Nice to meet you and welcome to the forum. I can't offer much advice in the way of meds, because my inflammation is lower than yours (which requires different medication). But I can give you my thoughts on diet. I tried eliminating MANY different kinds of foods and tried all sorts of different diets, including SCD, just up until last week. I was SO weak and so miserable and dehydrated that my muscles were cramping and my memory was actually getting bad (scary!), and I lost about 10 pounds. Then I realized that when I was first diagnosed and eating more foods, my symptoms weren't as bad.
With that said, I had learned a lot over the last several months about foods that aggravated me. I'll list them below. But as far as strict diets, like SCD, they didn't help me. And if you're going to try them, you have to be extremely disciplined and be willing to cook most of what you eat (which is no fun when you feel like crap already).
I know those diets work for some people. For me, with a toddler and husband to feed in addition to myself, it was not a reasonable option. I'm actually a very good cook, but it was still just too much work.
You'll have to figure out over time which foods work for you and which don't (use a food diary!). My list is pretty specific, but here goes:
NO: fluid or semi-fluid lactose (milk, sour cream, etc.), fruit and fruit products, fried/greasy/fatty foods, nuts/seeds/granola, raw veggies, caffeine, large amounts of processed foods or white sugar, anything more than a few sips of alcohol.
I do still make the homemade yogurt that was part of the SCD, and I eat it daily. It think the probiotics/good bacteria it provides have TOTALLY helped me.
I hope this helps you. Let me know if you have more questions. I'd be happy to offer any help I can.
Katie, 30. Chicago 'burbs.
DX: Ulcerative Proctitis (10cm) January '08
Current Treament: Rowasa 60 ML 2X daily, Cortenama 100 ML 1X daily, Bentyl 20 MG and Tylenol (as needed), and multivitamin daily.
Diet/Exercise: Avoiding trigger foods. Daily yoga, walking, or cardio w/weights.
Previous Treatment: Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins.
Status: Flare since diagnosis