Thanks for the warm welcome Judilyn and healinggirl!
I will definitely try the tylenol and heating pad - that is a great idea for pain! And I never thought of the gas-x either. last night my boyfriend bought me some imodium A-D (he get's really upset when I am sick or in pain), but I have been scared to take it. I mean, if that is all I needed, wouldn't I just take that instead of Asacol? Or is it common for UCers to take anti-diarrheal drugs? I usually just kind of grin and bear it, but I am older now, no use sitting in pain if I can help it :) And, I think attitutue is so important. This is a horrible disease to go through and it can completely beat you down. We have been delt a hand of cards. Is it a bum hand, probably. Are we learning so much about
ourselves, what we can handle, and the people around us, yes. Can we change it, no. So, I try to focus on what I can improve and go from there. Don't get me wrong though - no Pollyanna here! There are days I just want to lie in bed, and sometimes I indulge myself in a little pity party. "Poor me, poor me, pour me another" - well I don't acutally, drink, but you get the picture! Then, I say, "Pity party begone! I got things to do!" I will not let this disease beat me or take my joy.
Hey healinggirl, until I got on this forum, I didn't even know there were folks who had UC that weren't on meds...shows how much I knew! I can only speak for myself, but when I was diagnosed, it was pretty bad. TMI coming up...I remember the toilet bowl was completely filled with blood (Like many ****s, I thought I had done something wrong and was scared to tell my mom there was a problem. I waitited months. She actually started stalking me a bit and when it was my 20th time in the bathroom and it was only noon, she barged in and we both just started crying when she saw it. She told me it was okay and we went to the emergency room immdiately). Wow, went off on a tangent there. Anyhoo, I have had the best results with Asacol. I can't quite remember what it feels like to be totally "normal," but when I take my pills as prescribed, I have no blood, no mucous, no cramps, solid formed stools, and for me "normal" is going 2-4 times per day (pretty much on schedule, so I rarely get caught unawares). In a nutshell, it allows me to live my life. I go camping, play sports, all that. It is just when I flare that...ugh, life gets a little complicated :) As for the rowasa enemas, they go straight to the source, so they were also extremely affective. I only used them now when I get a bad flare up and my doctor wants to get it under control quickly. They take some getting used to though. Initially I could only hold them for about
20 minutes. With time, I could hold them all night and didn't even think about
it. it was, bam, insert enema, fall asleep immediately :)
I do worry though if/when my body will not tolerate the Asacol anymore, what will I (and others like me do)? Hopefully by then, they will have a cure for us all! Thanks!
- Diagnosed in 1994 at the age of 14
- Initally prescribed prednisone and Rowasa enemas - near immediate improvement (Yay!)
- Within 1 - 2 months later, prescribed only Sulfasalazine - Yikes! Severy allergic reaction! 1 week in hosptial with 4 blood transfusions. Then prescribed Asacol - Phew!
- Mid 2008, tried Lialda - NO!!! Caused flare, pills to big to swallow!
- Back to Asacol - 400 mg tablets, 3 pills, 3 times per day, and a daily multivitamin