Back to square one? (well maybe not)

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Veteran Member

Date Joined Jun 2008
Total Posts : 2865
   Posted 8/25/2008 10:42 AM (GMT -6)   
You all who have been nice to help me and are interested in my progress.  I was doing so well (still am in some ways) with the Colazal (reduced doseage to 1X3 because of side effects - last week)  Added Rowasa enemas about 9 days ago.  I had to call for refill of enema on Friday and my pharmacy has to special order it so I can't get it until today.  In the meantime, I had one left so used the Canasa for two night.  Before that - no blood visible and formed stools - 1 or 2 in the morning - just right.  I have been "trying" to eat low fat (I don't process fat well) and blank - no fiber much.
I had company over the weekend - all went well - UNTIL we went out to eat.  I have 1/2 baked potato with nothing on it, little mac salad and dry bread, then broiled seafood - variety which I ask to be cooked with tiny butter and they did.  I left a two shimp and 1/3 haddock fish.  Anyway, that was it.  about 20 min. later I got ver sick, pain around me right under my breasts - like gas and then diarrhea.  I went about 6 times and took Imodium, pepto bismall and gasX (my doc says it is ok).  Nausea came and went all night - cramping the same.
Now this is how I used to get sick before all these pills and enemas except I did not see any blood.  I feel, weak, dizzy a little and tired today (well, not much sleep).  No BM today but then the two Imodium will do that for maybe a day. 
Am I back to square one - darn - or just should I avoid seafood and going out to dinner.
YUCK - I truly hate this UC and admire all those of you who have had it for years - not like me!!
68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 1X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa nightly

Regular Member

Date Joined Jul 2008
Total Posts : 94
   Posted 8/25/2008 12:02 PM (GMT -6)   
Hi Elaine,
I have the same symptoms as you when i start with a flare.  I am currently on Prednisone and Entocort (having problems tapering right now) but i have found that even though i feel good on these drugs that if i go out to eat it makes me sick too.  I don't know why, i can eat as bland and as safe as I can, but i most likely end up sick all night too like you did.  It's so frustrating.  My husband wanted to take me out to dinner for our anniversary this past weekend and i didn't want to just for the fact i was afraid i'd end up in misery.  I wish i had an answer for you, but at least you know that it does happen to others as well..I hate UC, it has ruined my life.

Veteran Member

Date Joined Jun 2008
Total Posts : 742
   Posted 8/25/2008 12:10 PM (GMT -6)   
Elaine -
I noticed you said you don't process fat well. I have the same problem with fatty, greasy or fried foods; and I can tell you that mayo is not my friend. I wonder if your mac salad had something to do with your upset stomach. I just ate potato salad at my mother-in-law's house the other night, and tried to wipe most of the mayo off. I still had major poops afterwards. :-( It really sucks, because I LOVE mayo. You might want to try eliminating it for a while. Aside from that, I'm glad to hear you were having some progress! Hope you can get back on track. ;-)

Katie, 30.   Chicago 'burbs.
DX:  Ulcerative Proctitis (10cm) January '08
Current Treament:  Rowasa 60 ML 2X daily, Cortenama 100 ML 1X daily, Bentyl 20 MG and Tylenol (as needed), and multivitamin daily.
Diet/Exercise:  Avoiding trigger foods.  Daily yoga, walking, or cardio w/weights.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins.
Status:  Flare since diagnosis

Regular Member

Date Joined Jun 2008
Total Posts : 281
   Posted 8/25/2008 6:04 PM (GMT -6)   

Elaine, I was thinking along the same lines as Katie, and that maybe it was one food, not necessarily the combination or even eating out.  Could you have become sensitive to the shrimp or fish?  Did anyone else feel queasy at all? 

When I eat out, if I suffer from it, it's usually the day after.  I think when I'm enjoying myself at a restaurant, my stress level is lower.  It's when I spend more time at home analyzing, not eating this or that ad nauseum that I seem to feel worse. 

It could also be the combo of the med change, but if you read what you wrote about how you felt again, especially within 20 minutes, doesn't it sound a bit like some kind of food poisoning? 
I hope you're doing better now. 
Potato...  Female, 58, dx mild left sided ulcerative colitis 11/07
asacol 3 3x a day 
cortenema (generic) am & pm 
culturelle, benefiber wafers 
children's vitamin, Vitamin E 400 mg
omeprazole 2x a day
oxazepam when needed, lomotil or ImodiumAD (but not in the same day)

Regular Member

Date Joined Oct 2007
Total Posts : 348
   Posted 8/25/2008 8:36 PM (GMT -6)   
perhaps it was the potatoes??? I've noticed a few different people of HW mention that they can't eat potatoes.........
South of Boston, Ma
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin 5000mcg, Fibercon.

Veteran Member

Date Joined Apr 2006
Total Posts : 733
   Posted 8/25/2008 9:52 PM (GMT -6)   
My money is on the shrimp. According to the book "The New Eating Right for a Bad Gut," shrimp is usually rough on IBDers. It was either that or the mac salad, or both. I have gotten to the point where I don't even like to go out to eat anymore because that is usually happens to me too, sometimes no matter what I eat.
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08,  Humira started 4/4/08, 6MP started 6/24/08

Regular Member

Date Joined Jun 2008
Total Posts : 205
   Posted 8/25/2008 11:41 PM (GMT -6)   
I used to love prawns, oysters and crabs. But since my last flare I was told by a Chinese traditional herbalist not to eat any seafood without a backbone. He said the protein in those seafood triggered the immune system to fight against it. So now the only seafood I can eat is fish.
UC since July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare till the present.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema/suppository, Salofalk tablets 500mg x 3/day, Azathioprine 75 mg. Warfarin for my Deep Vein Thrombosis which resulted from diarrheas and dehydration in Feb 2008.
Supplements: Probiotics, Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsule (Metamucil)

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