How are we to know if we are well or not? It's so frustrating and the anxiety makes things worse. I have hemmies which I am not sure bleed or not but the GI took pictures of them on a scope, I do have them - they are small internal ones. I am told they can bleed - so how do we IBDer's tell whether it's the hemmies or the colon?
My stools are fine and well formed and I only get mild urgency in the morning first thing but I have always had that (IBS). Otherwise I feel totally well in myself and just yesterday went for an 12 hour round trip to watch Liverpool and did't get any urgeny or any need to have a bowel movement during that time. I am having about 3 bowel movements a day.
But the BLOOD doesn't seem to go away, One day it will totally disappear (like yesterday) and the next day it will come back (like
this morning). The blood is bright red, and there is no consistency to how it appears - sometimes it is on the outside of one or two of the stool, sometimes it drips into the pan but more often than not it is confined to the tissue.
How do I know if I am flaring or if the inflammation is still there? I don't want to keep taking strong meds if it is just my piles (which I think it is) but I also don't want to stop taking meds if my colon is bleeding. I am confused as I stopped bleeding for 9 months last time although a lot of that time, I didn't even look at the tissue when I wiped!
I am so sad - every time I stop bleeding, it seems to comes back. The blood could be from the rectum or the anus or from piles, there is no way of knowing :(
Anyone else have the same problem?
Diagnosis Oct 07 and then Aug 08: 2 Patches of Mild Chrohn's Colitis (unconfirmed)
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate)