hm, interesting about
the Rowasa....but improvement and all that it can do are two different things. Personally, I think it can set up patients for a sense of disappointment.
I guess my "ignorance" is what's served me well....for my doctor persevered with the use of the term "be patient".
Yes, the enemas gave me improvement within the first week. Improvement is subjective. For some, it has to be gone, for others, it's not as bad.
So, hence my perspective is skewed by something that has served me well without high expectations. It's coming on 20 years of using the meds, and it's been a constant of the oral med, increased once in all the years...plus increase/decrease of rectal meds.
But...in saying allllll that, I don't have pancolitis. But, my UC has never been as bad as the first 2 - 3 years while learning how to use the meds effectively and early, early, early.....from that, my inflammation is only about
2 inches and that's the reward I've reaped.
Let me add that my diet hasn't really changed....and I do have my cake and eat it too....but it is balanced.
Here's my take.....if the 5ASA meds aren't working after a FAIR trial, then you add a rectal steroid med (foam) in the morning as a booster and taper off that to continue wih the 5ASA.
If eventually you realise that 5ASA isn't for you...then switch to the steroid enemas.
Your expectations and what the med can do and the possible side effects may not be what you want them to be.....
Eventually, you may have to get to the point of immunosuppressants...the work for some, they don't for others. It's a wait and see.
Everything comes with risks, to me, the 5ASA meds are still the lowest for me, but they do cause problems for others. If you have no problems with them, then I suggest you give them a fair try. If you think the 4g is too much, then do the 2g or alternate with them.
When was your last c-scope? Has the doc taken a look-see lately?
I can't blame monthly cycles in your situation.
It's good exercise is working for you.....more to calm than overstress is what I see as good during flares.
My take on it....
Keep up the enemas at least for a while...to me you're improving if you're not as bad as before...but you do have some options.
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!