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Deacon Blues
Regular Member


Date Joined Oct 2006
Total Posts : 304
   Posted 8/28/2008 7:05 AM (GMT -6)   
Hi all,
    So I am in a mostly stable remission state...I am wondering how many others have this next situation with U.C. I can be feeling GREAT and then have a bowel movement, which is mostly firm/ formed, and as soon as I have that BM I feel like I was hit by a train; headache, nausea etc...Has any of us here experienced THIS? I am guessing that this is somewhat common for people who are in remission but wanted to get your input...Has anyone here looked into what might be going on in this situation?
                                                                                                        Blessings
                                                                                                              D
P.S. I already know that we all have nausea, headache-sickly feeling days and weeks, I am just wondering about this particular BM situation. Hopefully will remember this question when I see my GI Dr.
  
Diagnosed with UC in 1999
PANCOLITIS-mild to moderate
3-400mg Asacol 3x per day
44 yrs old


Lucky777
Regular Member


Date Joined Aug 2008
Total Posts : 128
   Posted 8/28/2008 8:48 AM (GMT -6)   
Yes. Basically last spring I was mid-stride in my current flare, and I started to "dry-up". I thought it was getting better, and my stools became more formed. Unfortunately I developed hemmies at the same time (and did nto know it yet). I started to pass my now formed larger stools and, let me tell you, when they started to press against my anus, I felt like I was going to die. Nausea was worse than I have ever experienced, pain at the site that radiated through my whole lower body, and a residual headache.

Not that it means anything specifically, but this thing seems to affect us all very differently, throwing in similarities where it wan'ts to confuse us.
Sean - 31

UC Since April 2006, diagnosed 2007 (Flex-Sig)
4 x Liada (2 am 2 pm)
175mg Azathioprine
2 x Imodium
Remicade consult scheduled


Deacon Blues
Regular Member


Date Joined Oct 2006
Total Posts : 304
   Posted 8/28/2008 9:15 AM (GMT -6)   
Lucky,
Would you say the pain you are referring to was from the hemmies? In my experience the BM may be somewhat difficult, in terms of moving everything out, but the ill feeling for me is AFTER the BM, bad enough where I just have to lay down and try to sleep. It sucks to be on top of the world one minute and them BAM! you're down for the count. I am counting my blessings though, when I first got this I never thought I would feel as good as I do today. Maybe we are discribing the same thing...we do have the same condition but we all 'wear' it a little differently I suppose. D
Diagnosed with UC in 1999
PANCOLITIS-mild to moderate
3-400mg Asacol 3x per day
44 yrs old


Lucky777
Regular Member


Date Joined Aug 2008
Total Posts : 128
   Posted 8/28/2008 9:21 AM (GMT -6)   
Tell me about it. This disease is a vicious cycle. It's affected by stress. It is a stress inducer. I guess this is where we should all get together and take a UC Therapy Carnival cruise for a week and not worry about anything. See how we all feel at the end. Be a real study in positive thinking!

Not sure if it was from the hemmies at the time, I just remember I had them and didn't know for a few days (honestly hadn't had them in years). But even now, even today, I had a mostly formed movement, and it was at the moment of pressure that I felt the worst - then it passed (insert sigh of relief here) when the bm was done. So no, I rarely experience that pain for a long time after. Sometimes, but it always disapates sooner rather than later.
Sean - 31

UC Since April 2006, diagnosed 2007 (Flex-Sig)
4 x Liada (2 am 2 pm)
175mg Azathioprine
2 x Imodium
Remicade consult scheduled


PeanutMom
Regular Member


Date Joined Jun 2008
Total Posts : 197
   Posted 8/28/2008 9:56 AM (GMT -6)   
When that happened to me I was told there's a lot of nerves in that area of the body. It started when I had to have a chip removed from the tip of my tail bone from a fall when I was about 23. the incision was literally in the crack about 1 inch above the anus, they said the chip was moving around causing damage and was moving towards the colon/rectum area and needed to be removed before it became a puncture risk. Afterwards I would get that same sensation you described every time I moved my bowels for the next month. . . nausea, cold sweats and I even passed out once. After the "episode" (that's what Mom called it) I felt like a huge energy leech had sucked every last ounce of energy out of my body. They told me the nerve bundle in that area is sensative and even if you don't feel the spasm in your colon, rectum or anus area it can be in spasm just hard enough to trigger those nerves off. That's probably why hemmies can trigger those nerves off too is my guess.

That's what they told me .. . don't know if it's bologna or not. I do know that there are random times where it still happens.
Kim
~ Mom of Nathaniel aka "Peanut" 19m (7/08)~ Married ~ 36
"The List "
- UC dx 8/2000 - 1st Remicade 8/20 - Align 1x day Prenatal Vitamin
- CKD Stage 3 (Chronic Kidney Disease) - Lisinopril 7.5mg - Still have 27% function!
- Anemic - Ferrlicet IV monthly
- Allergies - Zyrtec 10mg 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30611
   Posted 8/28/2008 12:05 PM (GMT -6)   
Try not to make too much out of a simple thing that many/most of us ignore. Low in the rectum inflammation acts differently than when it's higher. Remember, UC starts at the rectum and inflammation will travel upward, no matter how high YOUR UC is.

Meaning......your flare will start in the rectum, symptoms will be slight and certainly not as obvious as diarrhea, bleeding, etc (already when the inflammation is higher in the rectum and beyond). Early flare symptoms include constipation, gassssss that seems to explode in the rectum, rectal pain upon bms or afterward, nausea, stomach discomfort, headaches (for those who get them)...etc.

....so, here I go again...
start rectal meds and taper them to a maintenance.

Dicyclomine is an antispasmodic that will help with some of the discomfort symptoms....

It all may be the nature of the disease, but knowledge is power. It enables you to SEE the symptoms and act on them as early as possible.

One might have hemorroids, could be two issues or maybe hemmies can contribute to inflammation.

Dealing with early symptoms can help prevent the inflammation from getting worse....confining flares to just the rectum (hopefully).

In saying all that, not all meds work for everyone....not all patients want to use rectal meds. SEems a small price to pay, however, for long-term gain.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Deacon Blues
Regular Member


Date Joined Oct 2006
Total Posts : 304
   Posted 8/28/2008 12:32 PM (GMT -6)   
Quincy
I received RAWASA but it is slightly past expiring. I have NEVER used it but often times wished that I would...I staytoo busy and have not WANTED to give myself an enema. I have only ever taken ASACOL for my U.C. So I should go with the ROWASA when a flare starts?
D
Diagnosed with UC in 1999
PANCOLITIS-mild to moderate
3-400mg Asacol 3x per day
44 yrs old


ANTIGUA9
New Member


Date Joined Aug 2008
Total Posts : 16
   Posted 8/28/2008 2:47 PM (GMT -6)   
The pain I experience after a BM sounds different than what everyone is describing. My entire stomach will hurt - sometimes for up to an hour. It's almost like a cramping or stomach ache. I think it's just the fact that any motion was created in the large intestine and so it takes a while for the ache to go away. Just another perspective.

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 8/28/2008 4:55 PM (GMT -6)   
ANTIGUA9 said...
The pain I experience after a BM sounds different than what everyone is describing. My entire stomach will hurt - sometimes for up to an hour. It's almost like a cramping or stomach ache. I think it's just the fact that any motion was created in the large intestine and so it takes a while for the ache to go away. Just another perspective.
I get that too an antispas meds should help.
Moderate Pancolitis
Dx'd 05/2007
3 Lialda per day
Generic Rowasa daily or every other night
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


quincy
Elite Member


Date Joined May 2003
Total Posts : 30611
   Posted 8/28/2008 11:03 PM (GMT -6)   
DB...remember, it's medication that stays in the colon.

How slightly past expiration are they?

They should be used at the first symptoms of a flare...not when one waits till a flare gets worse...use them nightly till symptoms abate for a few days to a week, then start the taper. The goal isn't to go off the meds, it's to keep the inflammation to a minimum.

Small price to pay from my perspective, but I have no qualms about using the enemas. Maybe you should quetion the reason you don't want to use them......Asacol doesn't deal with the rectum.

How busy can you be when you're laying in bed waiting to go to sleep, or reading or watching tv?

Do give them a try...

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Deacon Blues
Regular Member


Date Joined Oct 2006
Total Posts : 304
   Posted 8/29/2008 1:27 PM (GMT -6)   
Thanks Quincy...good logic!
DB
Diagnosed with UC in 1999
PANCOLITIS-mild to moderate
3-400mg Asacol 3x per day
44 yrs old

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