mucus during the day

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landcruiser
Regular Member


Date Joined Jun 2008
Total Posts : 80
   Posted 8/24/2008 5:05 PM (GMT -6)   
Just to throw this out for anyone to comment......I am interested if any one else experiences the shot glas like expulsions during the day....no gas...no blood....no stool.....just a but that feels like I have been sitting n a metal chair for a week, and these little mucus dribbles about three or four times a day......on no pred right now....on remi.....little bit of blood on stool in morning with formed stools that hurt to pass sometimes...just stopped rectals 5 days ago due to the fact I thought the enemas were hurting or scarring me...much less blood since topping but the but hurts and the little mucus bombs are a pain in the you know what.......anyone have any similar experience?

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/25/2008 7:13 AM (GMT -6)   
Mucous can indicate that you are in flare (which you are) or it can indicate something you ate is not agreeing with you. When I flare, I get a lot of mucous mixed with blood, bile or stool thru out the day. But in remission, I sometimes get it when I ate something that my colon didn't like. Have you ever tried steroid rectal meds?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
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ediekristen
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Date Joined Apr 2007
Total Posts : 1366
   Posted 8/25/2008 11:50 AM (GMT -6)   
I get mucous almost every time I go to the bathroom.. Sometimes I feel like I really need to go and it will just be a bunch of mucous.

Female, 23, Ulcerative colitis (pancolitis) diagnosed at age 15; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use. 

Current Meds:
Lexapro 10mg
Trying out Lialda, 2 pills/day

 
 


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 8/25/2008 12:09 PM (GMT -6)   
I get it a lot too- just like you, thruout the day. no bm's, aside from the AM 4-6, but then I'll pass just mucous a couple times thruout the day. At night, it's gas & mucous, maybe I'm up 2x with it. I don't sweat it too much- I figure a mucous accident is a heckuva lot easier to deal with than an actual bm accident, if it ever gets that bad! plus, I'm doing really well right now, I think... so I deal with the mucous. It's strange because when I have an actual bm, there isn't any mucous- in the toilet or on the stool. Maybe a little blood on the stool sometimes, but no mucous. Then I'll pass just mucous, no bm at all. I can't figure it out- it doesn't seem to correlate with what I eat.
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


landcruiser
Regular Member


Date Joined Jun 2008
Total Posts : 80
   Posted 8/26/2008 5:54 AM (GMT -6)   

Eva Lou, that is exactly the same as me......question I have for you is....are your morning BM's formed or is it D?  Mine are well formed...almost hard at this stage.....with some blood on the first stool but none of the others...I feel pretty good most days....it is just so frustrating to get to this stage and not be able to get all the way home.....does anyone feel this is the last stage before remission? 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/26/2008 6:01 AM (GMT -6)   
Oh heck yes! I am in that stage right now and have been in a frustrating holding pattern for a while now. I don't have bleeding but I do still have 2 bouts of D in the mornings. My first bm is semi solid and the other 2 are D. I don't have pain or any other symptom really but if only I can stop having that D in the morning then I would feel that I am good to go.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 8/26/2008 12:56 PM (GMT -6)   
Wait a minute!

let me get this straight, when you say, "mucus dribbles about three or four times a day" do you mean that there's leakage that occurs, let's say while your walking around or sitting at a desk, etc. ? If so, I have finally found someone with the same issues I have...please let me know if this is the case!

It's so annoying having to get up, go to the bathroom and wipe the area...Eva is this what you experience as well?
oh...one more thing...I have noticed that mucus leakage usually means a bm is coming.

NBT


Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.

Post Edited (NuffinButtTrouble) : 8/26/2008 11:59:17 AM (GMT-6)


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 8/26/2008 1:48 PM (GMT -6)   
yes, landcruiser- my AM bm's are totally formed- soft, but definitely NOT diarrhea. And I'll have 1-2 mucous passing epsiode, then my usual 4-6 bm's, sometimes with blood on the first stool, then I'm done. thruout the day, after I eat, I get the urge to go- it's just mucous! Same at night- I get the urge, get up, go to the bathroom & it's just mucous. It is frustrating, but it's better than a full-out flare. My GI thinks that formed stools vs. diarrhea are one of the factors in flaring vs. not. He's always interested when I tell him I do not have D. I don't have mucous leakage, but when I get the urge & go try to pass something, it's usually just mucous.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


landcruiser
Regular Member


Date Joined Jun 2008
Total Posts : 80
   Posted 8/27/2008 6:27 AM (GMT -6)   
Eva, it seems we are in the same boat, except my first mucus in the am has some diluted blood....bt none of the others have it during the day...It's weird ....I guess if we have formed stools the inflammation is just very low in the colon if not in the rectum....I am having a sig on fri to check on what is happening. I see we are both on Remicade as well.....Do you feel like you are better, worse, or the same the week to 10 days following an infusion? I definately feel like I get worse.....then get better in the middle and before the net infusion.

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 8/27/2008 10:18 AM (GMT -6)   

Following an infusion, I get better- less gas, which means less mucous. I just had an infusion yesterday, actually. I measure my progress in weeks- I'm on a six week infusion schedule- the first 3-4 weeks after the infusion are great, sleeping pretty much thru the night, very little urgency/mucous/blood. But I still go 4-6x per day, in the AM, always formed. Then around week 5, I get gassier, I'm up 2-4x per night passing mucous. By week 5, I'm up at least 3-4x a night, have gas nightly, pass lots of mucous.... It's bizarre though, cause the entire time, I'll generally stick to my 4-6 formed bm's in the AM, & that's it! Sometimes I'll have a small one during the day, if I've eaten a lot, but not usually. I've just been stuck in this UC pattern for awhile now. I don't mind too much- I'm eager to hear what your scope shows- please post it! Right now I'm paranoid that I have some infection & the remicade infusion will kick it into overdrive- I've had a headache for 2-3 days, & just feel kind of lethargic. But it's ragweed season right now, & I do have allergies, so.... plus they do blood work on me just prior to my infusions, which didn't seem to show anything out of the ordinary. Anyway- yeah, the mucous is annoying but it is better than a true flare! How long have you been off steroids? I haven't taken them since February, which is pretty major for me.

 

 


diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


landcruiser
Regular Member


Date Joined Jun 2008
Total Posts : 80
   Posted 8/27/2008 3:40 PM (GMT -6)   
thanks for the reply.....I have been off of pred for two weeks...but prior to that I was only on 1 mg for 1 month and 2mg for a month before that. Your experiences with Remicade are similar to most.....but not to me...I swear I am worse the week to 10 days post infusion. I also get terrible migranes about twoce during the 6 week period. I too get the gas at night...2 am to be exact, but like last wek I was up during the night all the time even with the enemas, and now it has quieted down except for this morning...I woke up feeling great slep through the night, with just a little gas around 5 am. I usually get up and have to head straight to the toilet for a minor expulsion of mucus...sometimes pink sometimes not. This morning was well great.....no urgency...fed the dogs had my coffe and then actualy walked to the toilet and sat for a few munites before a movement....it was formed though multiple with some blood on the stool...not out of the ordinary....then my second one was ok....then the third was a nightmare....loose, bloody and mucusy...go figure...I really thought I was going to come out opf this seeing that yesterday I didn't even have the mucus stuff during the day.....so I dont know anymore....I am awaiting the scope to see if anything is better but at this point I feel like he is going to tell me the remicade is not working and we need to try some other high powered drug.....I wish I could take the 5 asa's but I cant tolerate them at all.....they make me go more and loose and blood.....I did dtart caprylic acid a few days ago, and maybe that is having a negative effect.....not sure ...ever try that stuff? anyone else reading please feel free to chime in

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 8/27/2008 3:57 PM (GMT -6)   
Jeez, good thing we're not roommates, cause my mornings are EXACTLY like yours! I haven't tried any "alternative" treatments, aside from reiki. The remicade does take a week to kick in, then it's good for a bit, then downhill. So what'll you do if your GI tells you remicade is losing effectiveness? And are you on the 10mgs/kg dose? If not, I'd try the higher dose & see how that goes. Are you bothered by your current symptoms? For me, they don't trouble me too much. And are you taking immunosuppresants? Good luck on friday- I hate sigs!

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


landcruiser
Regular Member


Date Joined Jun 2008
Total Posts : 80
   Posted 8/27/2008 4:19 PM (GMT -6)   
I am on the higher dose...I crashed on the lower dose back in March.....I tried 6 mp but it really made me toxic in the liver category so thats out...and the 5 asa i can not tolerate...thats the unfortunate thing...I can not take some of these meds casue they make me worse......AM i troubled, well sort of...I would love to be normal again, and it makes me scared to schedule anything, and it's touch on traveling.....I know if I took 10mgs of pred I would be fine...mayeb I will try the entocort...some people have had luck with that....was so happy to be off the pred, and every time I think I am getting out of the woods...bam.... a morning like today...but I am alot better than I was when this started.....so I guess the remi is working somewhat...just not the wow that some people get......I guess I will just stick with the program.....maybe he will see some progress on the scope...maybe.....thanks for your replies and support
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