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Rhiannon
New Member


Date Joined Jul 2006
Total Posts : 18
   Posted 8/22/2008 10:46 PM (GMT -6)   
I have UC and was diagnosed with it in April of '06. I don't take any meds at the moment, I just deal with it as mine is not as bad right now as it has been in the past. I still hardly ever have even half-way normal stools though. I haven't crapped my pants since June, so that is good. Anyway, I just had a breast reduction and was on pain pills. They slowed me down and I almost felt normal for awhile. My main question is what is it in pain pills that "constipates" you and why the hell can't they make UC pills out of whatever it is that kept me from having crappy poop days for a little bit???? I was never constipated, but it seemed to get me back to as normal as a person can get that has UC. I'm off the pain pills now and back to crazy BMs. Just wanted to vent!

Thanks!!!

NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 8/22/2008 11:34 PM (GMT -6)   
I had pain pills for a root canal and I noticed the same thing. They also helped with the "urge nerve" down there. You would think there would be something like clove oil or novacaine or something to stop the pain down there.
Age: 48
location: Seattle, Wa
currently in small flare, tail end of colon
Diagnosed with UC in June 2006
Medications: Asacol 3 pills 3 x/day, Cortifoam at bedtime, Canansa in the morning
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/23/2008 5:57 AM (GMT -6)   
Pain pills slow the colon down, which can be a good thing on occasion but the problem that we Uc'ers face with that is if the colon is slowed down too much and for a long period of time; it increases our risk of Toxic Megacolon. This is highly dangerous and deadly condition in which the colon just stops working and can preforate causing sepsis. I get that affect too from pain pills but for me, even one dose constipates me so severely that I know I am at a higher risk for Toxic Megacolon. I'm talking one dose and I am constipated for 5 days! Absolutely horrible - I don't know what's worse; running to the bathroom all the time or being constipated for 5 days.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/23/2008 9:01 AM (GMT -6)   
Generally the pain pills they give you contain codeine or some other opiate. In addition to toxic megacolon, they have some other drawbacks. First, of course, is that they're addictive. Second is habituation. As you take opiates of any kind, your body begins to develop a tolerance so that the same dose will not provide the same effect over time. Thus, the dosage has to be increased to achieve the same effect.
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 8/23/2008 9:24 AM (GMT -6)   
Wanna hear something really scary??? My brother has an arm injury and they gave him methadone for the pain. He has surgery in 2 weeks. I'm hoping that alleviates the pain. Perhaps the regular pain pills weren't working. To me they should then move up the surgery or something. I can't even get a prescription for ativan for 30 pills for A YEAR. My brother has an addictive personality (I don't). Giving him methadone seems to me to be the most stupid thing ever. The inconsistency in prescription practices in the US is INSANE!
Age: 48
location: Seattle, Wa
currently in small flare, tail end of colon
Diagnosed with UC in June 2006
Medications: Asacol 3 pills 3 x/day, Cortifoam at bedtime, Canansa in the morning
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 8/26/2008 12:11 AM (GMT -6)   
i take endone (oxycontins -- opiate) for pain.
i get pain really bad.

the trick is to take stool softeners with it.
not the kind that are like laxatives cuz they cause spasms and cramping.
the stool softeners solve the constipation problem in an easy way.

works for me.
steph - 32 - female - UC since 2000
currently flaring again..  grrr! (triggered by stress - grrr)
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
prednisolone 25mg x1 a day (ick ick and did i say ick?)
tumeric capsules x3 a day
 
 
 


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 8/26/2008 4:13 PM (GMT -6)   
Maybe your GI could give you a prescription for Lomotil. It slows the colon down but it is not a painkiller. You have to be careful you don't develop toxic megacolon though.
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08,  Humira started 4/4/08, 6MP started 6/24/08


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 8/26/2008 6:28 PM (GMT -6)   
I find I can get a little peace occasionally when I need it by taking one half an immodium tablet. It calms things without the discomfort caused by a 1 or 2 tablet dose that shuts things down. Although that can be handy, too...
49 year old female, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering off presnisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, etc. diet which resolved flare. Also Replete probiotic, DGL (licorice root, slippery elm), Permeability Factors. Slow-release iron and B-12 shots for severe anemia.
 


Rhiannon
New Member


Date Joined Jul 2006
Total Posts : 18
   Posted 8/29/2008 11:15 PM (GMT -6)   
I know there are reasons that they don't give this stuff to UC patients, I just wish they could develop something that works as well. I get constipated, but not that bad. It's just nice to have a break in the constant run to the bathroom!!!

burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 8/30/2008 12:19 AM (GMT -6)   
Peety said...
I find I can get a little peace occasionally when I need it by taking one half an immodium tablet. It calms things without the discomfort caused by a 1 or 2 tablet dose that shuts things down. Although that can be handy, too...


My doctor said I can use Immodium only if I don't see blood. Has anybody heard about this?
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare till the present.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema/suppository, Salofalk tablets 500mg x 3/day, Azathioprine 75 mg. Warfarin for my Deep Vein Thrombosis which resulted from diarrheas and dehydration in Feb 2008.
Supplements: Probiotics, Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsule (Metamucil)


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/30/2008 6:48 AM (GMT -6)   
I've never heard that burnabygirl. I am not fond of Immodium though because years ago, I took a couple of them and had the most intense abdominal pain. I haven't taken them since. My GI said that I could take 1 a day if I absolutely needed to though. I'm guessing that your docs reasoning is that when there is bleeding, your colon is in a very fragile state?? But to know why your doc said that is to ask him.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 9/2/2008 1:21 PM (GMT -6)   
kazygirl said...
i take endone (oxycontins -- opiate) for pain.
i get pain really bad.



You must, seeing as they give that drug to terminal cancer patients..
Male 36yrs old. Indeterminate Colitis 6 yrs.


Fish Oil
Lialda
Protonix
multi vitamin


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 9/2/2008 2:19 PM (GMT -6)   
Oxycontin, Percocet and other similar drugs are used for many things, Harpo. Pain from cancer, postoperative pain, any other severe pain. The thing about pain is that no one can ever truly know how much pain another is having, because we all perceive pain differently. Some people with active UC have very severe pain, others have little to no pain. It depends on how the disease manifests.
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 9/2/2008 3:05 PM (GMT -6)   
As long as a patient go's through a pain specialist and is monitored for abuse then maybe it can be warranted. Can a GI can even legally prescribe this stuff ? There's no way its legal to take them and drive.. Its close to a Heroin level drug..
Male 36yrs old. Indeterminate Colitis 6 yrs.


Fish Oil
Lialda
Protonix
multi vitamin


shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 9/2/2008 3:29 PM (GMT -6)   
Hi guys! I have had UC for 5 yrs now. I do have BAD abdominal pain during flares. It can be to the point that i even pass out from the pain. I do not take pain meds for my UC. I have found that nulev works really well for cramping related to my UC.

Now, i also take Percocet 5mg 3x a day for the last few years for pain related to a accident that i had as a child that is causing chronic pain now. I am with a Pain Management Clinic, and my GI is aware that I am on percs.

Honestly, i can't say that even the percs help the accute pain w/ UC flares. The nulev usually does the trick tho. I have found that my flares and my Dirrehea are less as a result of the perc use tho. I did have severe constipation in the beginning but worked it out (ha ha, literally) w/ stool softners. Now, i do not even have constipation as a side effect, even tho i do have slowing bowels since i don't have D anymore most of the time!

Good luck
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-current, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 9/2/2008 3:48 PM (GMT -6)   
Immodium used to be available only by prescription, and my GI prescribed it although I was bleeding.

(When it became available over-the-counter, insurance would no longer cover it so it was expensive for a while! Now you can buy big bottles cheap).
49 year old female, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering off presnisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, etc. diet which resolved flare. Also Replete probiotic, DGL (licorice root, slippery elm), Permeability Factors. Slow-release iron and B-12 shots for severe anemia.
 

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