Nightsweats with Lialda/Rowasa Enemas?

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ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 8/25/2008 12:24 PM (GMT -6)   
I know most of us get nightsweats on prednisone (which I'm not on), but does anyone experience this with either Lialda or the Rowasa enemas? I started them both at the same time so I don't know which it is, but every night I wake up cold and shivering but completely DRENCHED in sweat. Been having daily headaches as well. Ah well, if it's not one thing it's another, right?

quincy
Elite Member


Date Joined May 2003
Total Posts : 30993
   Posted 8/25/2008 1:31 PM (GMT -6)   
exactly. It can be the 5ASA meds. I do get hot when I use the enemas.

Oh, some foods that produce methane will make you hot as well.

Headaches are a side effect as well..although, I don't get them from the 5ASA. How much Liala are you on.

Suggestion...create a signature of what meds you're on at this time and what meds you cannot take..etc.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 8/25/2008 3:47 PM (GMT -6)   
Eek sorry, I must have hit the no signature box.
I've tried basically everything short of Remicade; Lialda and Rowasa were the last of the 5ASA's that I hadn't taken. I'm really getting fed up with it all and have a follow up appointment with my GI on September 18th and I plan on asking for a surgical consult, JUST to talk to a surgeon, not necessarily to schedule anything yet. Just to have that option lined up I guess.

But I've been on Lialda now for almost a month (wow time flies!) and Rowasa for only a week but I still have some bleeding and lots of mucous, and the pain has more than doubled as well as the overall crappy feeling... I feel more generally sick and fatigued 24/7 than I have in a long time, like I'm constantly getting ready to get the flu or something.

Female, 23, Ulcerative colitis (pancolitis) for 8 years so far; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use....

Current Meds:
Lexapro 10mg, Lialda 2 pills a day, Rowasa enemas nightly

 
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 8/25/2008 6:35 PM (GMT -6)   
Errg..... I just ran to the bathroom with some painful *D* and low and behold, there were two completely whole Lialda pills in the mix. Is this the same as they with Asacol how "the medicine is on the coating" so it's normal to pass them whole??

Female, 23, Ulcerative colitis (pancolitis) for 8 years so far; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use....

Current Meds:
Lexapro 10mg, Lialda 2 pills a day, Rowasa enemas nightly

 
 


JRob
Regular Member


Date Joined Jul 2008
Total Posts : 29
   Posted 8/25/2008 6:48 PM (GMT -6)   
I've been on Lialda for about the same amount of time as you. I don't think it is normal for them to come out whole. The MMX coating on Lialda is supposed to protect it from the stomach acid and small intestine but should be dissolved by the time it gets to the colon leaving just the medicine. The ironic thing is it seems that Lialda started working better for me when I stopped drinking coffee, which was making me go an extra three to four times a day. It seems the Lialda needs time in the colon to be at it's most effective. Whatever is causing the D may be preventing the Lialda from staying in long enough to work. Even though it's supposed to help with getting rid of the inflammation which causes the D in the first place.
Ulcerative Proctitis - October 05 diagnosed
Currently- bad flare since March 08 but improving

Current Meds that are working
lialda - 2 pills AM
prednisone - 20mgs/day hope to taper soon
hydrocortisone enema - PM
canasa - PM (currently replaced by hydrocortisone e's)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30993
   Posted 8/25/2008 9:06 PM (GMT -6)   
Are you taking the Lialda with food or on an empty stomach ediekristen?
q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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