How do those of us with hemmies know we are well?

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Veteran Member

Date Joined Oct 2007
Total Posts : 1190
   Posted 8/24/2008 12:31 AM (GMT -6)   

How are we to know if we are well or not? It's so frustrating and the anxiety makes things worse. I have hemmies which I am not sure bleed or not but the GI took pictures of them on a scope, I do have them - they are small internal ones. I am told they can bleed - so how do we IBDer's tell whether it's the hemmies or the colon?

My stools are fine and well formed and I only get mild urgency in the morning first thing but I have always had that (IBS). Otherwise I feel totally well in myself and just yesterday went for an 12 hour round trip to watch Liverpool and did't get any urgeny or any need to have a bowel movement during that time. I am having about 3 bowel movements a day.

But the BLOOD doesn't seem to go away, One day it will totally disappear (like yesterday) and the next day it will come back (like
this morning). The blood is bright red, and there is no consistency to how it appears - sometimes it is on the outside of one or two of  the stool, sometimes it drips into the pan but more often than not it is confined to the tissue.

How do I know if I am flaring or if the inflammation is still there? I don't want to keep taking strong meds if it is just my piles (which I think it is) but I also don't want to stop taking meds if my colon is bleeding. I am confused as I stopped bleeding for 9 months last time although a lot of that time, I didn't even look at the tissue when I wiped!

I am so sad - every time I stop bleeding, it seems to comes back. The blood could be from the rectum or the anus or from piles, there is no way of knowing :(

Anyone else have the same problem?

Diagnosis Oct 07 and then Aug 08: 2 Patches of Mild Chrohn's Colitis (unconfirmed)
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate)

Forum Moderator

Date Joined Apr 2004
Total Posts : 23551
   Posted 8/24/2008 5:56 AM (GMT -6)   
Do you have any pharmacy that carries suppositories for hemmies? If so, have you tried them? Yes, I have the same problem. I never really know if the bleeding is from my internal hemmies or a rectal flare. Bright red blood is indication of fresh blood either from a hemmie or from a rectal flare. But if you are having no other symptoms then I would tend to think that it is just your hemmie that is acting up. Either way, you need to address the bleeding because if left untreated any type of constant bleeding can lead to anemia. So if the blood is from your hemmie then maybe you can get an otc hemmie suppository or have your GI prescribe something such as a steroid suppository.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
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Regular Member

Date Joined Mar 2008
Total Posts : 212
   Posted 8/24/2008 9:44 AM (GMT -6)   
I'm with Red. I tried the OTC suppositories before and they sorta irritated things for me and made the hemms worse. I am at the point where I am going to ask my GI for something as well. Currently I am using cortifoam for a small flare. I use canasa when not in flare. I'm going to ask if Canansa does anything to (or for) hemms or if there is any other medication that needs to be used from time to time.

Everyone is different. Some people hate meds. They don't bother me and I'm the sort of person that doesn't seem to have any issues with them. I'm not advocating them for you, just saying they work ok for me and don't bug me.

So I guess your best bet is to make a list of questions and call the doc and see what your options are : ) Then you can choose what you think will work best for you.
Age: 48
location: Seattle, Wa
currently in small flare, tail end of colon
Diagnosed with UC in June 2006
Medications: Asacol 3 pills 3 x/day, Cortifoam at bedtime, Canansa in the morning
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis

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