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Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/27/2008 9:34 AM (GMT -6)   
I think I am going to make a doc appt soon but I was wondering how many of you suffer from Rosacea?  I started getting a rash on my upper lip and chin about a year ago.  I went to the doc for it and I was prescribed a cream that actually made it worse.  So I stopped it, the rash came and went - never went back to the doc for it.  I thought it might of been from the flouride in my toothpaste so I stopped flourinated toothpaste, went to all natural but the rash never went away completely.  So now, fast forward to now and for the past few months, the rash is now on my lower cheeks, chin, nose and upper lip with a dry feel on my lower cheek (jawbone area).  I was looking at some pics of Rosacea and it looks like Erythematotelangiectatic Rosacea.  I am already using Euchrin redness face wash and Euchrin redness cream and they help alot.  I mean this totally stinks!  I finally get my psoarasis under control when I went on 6mp and now I have to deal with this!  Anyway, I know that the websites say there is no known cause of Rosacea so I was wondering how many Uc'ers have this skin condition?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
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Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 8/27/2008 9:44 AM (GMT -6)   
Our son has it and uses Finacea cream that was prescribed by a dermatologist. He also had a few laser treatments on it which helped quite a bit.

Terri
 
_________________________________________________________________________________
Breast Cancer at 37; bilateral mastectomy with reconstruction.
Colon resection 2004; Sub-Total colectomy September 2007 for colonic inertia - didn't work.
Son with UC; taking Asacol and 6MP with Prednisone and Rowasa added during flareups. Recently diagnosed with ankylosing spondylitis - now on Humira. Canasa now added due to UP.
Husband with ankylosing spondylitis and psoriatic arthritis.


ErinD
Regular Member


Date Joined Jul 2008
Total Posts : 94
   Posted 8/27/2008 10:47 AM (GMT -6)   
I have it too and like you found the creams prescribed only made it worse.  My GI doc also mentioned to me that sometimes that 'butterfly' rash over your nose cheeks could possibly be a sign of Lupus (another Autoimmune Disease) and he had me take a blood test to determine that was not the case.  Just another thought.

BadGutGirl
Regular Member


Date Joined May 2004
Total Posts : 187
   Posted 8/27/2008 11:06 AM (GMT -6)   
I have it too. My rosacea started flared badly about 3 months ago, my UC about a month and a half ago. The rosacea is now on almost all of my face, neck and chest. My doctor just says "oh its adult acne, nothing you can do about it" ... *sigh*

------------------
Diagnosed with UC in 1996, symptoms since 1990
Dignosed with Depression - Jan 17th, take SAM-e and fish oil + therapy
Currently in a UC flare since spring 2003 (on and off, but always there)
Salofalk Sup per day, + fiber & aloe;
New city & new job as of 2 months ago!!
But still trying to watch my diet and stress levels


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/27/2008 11:55 AM (GMT -6)   
Erin, I've already had all the blood tests to rule out Lupus about 6 months ago when I went to see a Rheumatologist. Though of course, those blood tests are never 100% accurate so who knows. If the prescription creams made you worse, what do you do now to keep the redness down?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


BadGutGirl
Regular Member


Date Joined May 2004
Total Posts : 187
   Posted 8/27/2008 12:02 PM (GMT -6)   
I've pondered getting the blood tests for Lupus as well, but am trying to deal with one thing at a time. Unfortunately the city I live in now doesn't exactly have the best doctors and specialists. Almost makes me want to move back home.

------------------
Diagnosed with UC in 1996, symptoms since 1990
Currently in a UC flare since July 2008 *grrrr*
On Imuran 2mg/day, Primal Defence 2 tables/day, now added cortifoam for flare


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 8/27/2008 12:05 PM (GMT -6)   
I have it also, mine seems like it gets worse when I am flairing. I use a otc triple antibiotic cream, it works for me.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/27/2008 12:16 PM (GMT -6)   
Rona, when you use the antibiotic cream does the redness come back worse then before or when it comes back is it more of a gradual thing?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 8/27/2008 1:53 PM (GMT -6)   

I'm one of the lucky ones that also has Rosacea.  I actually posted something on here about it before, asking if anyone else had it.  I didn't get any replies, which led me to believe that I was the only one on HW that was lucky enough to have UC & Rosacea.  I was dx'd with it about 18 years ago.  I've had 2 laser treatments for it, and they hurt like hell.  Then you end up with bruising on your face for a few days, looking like I had been beaten up.  After the bruising has subsided, the rash is definitely better.  The thing is............When you have the laser treatments, it kills the veins that are causing the redness, and those veins will not come back, but new veins will pop up, so you are never really done with the laser treatments.  I had this done twice, to the tune of $500.00 each time. 

The redness on my face varies quite a bit.  Hot weather or hot beverages, spicy foods & nerves will increase the redness, along with cold weather and cold beverages and alcoholic beverages.  If I get aggravated about something, the redness will show up almost instantly.  mad

My dermatologist prescribed Finacea and Noritate cream for it.  I am not good at using them, I tried to be before but I didn't really notice much difference at all.  Also, when I am flaring, the redness increases.  I use a little bit of foundation to try to cover up some of the redness. My dermatologist is also big on keeping moisture on my face and keeping the sun off of it.  He tell me I should use sunscreen on my face even if I'm just running around doing errands.  He is big on using Cetaphil facial moisturizer.


*******Donna*******
 
South of Boston, Ma
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin 5000mcg, Fibercon.
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/27/2008 2:32 PM (GMT -6)   
Foundation doesn't aggravate it? I have been using coverup too to hide of some of the redness but I don't know if it is making it worse or not. The redness is especially noticable after I get out of the shower.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 8/27/2008 2:52 PM (GMT -6)   
No, foundation does not appear to aggravate mine. You would notice it more after the shower because of the temp of the water.
My dermatologist has done blood tests to check the a.n.a level for lupus. Sometimes it is higher than others, he hasn't tested me in probably 2 years now. Sometimes I was borderline for lupus level.
*******Donna*******
 
South of Boston, Ma
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin 5000mcg, Fibercon.
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/27/2008 3:43 PM (GMT -6)   
My primary sent me to a Rheumy because I was having a lot issues and of course my ANCA came back positive which is almost always seen in people with Uc. But he did other blood tests I even had my primary do some specific testing for other types of rheumatological issues. I had posted on the Lupus forum and asked some questions and the consensus was that even with negative blood tests, it can come up positive in the future. So that is something that I get tested for once a year by my primary. I sincerely hope I NEVER see a positive result but I guess that is something that anyone with immune system dysfunction has to keep in the back of their mind.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


BumTum
Regular Member


Date Joined May 2006
Total Posts : 304
   Posted 8/27/2008 9:28 PM (GMT -6)   

I have had rosacea for many years.  It's currently under control with Finacea, a cream.  I never thought that it might be related to my UC - that is an interesting thought. 

I had severe acne as a teen and when it moved out, then the rosacea moved in.  It's always something.  It is over my cheeks, nose, and chin.  Most of the time it's just red, but sometimes I have actual pimples and breakouts.  There is no cure for rosacea - you just have to try to control it.

I wish you the best.

Bumtum

 

 

 


  • Pancolitis since 5/06 at age 50, IBS since childhood
  • Degenerative Disc Disease/Spinal Stenosis - L4 and L5
  • Prescribed: Asacol, Atenolol, Zoloft, Synthroid, Menest, Crestor 
  • Prescribed: Xanax & Hydrocodone as needed
  • OTC:  Probiotic 15-35, Multi Vitamin, B Complex, Turmeric, Fish Oil, Biotin
 
 
 


charlie2
New Member


Date Joined Aug 2008
Total Posts : 10
   Posted 8/27/2008 10:04 PM (GMT -6)   
Hi I have UC and roscea on my cheeks as well. I use rosaliac cream which does help somewhat, avoid tomatoes and wear 60 sunblock

piper_chris
Regular Member


Date Joined Jun 2008
Total Posts : 73
   Posted 8/27/2008 11:06 PM (GMT -6)   
For the past month or so people have commented about my rosy cheeks. I just assumed its one of the many changes in my body due to my meds. When I read this post I looked at my cheeks closely in the mirror and looked at some photos of rosacea online, looks like I have a mild case. I don't think its bad enough to need any treatment at this point.
- female 41, diagnosed ulcerative colitis Feb 2005
- currently 10mg prednisone (tapering down from 80mg), 100 mg 6-MP/mercaptopurine/purinethol, asacol/mesalamine 4800mg (4 pills x 3 times day), 1 Canasa 1000mg nightly
- VSL#3, Benefiber, multivitamin, chewable calcium, fish oil, biotin, sometimes iron pills


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 8/28/2008 12:27 AM (GMT -6)   
Sherry, no I have never noticed it to come back worse, I just use the cream for a couple weeks then quit to see how its doing. I dont have it all the time mine kinda comes and goes it seems like with how I feel. If Im feeling bad then my face is normally red with that funky mark between my eyebrows and my cheeks get real red. but when Im feeling ok its not normally there. but for me the cream lightens the redness plus it feels like it takes the heat out of my face.if that makes sense.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 8/28/2008 7:41 AM (GMT -6)   
Bumtum,
It's not that the Rosacea is related to UC, but they are both auto immune diseases. Aren't we lucky to have both??
*******Donna*******
 
South of Boston, Ma
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin 5000mcg, Fibercon.
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/28/2008 7:46 AM (GMT -6)   
Is Rosacea an auto immune condition?? I was looking for that specifically when I was doing a web search but the websites said that Rosacea had no known cause including the official Rosacea support website. But it wouldn't surprise me any if it was. I seem to be getting the grab bag of auto immune conditions lately. Lordy I feel like I'm falling apart at 38 geez.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 8/28/2008 8:03 AM (GMT -6)   
I was told that by my dermatologist. I'm looking it up now myself, I guess I just took him at his word when he told me this.
*******Donna*******
 
South of Boston, Ma
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin 5000mcg, Fibercon.
 


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 8/28/2008 8:28 AM (GMT -6)   
Sherry,
I haven't found any info saying that it is an auto immune disorder either. I believe my dermatologist said something like "alot of people that have UC also have Rosacea" or something similar to that, and I just took it out of context. My Bad...........sorry for the mis info. This is what I believed for many, many years.
*******Donna*******
 
South of Boston, Ma
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin 5000mcg, Fibercon.
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/28/2008 8:59 AM (GMT -6)   
No problem. We sometimes take our docs word because we believe they know what they are talking about or we misunderstand them. Lord knows, I've done it myself in the past. But, just because they don't know the cause of it yet doesn't mean necessarily that in the future that they will correlate it to having other auto immune system issues.


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 

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