When I was diagnosed with UC, I was put on prednisone right away. I became steroid dependent almost instantly and was never able to be off prednisone for more than a month without flaring. So for the first two or three years, it was on for one/two months, off for one month and then back on. Four years later at age 19 I had a bone density scan which showed that I have oste
openia in my lumbar spine and femur neck. If you ask me, 19 is much to young to already be developing osteoporosis!! I've been on it several times since and it no longer really works for me, but I haven't had a follow up scan to see if there has been increased damage, which I'm sure there has. I frequently have joint pain and weakness nowadays, especially when I'm flaring.
In addition to that, I used to have perfect vision and then a year ago I had an eye exam and discovered I badly needed glasses, and my eyesight has already worsened since then.
Needless to say... I hate prednisone and will do anything to stay off it now.
Female, 23, Ulcerative colitis (pancolitis) for 8 years so far; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use....
Lexapro 10mg, Lialda 2 pills a day, Rowasa enemas nightly