Just diagnosed

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MemphisMarine
Regular Member


Date Joined Aug 2008
Total Posts : 26
   Posted 8/21/2008 1:03 PM (GMT -6)   
Hello all. I was just diagnosed with Ulcerative colitis. I am already finding out that this disease is a definite life changer. I am stationed in Corpus Christi and was going through flight school until I went med-down. I recently had a second colonoscopy to verify that I did in fact have this horrible disease. Sure enough just after the colonoscopy my symptoms got worse. Now my GI has me taking 40 mg of prednisone as of yesterday. I started taking a suppository on Tuesday of this week. My symptoms don't really seem to be getting better. How long does it usually take for prednisone to affect blood and stool consistency? Thanks for any responses that I might get.
Current Meds: 40 mg Prednisone, 4.8 g Lialda, 1000 mg Mesalamine suppository


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 8/21/2008 1:23 PM (GMT -6)   
so sorry to welcome you here! Pred initially did not help me much two flares ago, but this last one it helped in a couple of days. Though the first time I took it I had to quit my maintenance med cold turkey, so that may be why.

they should give you a maintenance med like Asacol too.
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 10mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 8/21/2008 5:13 PM (GMT -6)   
If he's on Lialda he wouldn't be on Asacol, it's basically the same medication.
Diagnosed UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08
9 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Tylenol Arthritis Formula or Tramadol as needed for arthritis pain; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D; Past meds: Prednisone 4/06-4/08; Entocourt EC; Rowesa; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix;Lexipro


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 8/21/2008 5:23 PM (GMT -6)   
Welcome to Healingwell! It's bitter sweet. Finding more people with this dreaded disease is sad. Finding a great support group like this one is a blessing.

Pred can start working in as little as two days to as long as two weeks.

Did your doc say where in your colon your UC is located?

I suggest reading through old posts. When I first found healingwell, I spent several days reading posts and learned SO much that my docs never mentioned. I also found it helpful to find people going through the same things I was.

Oh - while on pred, you should take a calcium supplement.

I hope you get some relief soon!
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission?!?!?
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08:  Next infusion: 10/07/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


MemphisMarine
Regular Member


Date Joined Aug 2008
Total Posts : 26
   Posted 8/21/2008 6:47 PM (GMT -6)   
My GI said that it is affecting about the last two feet of my colon. After that he said its like it hits a brick wall. Everything looks normal and healthy after that. He said it was kinda weird. I guess that it usually tapers off to healthiness, but not with me. Thanks for the advice with the calcium. I am taking a multivitamin that contains calcium. I talk to my GI tomorrow about how I am responding to the 40 mg dosage of prednisone. I'm so happy, its been 7 hrs since my last BM! Guess the prednisone is working.
Diagnosed with UC protosigmoiditis: May 2008
Didn't believe it so I got scoped again in August, definitely have UC
Current Meds: 40 mg Prednisone, 4.8 g Lialda, 1000 mg Mesalamine suppository
Currently in a flare!!!


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 8/21/2008 7:02 PM (GMT -6)   
absolutely regarding the prednisone to take calcium supplements as the prednisone is not good for the bones..my husband has osteopena due to the prednisone - so do all you can to keep that from happening.

As suggested - there is a ton of information here - if you can take time to browse the different topics you will find a lot of info....it can be confusing and overwhelming too - have a notebook to write down different things that pop out at you to question with the Dr.

It is such a trial and error situation and what works for one does not always work for someone else. You can see in the signature lines of the different posters how long they've had it, what type and the various meds they are on.

61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07  Oct 07 feeling quite normal most days.  150mg Imuran  Zero mg prednisone  12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Cortifoam enema every other PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/21/2008 7:46 PM (GMT -6)   
Memphismarine, the amount of calcium in a multivitamin is not sufficient when you're on Prednisone. You should be taking 1200-1800 mg. per day along with 800-1200 IU of vitamin D. This figures out to two or three tablets a day of calcium with vitamin D. If you're going to end up on the Prednisone for several months, you should also talk to your doctor about a prescription for an osteoporosis preventive drug such as Alendronate.
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/21/2008 10:37 PM (GMT -6)   
You'll likely (hopefully) notice even more improvements with the pred in the next day or 2, but keep in mind pred is just a booster drug in order for the wait of the maintenance drugs to kick in (which you don't say he has you on any oral maintenance drugs, you may want to discuss this with him) the rectal meds are good to be on but with the disease actually affecting your colon at this point and not your rectom, you need to be on oral maintenance meds along the lines of asacol, imuran, ect (meds that target the colon).

I strongly recommend a good probiotic daily and indefinitely (remission or not) I use one called primadophilus reuteri made by natures way which has guaranteed intestinal release.

I have crohn's colitis (crohn's affecting my colon) and my GI suggested I take fibre supplements daily and indefinitely, which was the best advice I've ever gotten in my 17 yrs of having crohn's disease...it aids with D or C and like probiotics, helps sweep the bowels of bad bacteria (actually probiotics replenish good bacteria, but bottom line is getting rid of the extra bad bacteria which is why both probiotics and fibre supplements can be very beneficial). IBDers are prone to bacterial over-growth which is another reason probiotics are essential, there's even been studies on one called VSL3 which has proven to be especially beneficial for UCers (more tests need to be done for those with CD and the effects/benefits VSL3 may bring).

Sorry you have to be here, but at least you found a place that is supportive and can have plenty of good advice based on people's own experiances in living with this horrid IBD.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


MemphisMarine
Regular Member


Date Joined Aug 2008
Total Posts : 26
   Posted 8/21/2008 10:42 PM (GMT -6)   
Thanks. Your quote at the bottom cracks me up. No pun intended.
Diagnosed with UC protosigmoiditis: May 2008
Didn't believe it so I got scoped again in August, definitely have UC
Current Meds: 40 mg Prednisone, 4.8 g Lialda, 1000 mg Mesalamine suppository
Currently in a flare!!!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/21/2008 11:42 PM (GMT -6)   
you're welcome and I'm glad you enjoy my quote, it's based on my experiances with IBD and a silly thing my OLDer siblings used to tease me about when I was little, who knew it would actually become true LOL!

:)
My bum is broken....there's a big crack down the middle of it! LOL :)

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