911 and had him taken back to the E.R...   Once there, they gave him anti nausea meds and they really helped and he stopped vomiting. They gave him pain meds and got him stable and admitted him... That morning the told us he was scheduled for a colonoscopy Wednesday am (this morning).. The procedure went well and they found his sigmoid colon full of ulcers and very red and irritated. The rest of his colon looked ok but they did random biopsies to rule out crohns disease. So it looks like he has U/C and the put him on Prednisone and Asacol.... He takes the pred for 5 days then stops, but stays on Asacol, 2 pills 3x daily....  I am wondering if taking 50mg of pred for 5 days then stopping without tapering is ok???? Seems to me he should taper off due to the fact that he was violently ill....
 
  Anyhow.. this is too weird.. we have the same disease now and are both flaring at the same time!!!
Diagnosed with U/C January 31st, 2004, IBS on July 21st, 2006 
 
 No remission no more.. lol.. Flaring now for 3 weeks. Blood and mucus and cramps.. argh!!! Meds are Rowasa, Canasa and Culturelle 1x a day, plus an occasional Xanax if I feel stressed out.... 
 
               http://www.myspace.com/77016897         


quincy
Elite Member


Date Joined May 2003
Total Posts : 30995
   Posted 8/21/2008 1:34 AM (GMT -6)   
His "colitis" could be antibiotic induced. Rectum is spared or did you mean it's up and into the sigmoid?

Seems it's coincidence, although, some had mentioned a while back that it's suspected that it can be passed along. There have been a few couples on our site each having IBD.

It's unfortunate he's suffering as horribly as he is....certainly was a fast process from initial symptoms to this. Did you have him use probiotics while he was on the Cipro?

Apparently, some doctors do use higher dosages of pred for short periods and not taper. Be thankful he's not on it for too long.

Can he get in to see your GI? My next thought is if he has diverticulosis/diverticulitis plus an IBD seems he'll be in for a bumpy ride for a while.

Totally sucks Susie to hear this....although there's always a part of me that gets some pleasure from the twisted irony.

Keep us posted for sure.

How are you doing through all this?
q xx
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


TaylorB
Regular Member


Date Joined Jun 2007
Total Posts : 76
   Posted 8/21/2008 2:39 AM (GMT -6)   

MY HUSBAND and i both have UC.  we present differently.  once our vet mentioned that maybe the cat had colitis...that was weird...the cat is fine now

 

 


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1198
   Posted 8/21/2008 3:08 AM (GMT -6)   
This might prove the "environment and bacteria" factors as the link.

Diagnosis Oct 07 and then Aug 08: 2 Patches of Mild Chrohn's Colitis
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate)


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 8/21/2008 8:53 AM (GMT -6)   
Hello everyone and thanks for the replies, He's sitting here right next to me and I swear, he's a new man this morning.. The prednisone has him feeling better than he has in weeks, in just one day!! Quincy, I've got a feeling you are right about it being antibiotic induced.. he was on so many for so long.., although I did have him taking 2 culturelle a day while he was on them all.... AND, the environment and bacteria factors.. listen to this!!! We both drink our well water and that is going to stop. Another thing that is weird... We are the only house on our sreet that has had nobody with cancer. We live in a rural area and everyone has well water. My next door neighbor died of rectal cancer a couple of years ago, and my other neighbor has prostate cancer that has spread and he's in the last stages of the disease. My OTHER neighbor had bladder cancer but is doing fine now 6 years later... And, we all have well water... So, I bought up tons of bottled water "Purified" and we'll be drinking that from now on. All ths factors in to a probable cause..... Anyhow, I gotta run for now... Oh Quincy, I am flaring also, the worst blood I've ever had and cramping, but not feeling too bad so I am back on rectal meds... I'm going to see if I can get a pred pack to nip this in the bud though.... since our GI's work in the same office and are FANTASTIC... . I swear, we are both so lucky to have the dr's we have...
Diagnosed with U/C January 31st, 2004, IBS on July 21st, 2006 
 
 No remission no more.. lol.. Flaring now for 3 weeks. Blood and mucus and cramps.. argh!!! Meds are Rowasa, Canasa and Culturelle 1x a day, plus an occasional Xanax if I feel stressed out.... 
 
               http://www.myspace.com/77016897         


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/21/2008 12:25 PM (GMT -6)   
LondonRed said...
This might prove the "environment and bacteria" factors as the link.

Except one still has to be genetically predisposed to getting IBD in the first place in order for it to be triggered environmentally.
 
This isn't the first time someone on here has spoken of their spouse as also becomming an IBDer, just goes to show how more and more people are getting sick with this DD.
 
So sorry for your hubby susiebuddy, I hope he quickly finds remission.
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)


IndianaUC
Regular Member


Date Joined Feb 2007
Total Posts : 212
   Posted 8/22/2008 8:48 AM (GMT -6)   
I was diagnosed back in '97. My maternal grandmother died from colon cancer. Noone else in my family has every had UC. My mother has IBD. I was pretty much symptom free for 10 years and all of a sudden it just hit me like a ton of bricks. I'm still unable to get out of my flare. My husband has recently been going to the bathroom more often with D. We have well water, but we don't drink it. We also grew up in different states. Where I grew up there was a very high number of people with different types of cancer. I blame my genetic marker on living in that area. Very highly contaminated area. I never wanted to have children because I didn't want to pass this on to them. sad
- DXed with "left sided" UC in 1998. DXed with "proctitis" Oct. 2007
- Sulfasalazine 4 500mg tabs twice daily
- 500mg Vitamin C, 1 Multivitamin, L-Glutamine
- Max Acidophillis EC Capsules 350Mg(7 types of bacteria with over 42 billion viable cells) with 50 Mg colostrum & 50 Mg FOS(fructo-oligosaccharides)
- Experimenting with this or that on occasion. Always open to new ideas.
- Colonoscopies - 2 (Due for my next one ASAP)


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 8/22/2008 8:59 AM (GMT -6)   
Hey Susie, I thought when I developed UC after my husband was dx'd with it that we were an odd couple. I still wonder if it's not the contaminated water here where I work....even though we drink from bottled water on plant, one never knows what we've been exposed to. We did happen to find out that there are several other people on plant dx'd with it too. Interesting, huh? Glad to hear your hubby is feeling better today, and hope you are feeling better soon. Hugs!

Carol

Remicade - will have my 24th infusion on October 2
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 8/22/2008 11:42 PM (GMT -6)   
Howdy again.... We heard from my Hubby's GI today and it's inconclusive to what he actually has... His ulcers are ONLY in the sigmoid part of the colon and no where else, not in the rectum or further up than the sigmoid... which the GI says sort of rules out Crohn's or U/C.... he's thinking that this was brought on by all the antibiotics he was taking for the diverticulitis, had he been given the coctail of Cipro and Flagyl for 14 days right from the start, he would probably gotten over the Diverticulitis and been ok.. but since they kept giving him only Cipro, then finally the combo of the two, it was just too much for his colon to take.

Hopefully, this will be the type of IBD that will only happen once and not be a recurring thing... As for my flare, I'm still flaring.. I ate a salad today and almost puked in my car on the way to the bank this afternoon.. then I almost didn't make it home before running to the bathroom to go poopie.. Oh well, at least I got to eat salads for a few weeks.. lol... Hubby's feeling better and he's to start tapering off the Pred, he goes down to 20mg for a week, then 10mg then stopping alltogether. But he'll stay on the Asacol, 2 pills 3x a day for quite some time, plus we're both taking Cultirelle now.....

And Loneylane.. have you heard from Sherree at all lately??? We need to do another breakfast at Sweat Peas!!!!! LOL
Diagnosed with U/C January 31st, 2004, IBS on July 21st, 2006 
 
 No remission no more.. lol.. Flaring now for 3 weeks. Blood and mucus and cramps.. argh!!! Meds are Rowasa, Canasa and Culturelle 1x a day, plus an occasional Xanax if I feel stressed out.... 
 
               http://www.myspace.com/77016897         


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 8/22/2008 11:55 PM (GMT -6)   
No one else in my entire family (8 aunts & uncles, 22 cousins) has IBD. My cat does. He had to have his colon removed. He takes sulfasalazine and is fine. Go figure.
Age: 48
location: Seattle, Wa
currently in small flare, tail end of colon
Diagnosed with UC in June 2006
Medications: Asacol 3 pills 3 x/day, Cortifoam at bedtime, Canansa in the morning
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/23/2008 1:13 AM (GMT -6)   
Yup, oddly enough both cats and dogs can get IBD.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 8/24/2008 5:59 PM (GMT -6)   
not forgetting to mention, the pred makes him verrrrrrrrrrrrrrrrryyyyy irritable and hard to live with.. He's hard to live with anyway and the pred just makes it worse.. I'll be keeping my mouth shut for the next couple of weeks till he's off that nasty nasty drug... MAN, what a grouch!!!!!!!!
Diagnosed with U/C January 31st, 2004, IBS on July 21st, 2006 
 
 No remission no more.. lol.. Flaring now for 3 weeks. Blood and mucus and cramps.. argh!!! Meds are Rowasa, Canasa and Culturelle 1x a day, plus an occasional Xanax if I feel stressed out.... 
 
               http://www.myspace.com/77016897         


quincy
Elite Member


Date Joined May 2003
Total Posts : 30995
   Posted 8/25/2008 12:51 AM (GMT -6)   
pred?? Thought he was only going to be on it for a short stint?
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 8/25/2008 8:03 PM (GMT -6)   
Hey Q,

His GI decided to taper him down instead of taking 50mg a day for 5 days... So he's on 20mg for a week, then 10mg a week... He's been going crazy, being mean and hateful, took my name off our checking accounts and opened new ones in his name only.... It's so strange... he's really turning into a mean person.. He was not easy to live with before as you can probably remember, but now it's getting to be impossible...

Get this... Tomorrow's my Birthday, so he actually bought me a cake and a card and I'm crying my eyes out because I don't understand him at all... I feel so horrible.... he's mean most of the time, then he does this and brings me to tears.....
Diagnosed with U/C January 31st, 2004, IBS on July 21st, 2006 
 
 No remission no more.. lol.. Flaring now for 3 weeks. Blood and mucus and cramps.. argh!!! Meds are Rowasa, Canasa and Culturelle 1x a day, plus an occasional Xanax if I feel stressed out.... 
 
               http://www.myspace.com/77016897         


quincy
Elite Member


Date Joined May 2003
Total Posts : 30995
   Posted 8/25/2008 9:25 PM (GMT -6)   
can you spell paranoia? bipolar? Sometimes pdnisone can trigger bipolar disorder if one already suffers from depression etc.

Call the doctor and TELL him that your husband's mental condition doesn't agree with pred. It can do freaky things..seriously.

quincy





q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 8/25/2008 10:23 PM (GMT -6)   
Thanks Q

I've been suffering in silence... I obviously can't even begin to bring this up with hubby because he's already on the edge from the pred. I just can't believe how much he's changed from being on a med...I swear, I avoid him, don't talk to him unless he talks to me, and try to stay out of his way mostly. I feel like a scared child and I try to understand it's mostly from the meds, but it still is very hard to deal with, knowing your husband is on medications that make him angry all the time, and then trying not to let what he says bother you because you HOPE it's because of the meds he's saying crap in the first place. I think I willl call his dr tomorrow and see what he says... but man, if my husband finds out I called, I'll be in so much trouble... he doesn't think the way he's acting is from the pred so we'll see what happens.... Thanks again Q!
Diagnosed with U/C January 31st, 2004, IBS on July 21st, 2006 
 
 No remission no more.. lol.. Flaring now for 3 weeks. Blood and mucus and cramps.. argh!!! Meds are Rowasa, Canasa and Culturelle 1x a day, plus an occasional Xanax if I feel stressed out.... 
 
               http://www.myspace.com/77016897         


TaylorB
Regular Member


Date Joined Jun 2007
Total Posts : 76
   Posted 8/26/2008 6:32 AM (GMT -6)   

when my husband was on high dose steroids, 80mgs, he brought a sledgehammer into the house and used it.  he was out of control. (that is just one example of craziness while on steroids)  

is your husband on an antidepressant while going through steroid therapy?  ask the doctor about it.  also,  i will never again allow a doctor to put my husband on such a high dose of prednisone.  (i have UC also and have many years of dealing with doctors and drugs) i have learned that you have to arm yourself with knowledge and that the doctors sometimes are grasping at straws. 

it goes away...when my husband was sick, years before i got sick, i didnt understand his pain.  i wasnt as sympathetic as he was with me when i got sick.  my husband just got a flare after an 8 year remission.  i can help him a lot more this time.

 

 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 8/26/2008 8:30 AM (GMT -6)   
Susie, Q is very right about the bi-polar setting in with Pred. Same thing happened to my late husband; out of control at 80 mgs and into a bi-polar state....please don't be afraid to help your husband by talking to his doctor. It may just take some meds to get him back to a healthier place.

Carol

Remicade - will have my 24th infusion on October 2
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 8/27/2008 5:45 AM (GMT -6)   

Susie -

I am truly sorry to hear about your husband's current behavior and mental state.  I know that when I took pred, it made me a different person as well.  Quick to anger, irritable, surly, withdrawn (moreso than normal), paranoid, and also having a never ending need for food.  I didn't recognize it at the time, but I can now tell I had the 'roid rage' skull    I believe that it even cost me a job I had been only been working at for 9 months.  Since I am usually pretty laid back and go with the flow, extremely understanding and accomodating, it was a surprise to find out that my co-workers thought of me as hostile. 

Anyway, after a long taper off that evil drug, I began to feel like myself again, so there is hope for your hubbie.  Please contact his doc and let him what is going on.  If what everyone is saying about pred possibly causing a bipolar episode is true, the sooner he is done with it, the better off you will both be.  If he needs some other medication to counteract the roids, try to find something that could be short term until he is "normal" again.  It doesn't sound like home is very comfortable for you right now, and that isn't right.  Get him off the pred, and let him stabilize on the Asacol before things start to spiral out of control, which it sounds like is happening.  Good luck, and I hope this passes over without damaging your relationship horribly.

Brandon


Brandon
 
Diagnosed w/ moderate UC in May '06, had symptoms for years prior to dx

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