Remicade - can you restart after you have stopped it?

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Beth75
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Date Joined Jul 2007
Total Posts : 2148
   Posted 8/21/2008 11:00 AM (GMT -6)   
what's the consensus?  Also......asking new GI this.
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 10mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5962
   Posted 8/21/2008 11:11 AM (GMT -6)   
My GI told me that once you stop the Remicade treatment there is no going back. Don't know if anyone else agrees with this or not. As for myself, I am afraid to go on Remicade as I was exposed to the TB virus back in the 50's and tested positive for TB on the patch test. Although nothing showed up in my lungs. My GI's associate, who actually cared for me in the hospital, told me absolutely that I am NOT a candidate for Remicade as he had a patient die on him because the TB virus became activated by Remicade injection. However, my GI is pushing the Remicade....what a dilemma!

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/21/2008 2:59 PM (GMT -6)   
Actually, about 50% of people experience problems with resuming Medicaid after once stopping it. Usually it's because their bodies have developed antibodies. Until recently, I'd always heard it was most people, but recently the research nurses in my GI's office said it's only about half.
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 8/21/2008 5:09 PM (GMT -6)   
But you may be able to try Humira, it's different enough that you wouldn't have antibodies to it. It's approved for Crohns, but not yet approved for UC, but depending on your insuracne and your doctors you may be able to have it prescribed off-label.
Meesh
Diagnosed UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08
9 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Tylenol Arthritis Formula or Tramadol as needed for arthritis pain; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D; Past meds: Prednisone 4/06-4/08; Entocourt EC; Rowesa; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix;Lexipro


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 8/22/2008 7:28 AM (GMT -6)   
thanks, that is what I thought.

I think I am going to hold off on the remicade for now b/c if remicade does not work for my MCD I would have to get off of it to go on the other drugs for MCD, I can't be on those and remicade at the same time. So I want to keep remicade 'in the bank' so to speak. I am going to try cellcept first and see how that goes. I don't want to start remicade and then have to stop it, it is a real longshot anyway.

also, I can get on Humira at MGH.
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 10mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 

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