Need some guidance...

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New Member

Date Joined Aug 2008
Total Posts : 2
   Posted 8/24/2008 10:40 AM (GMT -6)   
I am a 26 year old mother of triplets who has been diagnosed with Proctitis.  Can anyone relate to my story and give me some much needed advice?
Six years ago I got married and got on the birth control Microgestin, immediately I did not feel like myself (but never made the connection to the birth control).  After about 8 months on the drug I was suffering with severe mental depression and daily diarrhea that impaired me greatly.  I was nearing a mental, physical, and emotional breakdown.  After finally reading the warning signs on the box, I realized this pill might be causing my troubles.  I immediately quit taking Microgestin and headed to my Gynecologist.  He tried to put me on a milder form, same reaction.  This attempt to put me back on birth control continued for several months until I demanded the madness to stop.  In the process, my ovaries quit working and I was told I had Polycystic Ovary Syndrome.  I headed to a Gastro to see about the diarrhea and had a routine Colonoscopy and Upper GI.  Diagnosis:  IBS and a very acidic stomach.  For the next four years I dealt with what I was told was IBS.  The depression had promptly stopped once I got off the birth control, but the bouts with diarrhea continued 1-3 times a week.  Then, came part 2...trying to have children.  I was told fertility drugs were the way to go, so we proceeded down that path.  Three little blessings (at once) did follow along with a host of medical problems.  During pregnancy, I had no trouble with diarrhea but had a constant, nagging pain under my right rib cage that has never gone away (2 1/2 years post-delivery).  Post-pregnancy the diarrhea continued now on a daily basis (2-5 times) daily and mostly before 11:00 am.  One gastro put me on dicyclomine with no colonoscopy and sent me on my way.  Four months later and not much improvement I went to a different doctor.  She did a colonoscopy and found I have mild proctitis.  Prescription Lialda was prescribed.  From the very first pill, my diarrhea subsided (this was May).  6 weeks into treatment I had a week of persistent diarrhea and got pretty discouraged.  Then, about 2 weeks of feeling good.  Now, the pain under my rib cage has increased and the diarrhea is back.  
Two weeks ago, my doctor was suspecting gallbladder disease.  Ultrasound showed no stones. 
My question to anyone that could help:  Are these symptoms classic ulcerative colitis symptoms?  Is there a connection to chronic gallbladder disease and proctitis?  Can severe hormone imbalance actually cause colon and gallbladder inflammation?
I would just like to hear your story. 

Veteran Member

Date Joined Dec 2007
Total Posts : 1028
   Posted 8/24/2008 11:15 AM (GMT -6)   
My Uc symptoms started about 2 months after Istarted to take birth control. After 7 years of misdiagnosis, finally got the UC diagnosis. Went off the pill and have been kept in pretty good shape with mild flares for 10 years. After many issues with my cycle, my ob/gyn prescribes birth control again last July. After 5 days of constant crying and diahrrea, went off them cold turkey. Continued with massive flare for 5 months. Finally got that under control and will NEVER take birth control again. Hormones can do awful thngs to you. I am not sure about gall bladder issues, but it is the only thing that can explain my flare. I had my hormaones checked and was low on corisol, progesterone and a handful of other hormones that they don't check for. I had to go to a gyn that prescribed hormones that are naturally made, not synthetic jsut to get the testing done. My Uc was held in check for my pregnancies as well. Hang in there and keep searching for answers. I wish you the best and jsut know that you are not alone.
diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female

New Member

Date Joined Aug 2008
Total Posts : 2
   Posted 8/24/2008 11:36 AM (GMT -6)   
Thanks lemonhead for your story. I know my hormones are not in balance still, but like you I cannot take synthetic hormones as they make me severely depressed. How did you find a gyno that uses bio-identical hormones? Any good websites you could point me to?

Regular Member

Date Joined Aug 2008
Total Posts : 327
   Posted 8/24/2008 2:27 PM (GMT -6)   
Hi Lemonhead,

I am curious if you ever ended up using any of the bio-identical hormones? My cycle has made me incredibly ill the past two months (day and night nausea for a week), and I've been wondering about hormone testing and maybe progesterone cream or something like that? I am 41 and suspect I'm in perimenopause.

I'd love to hear anyone's experiences --


Dx ulcerative proctitis June 2008 (after 5 weeks of blood and mucous)
Canasa 1000 mg suppositories nightly
Effexor 37.5, Clonazepam .5 mg and Trazodone 50 mg for sleep
2.5 mg methimazole for thyroid
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