thanks, that is what I thought.
I think I am going to hold off on the remicade for now b/c if remicade does not work for my MCD I would have to get off of it to go on the other drugs for MCD, I can't be on those and remicade at the same time. So I want to keep remicade 'in the bank' so to speak. I am going to try cellcept first and see how that goes. I don't want to start remicade and then have to stop it, it is a real longshot anyway.
also, I can get on Humira at MGH.
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 10mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs. Do you have edema? If so, check your blood protien level!