Who wants to play doctor?

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LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1194
   Posted 8/28/2008 3:55 AM (GMT -6)   
Am I in remission? My GI liks e-mail updates and I am about to let him know with the following text. I have been on steroids for 2 weeks of 4 before I taper down, and on Pentasa 2000gm x 2 for 2 weeks.
 
1. I think the blood is from piles. I wiped halfway through a bowel movement - no blood - I wiped at the end and there was bright red blood on the tissue. I didn't strain this morning and there was no blood at all on both occasions. All blood is on the tissue, outside of the stools or sometimes drips into the pan - bright red.
 
2. I am concerned about my stools though, they are still not that big but come out in well formed smaller stools. I have about 2-3 bowel movements a day without much urgency usually in the mornings. I genuinely think my stools are being effected by the Pentasa, it has never agreed with me like Asacol did. I also suffer from IBS.
 
3. I often get wind and I don't know why - it makes me go to the toilet and sometimes just wind comes out!
 
4. I still have no pain, no extra fatigue, but often feel mild soreness down there after a bowel movement.
 
Have I got into remission?
 
Thanks ya'all.

Diagnosis Oct 07 and then Aug 08: 2 Patches of Mild Chrohn's Colitis (unconfirmed)
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate)


men8ifr
Regular Member


Date Joined Jul 2008
Total Posts : 124
   Posted 8/28/2008 5:20 AM (GMT -6)   
If you dont know the blood is from piles you don't know if you're in remission - also I wouldn't say i was in remission until I was only on maintenance drugs/doses you are still on steroids so that may be masking the effects and your BM's are not normal.

I tried to ask my doc a similar question and he didn't really have an answer - I dont think there is a clinical definition of remission so I took it to be whetever I want which would be 1bm a day no blood, no pain anywhere.
Ian

6 Asacol tabs/day
1 Pentasa Suppository / day
Fish oil 3/day (omega 3 only)
Multivitamin and mineral 1/day
Folic Acid 1/day
Aloe Vera 3/day
Specific Carbohydrate Diet SCD
Turmeric 3/day
Currently in no mans land between flare and remission


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1194
   Posted 8/28/2008 6:57 AM (GMT -6)   
With no pain, intermittent bright red blood on tissue usually at the end of the BM suggests close on 100% it's my piles. As for the BM's, I have IBS so am in a difficult position there. Gosh this is horrible isn't it?

Diagnosis Oct 07 and then Aug 08: 2 Patches of Mild Chrohn's Colitis (unconfirmed)
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30986
   Posted 8/29/2008 12:20 AM (GMT -6)   
LR...were you never on any rectal meds....suppositories to help heal the hemmies?

What's the next step for the Clipper Steroid?

The smaller stool can be contributed to not eating enough, rectal inflammation, rectal tightness (stress or IBS), hemmie inflammation...

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1194
   Posted 8/29/2008 2:33 AM (GMT -6)   
Thank's for replying, you're such an angel.

I have never been on suppositories for the piles - I am now taking Rutin to try and sort out the blood vessels. The clipper steroid is taken for a month and then tapered down over two weeks, it's only 5mg so not a huge loss to the body so God willing I should recover. I guess the small stools are down to IBS and stress.

The situation for me is that my mental illness (severre anxiety) is what is making things worse. Last night I had a BM and I saw streaks of old and new blood on the stools. Now the old blood could have been pooled up hemmie blood but it still freaked me out so I texted (by phone) my GI at near midnight! This morning I have had two solid BM's already - normally it would be one BM for this but my anxiety makes me go to the toilet and sit there wanting to see if I bleed! Anyway, there was minor blood early morning, and no blood on stool the 2nd time - although really minor spotting on the tissue.

The intermittent bleeding with no pain my GI says suggests piles but I just keep going round and round in circles. If it was piles then why am I undergoing so many tests and so many medication when I have no other symptoms that I care of? The reason I went to them was due to the blood. He said the more doctors look the more they find and often treat things that otherwise would go unnoticed, sometimes never flair up and sometimes fabulous when caught early. It's one of those things. He thinks I have yet to have a real flair up, and what I am seeing is IBS and Piles. He says the inflammation for me is sometimes there and sometimes totally gone and may be related to an infection, the bowel prep (I have had sigmoidoscopies without prep and there was no inflammation, but on colonscopy with a prep there has been inflammation), medication or to IBD - but with no major effect on my histology.

ie - he doesn't know what's going on, which brings me back my anxiety - these are the two of the best and most recommended GI's in London.

Diagnosis Oct 07 and then Aug 08: 2 Patches of Mild Chrohn's Colitis (unconfirmed)
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30986
   Posted 8/29/2008 10:02 AM (GMT -6)   
I would suggest you still ask the doc for some rectal suppositories if he's thinking it's hemmies. You have rectal inflammation anyway, so it'll help I would think.

Anxiety cycle of thinking is so easy to get into...I'm impressed your doctor is accepting of it. But, you do have to get to the point of what's normal for you and given the extreme stress of anxiety, it will cause some problems with autoimmune disease.

Consider the supps.

Hope you improve daily.....
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1194
   Posted 8/29/2008 12:26 PM (GMT -6)   
I will ask about the rectal meds next time I see him, it should sort out the piles and the inflammation. That's probably the best way forward. The blood is so bright and red that's most definitely close to the anal area. He keeps saying if it was inflammation it would more of than not hurt, and be mixed in with stool virtually every time.

Diagnosis Oct 07 and then Aug 08: 2 Patches of Mild Chrohn's Colitis (unconfirmed)
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate)


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 8/29/2008 1:00 PM (GMT -6)   

Also ask about medication for your anxiety.  I could not "deal" with this UC without my small doses of Xanax.

Also, the rectal medication I used first (for similar bleeding) was Proctofoam which helped a lot - has an "numbing" effect and healing. 

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 1X3
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa nightly
 
 
 
 
 
 


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1194
   Posted 8/29/2008 2:14 PM (GMT -6)   
Is it possible to get rectal meds that deal with both the colon AND the piles at the same time or do I need seperate suppositories?

Diagnosis Oct 07 and then Aug 08: 2 Patches of Mild Chrohn's Colitis (unconfirmed)
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate)

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