Another question about possible flare

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LyndaC
Regular Member


Date Joined Aug 2008
Total Posts : 63
   Posted 8/27/2008 1:48 AM (GMT -6)   
I know I posted a few weeks ago thinking possibly I was heading into a flare, but then I read some posts that suggested that once off steroids certains 'symptoms' may establish and this will possibly be the norm for a person and not necessarily mean a flare. so I settled back and stopped worrying but kept an eye on what was happening.  That made sense to me.  I don't want to become obsessed with this disease when I'm not in a flare if you know what I mean. The pain in my lower back (right) has become worse and worse and is at it's worst just before I have to go to the loo. I'm like an old lady with the joint pain which has become worse over the past week and I'm going to the loo much more frequently with cramps althouth they're not bad, yesterday it was 10 times in total.  Formed but the first bm had a small amount of blood.  I've already been twice and I'm only up a half an hour.  The gurglings in my lower abdomen (actually they're more like internal farts eyes ) are now present too.
 
So a few questions...
 
How long before the bloody D happens do any of you notice symtoms?  Days? Weeks? My doc said to contact him with first symptoms of bloody D. 
Does it just sneak up and 'just happen'? I have been thinking that it takes time for the inflamation to get to the point that it's bleeding and so it can't just happen? But maybe it does just happen.
And what symptoms if any do you experience before a flare? I know everyone is probably different.
 
Thanks in advance.
 
Lynda
 
 
40 year old female. Ireland.
Suffered with stress for 5 years and quit smoking 2.5 yrs ago.
Diagnosed UC in June 08.
Asacolon 2400mg per day
Protiem 
Prednisone
Also taking Calcium, Acidophilis, Zinc, Vit C, Vit B complex, Omega 3 and Evening Primrose
 
I'm on my own little planet..but that's okay they know me there.
 
 
 


men8ifr
Regular Member


Date Joined Jul 2008
Total Posts : 124
   Posted 8/27/2008 3:02 AM (GMT -6)   
If my gut is gurgling quite a bit the next day I normally see blood.

Generally I know when I am not 100% well and then blood and D can happen quickly - within a day or 2.
Ian

6 Asacol tabs/day
1 Pentasa Suppository / day
Fish oil 3/day (omega 3 only)
Multivitamin and mineral 1/day
Folic Acid 1/day
Aloe Vera 3/day
Specific Carbohydrate Diet SCD
Turmeric 3/day
Currently in no mans land between flare and remission


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/27/2008 5:12 AM (GMT -6)   
For me, I can usually tell by my joint pains. When my knees and back start really hurting then I know that a pending flare is coming up. It can be any where from a day to a couple weeks. Uc is so unpredictable though so I don't gage my flares soley on my joint pains. I usually wait until I start with the cramping before I go to the toilet to know for sure that I am entering a flare.

I believe that it takes a while for the inflammation gets to a point in which you see the bloody D so that is why it is important to know your body and understand your Uc. It can take a while before you can do this and recognize the signs of an oncoming flare. Which btw, it sounds as if you are Lynda. You should contact your doc and tell him what is going on before it gets any worse.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


LyndaC
Regular Member


Date Joined Aug 2008
Total Posts : 63
   Posted 8/27/2008 5:41 AM (GMT -6)   
Thanks guys...cramping pretty bad and feeling like I want to be home today, close to the loo. When you posted men8ifr I was feeling fine, not unwell at all except for the joint and back pain...since eating at lunch I don't feel so well. I'm getting shivers and the beginning of a headache.
Thing is Red my doc said to contact him when I have the bloody d, no need before. he said he doesn't act until he knows for sure I'm in a flare. Think I'll ring anyway tho.
Thanks for your replies.
 
40 year old female. Ireland.
Suffered with stress for 5 years and quit smoking 2.5 yrs ago.
Diagnosed UC in June 08.
Asacolon 2400mg per day
Protiem 
Prednisone
Also taking Calcium, Acidophilis, Zinc, Vit C, Vit B complex, Omega 3 and Evening Primrose
 
I'm on my own little planet..but that's okay they know me there.
 
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/27/2008 6:17 AM (GMT -6)   
You have to remember too that once the bloody D starts that it may be harder to get your flare under control. If and when you start entering a flare, once you recognize the symptoms and be proactive in your care; the easier it will be to get the flare under control. Do you know the extent of your Uc as in where in the colon it is? I know they have different prescriptions in Ireland so I am not sure what Asacolon is. Is that an oral pill or rectal? If it isn't rectal you can try to see if they have any rectal meds.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


LyndaC
Regular Member


Date Joined Aug 2008
Total Posts : 63
   Posted 8/27/2008 6:58 AM (GMT -6)   
Asacolon is mesalazine tablet. I think probably the same as Asacol but I'm only guessing cos it sounds the same. I have left sided colitis. It was quite bad according to the GI and it took time to get under control. I was on rectal med Sufflak (sp) and Predfoam for two weeks after being discharged from hospital. I have a weeks supply upstairs still, I wonder would it do any harm to start using them again to see what happens. Last visit I specifically asked him at what point I should contact him as I wasn't sure what to watch for in regards to symptoms and the beginning of a flare. He said not till bloody D, that was the first sign. clearly that is not the case.
 
40 year old female. Ireland.
Suffered with stress for 5 years and quit smoking 2.5 yrs ago.
Diagnosed UC in June 08.
Asacolon 2400mg per day
Protiem 
Prednisone
Also taking Calcium, Acidophilis, Zinc, Vit C, Vit B complex, Omega 3 and Evening Primrose
 
I'm on my own little planet..but that's okay they know me there.
 
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/27/2008 8:19 AM (GMT -6)   
Our flares present themself differently. To me it sounds like you are in a flare and the enemas probably would help. But one week isn't going to be sufficient. For the enemas to work properly, you need to be on them for 2-3 weeks at least and then tapered off.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


LyndaC
Regular Member


Date Joined Aug 2008
Total Posts : 63
   Posted 8/27/2008 8:35 AM (GMT -6)   
Was thinking that, I might do more harm than good starting and stopping. The doc might not be too happy with self prescribing either. Will see what tomorrow brings and ring him then. He's in surgery today anyway. Thanks for your advice.
 
40 year old female. Ireland.
 
Diagnosed Left sided UC in June 08.
Asacolon 2400mg per day
Protiem 
Prednisone
Also taking Calcium, Acidophilis, Zinc, Vit C, Vit B complex, Omega 3 and Evening Primrose
 
I'm on my own little planet..but that's okay they know me there.
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30611
   Posted 8/27/2008 1:05 PM (GMT -6)   
Hi...definitely do the rectal meds and you should never wait till you see the bleeding as a sign of a flare.

The doc will probably want you back on prednisone, you could hold off on that and suggest to him you want to try the rectal meds for a while instead of the pred.

My thoughts on pred...it's an easy solution with long term headaches as far as getting things controlled while trying to get off it. UC starts at the rectum, and really you should have been on rectal meds while tapering the pred and continuing afterward with that as your treatment and maintenance meds (in conjunction with the oral 5ASA).

Go back on the rectal meds...use them faithfully and make sure you get enough refills.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


LyndaC
Regular Member


Date Joined Aug 2008
Total Posts : 63
   Posted 8/27/2008 4:05 PM (GMT -6)   
Thanks for that quincy. I'll speak to him tomorrow and ask him about the rectal. I was on them for two weeks and then stopped both but continued on the pred tapering for 8 weeks. Amazing how doctors differ.
 
40 year old female. Ireland.
 
Diagnosed Left sided UC in June 08.
Asacolon 2400mg per day
Protiem 
Prednisone
Also taking Calcium, Acidophilis, Zinc, Vit C, Vit B complex, Omega 3 and Evening Primrose
 
I'm on my own little planet..but that's okay they know me there.
 
 
 

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