Remicade progress and question

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PeanutMom
Regular Member


Date Joined Jun 2008
Total Posts : 197
   Posted 8/28/2008 10:41 AM (GMT -6)   
I had my first Remicade IV last wednesday and since about friday I have started to notice changes.  Urgentcy is WAY down, bloating also WAY down, frequency has decreased to 2-3 times a day and I have a little formation when I go which is a first since I was pregnant (that's the only time in the last 8 years I've had any formation at all.) 
 
These are all VERY GOOD signs in my book so I'm happy with those the one thing that's killing me is gas.  I swear I have more noise from gas moving around now than I ever did.  I try to remember gas x either before or after I eat it does calm things a little, beano has had no impact at all and I'm doing things like cooking my veggies down and avoiding pastas that would normally give me gas but nothing short of skipping meals is stopping it.  I've started only eating a snack size canned fruit at lunch so that I can get through the work day without my belly talking to the whole office. . .
 
Any ideas what else I can try to stop this gas or is this normal in the process and it's going to stop? 
 
I'm looking forward to making a 14 hour car trip this weekend with almost no colitis symptoms  . . . . but my husband isn't looking forward to 14 hours trapped in a car with a gassy wife. 
Kim
~ Mom of Nathaniel aka "Peanut" 19m (7/08)~ Married ~ 36
"The List "
- UC dx 8/2000 - 1st Remicade 8/20 - Align 1x day Prenatal Vitamin
- CKD Stage 3 (Chronic Kidney Disease) - Lisinopril 7.5mg - Still have 27% function!
- Anemic - Ferrlicet IV monthly
- Allergies - Zyrtec 10mg 


PeanutMom
Regular Member


Date Joined Jun 2008
Total Posts : 197
   Posted 8/29/2008 7:53 AM (GMT -6)   
Bumping this hoping someone has so advise about the excessive gas. I have to get in the car for a 14 hour trip in less than 24 hours.
Kim
~ Mom of Nathaniel aka "Peanut" 20m (8/08)~ Married ~ 36
"The List "
- UC dx 8/2000 - 1st Remicade 8/20 - 2nd coming 9/10- Align 1x day - Prenatal Vitamin
Colazal,6mp, pred asacol
- CKD Stage 3 (Chronic Kidney Disease) - Lisinopril 7.5mg - Still have 27% function!
- Anemic - Ferrlicet IV monthly
- Allergies - Zyrtec 10mg 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/29/2008 8:17 AM (GMT -6)   
Kim, I don't recall the gas increasing when I started on Remicade, but I've had some problems with it since having UC. What helped me the most was when I got on a good dosage of probiotic for a while. You can also take something like Gas-X or Phazyme to see if that helps.
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 8/29/2008 9:37 AM (GMT -6)   
Sorry Kim, didn't see this; I take Maalox Multi-Symptom for help with my gas and bloated tummy. Hope this helps. And they are chewable and don't taste too bad! :-)
Carol

Remicade - will have my 24th infusion on October 2
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


PeanutMom
Regular Member


Date Joined Jun 2008
Total Posts : 197
   Posted 8/29/2008 12:56 PM (GMT -6)   
Thanks for the input. Dearest just called me and said.... "Have they given you any ideas? I love you hunny but I'm not hanging my head out the window for 14 hours!"
Kim
~ Mom of Nathaniel aka "Peanut" 20m (8/08)~ Married ~ 36
"The List "
- UC dx 8/2000 - 1st Remicade 8/20 - 2nd coming 9/10- Align 1x day - Prenatal Vitamin
Colazal,6mp, pred asacol
- CKD Stage 3 (Chronic Kidney Disease) - Lisinopril 7.5mg - Still have 27% function!
- Anemic - Ferrlicet IV monthly
- Allergies - Zyrtec 10mg 

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