Should I be concerned?

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MemphisMarine
Regular Member


Date Joined Aug 2008
Total Posts : 26
   Posted 8/27/2008 9:44 AM (GMT -6)   
I have been taking 40 mg of prednisone for 1 week. I am still having blood in my stool. 2 days ago I went to the bathroom 3 times. Yesterday I went 1 time. And today I've gone twice so far. I am still having blood drip into the toilet. Should I be concerned? Shouldn't 40 mg of prednisone knock out the bleeding? Please help.
Diagnosed with UC protosigmoiditis: May 2008
Didn't believe it so I got scoped again in August, definitely have UC
Current Meds: 40 mg Prednisone, 4.8 g Lialda, 1000 mg Mesalamine suppository
Currently in a flare!!!


cycling_sasquatch
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 8/27/2008 9:51 AM (GMT -6)   
It should, but definitely give it more time. Some people, like me, it takes 60 mg to knock it down, but only a day or two. Others it takes longer, like a few weeks. I'd give it another week and see.
UC diagnosed Dec. 2006
Azathioprine 200mg/day
Multivitamin, fish oil, fiber supplement, Nature's Way Primadophilus Optima, Digestive Advantage Crohn's & Colitis


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/27/2008 11:24 AM (GMT -6)   
You may see improvements with in the next week especially if he has you taking 40mg for the first 2 weeks before tappering each week after.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 8/27/2008 11:27 AM (GMT -6)   
Have you eliminated the possibility of hemorrhoids? Your description of "dripping" blood made me wonder if that might actually be the source...?
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


MemphisMarine
Regular Member


Date Joined Aug 2008
Total Posts : 26
   Posted 8/27/2008 1:53 PM (GMT -6)   
Well, I just got a call from my doctor's office. My GI is out of the office for the day. I am going to be staying at 40 mg today and still continuing with the suppositories. I was told I will get a call tomorrow from my GI about what he wants me to do. Kinda ticked that I am still bleeding. The nurse at his office said that it should have stopped by now. Still worried though
Diagnosed with UC protosigmoiditis: May 2008
Didn't believe it so I got scoped again in August, definitely have UC
Current Meds: 40 mg Prednisone, 4.8 g Lialda, 1000 mg Mesalamine suppository
Currently in a flare!!!


piper_chris
Regular Member


Date Joined Jun 2008
Total Posts : 73
   Posted 8/27/2008 5:31 PM (GMT -6)   
I hope the 40mg works for you.  The first time I took prednisone for a bad flare, 60mg did wonders for me almost immediately.  A year and a half later during my next bad flare I took 60mg again assuming it would fix me up quick again.  I took 60mg each morning for almost 2 weeks and my bleeding (which was very heavy) decreased a bit in the day but was pouring at night (and my GI said I should NOT split the pred into day and night doses).  When I'd get off the toilet shivering with cold (I assume from blood loss), I said time to try something stronger.  My doctor wouldn't give me any higher pred at home, so I went in the hospital where I could get higher doses of steroids intravenously, which stopped the bleeding after several days.  It sounds like everyone responds differently and takes different amounts of time and has different dose needs.  And that at least for me, what was high enough dose for one flare may no longer be enough for the next flare.  So now I've climbed the next rung on the medication ladder, hoping the 6-MP kicks in and keeps me under control so I won't need prednisone in the future.  Keep following up with your GI.  Don't panic, prednisone can magnify anxiety (it did for me big time).  Staying at 40 may work for you soon.  If not, your GI may have you try increasing the amount.  I don't think going up to 50 or 60mg is uncommon for UC. 
- female 41, diagnosed ulcerative colitis Feb 2005
- currently 10mg prednisone (tapering down from 80mg), 100 mg 6-MP/mercaptopurine/purinethol, asacol/mesalamine 4800mg (4 pills x 3 times day), 1 Canasa 1000mg nightly
- VSL#3, Benefiber, multivitamin, chewable calcium, fish oil, biotin, sometimes iron pills


MemphisMarine
Regular Member


Date Joined Aug 2008
Total Posts : 26
   Posted 8/27/2008 6:04 PM (GMT -6)   
What is the first thing that stops when you get out of a flare? Is it normal to still have blood and only have 2 BMs a day? I don't really have diarrhea. I'm not constantly going to the bathroom. In the morning I HAVE to go. I talked to one of my GI's nurses and she said that is a normal thing for people taking suppositories. After I go that first time, within 30 minutes I have to go again and that BM contains way more blood than the first BM. It's almost all blood and barely any stool. I talk with my GI tomorrow about whether I am going to have to up my dosage. And yes, I have noticed an increase in anxiety. I try and read books and relax as much as possible. I think he said anything over 60 mg would top me off and that I would need a heavier steroid. Don't really care right now, just want to stop bleeding.
Diagnosed with UC protosigmoiditis: May 2008
Didn't believe it so I got scoped again in August, definitely have UC
Current Meds: 40 mg Prednisone, 4.8 g Lialda, 1000 mg Mesalamine suppository
Currently in a flare!!!


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 8/27/2008 6:24 PM (GMT -6)   
I remember when I would beg to take 60 mg prednisone, and beg to take some of it later in the day because I thought it was wearing off... But now I worry more about the effects of prednisone than seeing blood. I find urgency and pain less tolerable than bleeding. For me the bleeding never really goes away, but I only seek prednisone if I have pain.
49 year old female, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering off presnisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, etc. diet which resolved flare. Also Replete probiotic, DGL (licorice root, slippery elm), Permeability Factors. Slow-release iron and B-12 shots for severe anemia.
 


cigsbeezon
New Member


Date Joined Aug 2008
Total Posts : 9
   Posted 8/27/2008 7:48 PM (GMT -6)   
ok..I have to ask this...as I am on Pred for the first time in my life...I started at 40 mg on Monday.  Noone explained to me how to take it...so I have been taking 10 mg in the morning, 10mg in the afternoon, 10mg around 4pm and 10mg around 8pm.  Is this not right??? Like I said...noone explained it to me, but it stopped me from going 15-20 Bloody D's per day to 3-4 non bloody per day.  I feel SOOO much better, but could someone explain how I'm supposed to take it? It doesn't sound like I'm doing it right....

Apetro
Regular Member


Date Joined Aug 2008
Total Posts : 95
   Posted 8/27/2008 8:09 PM (GMT -6)   
Prednisone should be taken early in the day (I do it all in one dose), it is generally not recommended to be taken late at night as it can keep you up at night.
 
 
 
 
 
Diagnosed 7/27/08
Lialda 4.8gm/Day
Prednisone 60mg/Day


cigsbeezon
New Member


Date Joined Aug 2008
Total Posts : 9
   Posted 8/27/2008 8:28 PM (GMT -6)   
Thanks Apetro! Very useful link as well!

thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 8/28/2008 12:53 PM (GMT -6)   
Hi - I am currently tappering on Pred and am down to 10MG a day and I just take it once a day but - I went from 30, 25. 20 to 15 and when I was on those higher doses I did not take it all at once.  I had to take it several times during the day to provide constant medication in my system - otherwise I would flare up.  I tried taking it all in the AM and would be flaring by the evening.  When I split it into two or three doses it REALLY helped me.  My pharmacistsaid that as long I a take it with food and no later than 6PM it does not matter whether you take it all at once or split it up...so you might just try it both ways and see what works best for you...

MemphisMarine
Regular Member


Date Joined Aug 2008
Total Posts : 26
   Posted 8/29/2008 9:48 AM (GMT -6)   
Well, I talked to the doc and am now up to 60 mg of prednisone for a weel. Not really too excited about it, but hopefully this will knock out this stubborn flare and get me into remission.
Diagnosed with UC protosigmoiditis: May 2008
Didn't believe it so I got scoped again in August, definitely have UC
Current Meds: 4.8 g Lialda, 1000 mg Mesalamine suppository, 60 mg prednisone
Currently in a flare!!!


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 8/30/2008 9:36 PM (GMT -6)   
Hopefully it will work! The side effects will be uncomfortable. But I was there and I'm OK (no long term effects, I mean).
49 year old female, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering off presnisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, etc. diet which resolved flare. Also Replete probiotic, DGL (licorice root, slippery elm), Permeability Factors. Slow-release iron and B-12 shots for severe anemia.
 

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