Which is a worse sign, blood or mucous?

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emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 8/29/2008 7:58 PM (GMT -6)   
I've been assuming all along that blood is a more serious sign of a flare than mucous, but now all of a sudden out of the blue I've got mucous and this strange gut rumbling (which actually feels like it's happening just in the very lower colon). Is mucous really the thing to watch out for?
40 years old and female
Dx ulcerative proctitis June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories nightly
Effexor 37.5, Clonazepam .5 mg and Trazodone 50 mg for sleep
2.5 mg methimazole for thyroid
Osteopenia (and I haven't even taken steroids!)


BeijingBelle
Regular Member


Date Joined Aug 2008
Total Posts : 20
   Posted 8/29/2008 8:40 PM (GMT -6)   
I also want to know the answer to this - I have only seen the faintest tinge of blood in the year that I have had UC symptoms, but mucous is copious, even when all other symptoms are practically non-existent.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/29/2008 9:35 PM (GMT -6)   
Blood would be considered "worse", everyone has some mucus in/on their stool, having IBD means that bleeding and excessive mucus is to be expected, it's afterall the nature of the beast...always report any changes to your GI.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


AussieGirl
Regular Member


Date Joined Feb 2005
Total Posts : 92
   Posted 8/29/2008 10:29 PM (GMT -6)   
Before I was diagnosed I used to have copious amounts of mucous. Now rarely get it. Blood is far more serious, especially if it's that really dark colour and weird smell (once you've smelt it you never forget).

burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 8/29/2008 11:05 PM (GMT -6)   
Excuse me for hijacking this thread. But I want to know which is a worse sign, blood, mucous or abdominal pain?
I have been flaring since last October. Now I don't have any more Ds but I still see thick blood and mucous everyday. My rectum is not healed yet. 2 days ago I started having faint discomforts on my right side as well as my left side. If it's just the left side I'm less concerned. But how come there is some discomfort on my right side? Does anyone have any idea?
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare till the present.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema/suppository, Salofalk tablets 500mg x 3/day, Azathioprine 75 mg. Warfarin for my Deep Vein Thrombosis which resulted from diarrheas and dehydration in Feb 2008.
Supplements: Probiotics, Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsule (Metamucil)


AussieGirl
Regular Member


Date Joined Feb 2005
Total Posts : 92
   Posted 8/29/2008 11:28 PM (GMT -6)   
Hi Burnaby girl
Get yourself to a Dr or to A&E. Blood is never a good sign, especially if it's every day AND being on warfarin GO TO THE HOSPITAL.
 
Flareups make everyone predisposed to getting DVTs (I got 3 in left calf, 1 in left thigh, and 1 PE in right lung in November). 1 DVT remaining in left leg as of May 2008. Due to the flareups prior, my meds were changed from Salofalk to Colazide 9 x 750mg daily and prednisone. I weaned off the pred and had to wean off the colazide to the maintenance dose of 4 x 750mg a day which did in Jan 2008.
 
Unfortunately the 4 a day wasn't strong enough so started flaring again and passed blood after 2 weeks. The Dr at the A&E gave me pred to slow the flare which did help but gave me rip roaring pains straight across the gut and increased my INR to 4.8.
 
Then I started bleeding a week later. After 9 bleeds in a day, and it getting thicker and spraying/clotting and that awful smell, went to the A&E. WHen you tell them you're bleeding and on warfarin, they take you in under 15 mins. My bleeding went for 36 hours and I lost consciousness at one point and then confined to bed for 5 days. THey only stopped the bleeding after 7 litres of blood and 1 litre of plasma (body only holds about 3.75 litres) and were ready to put me into the high danger unit and prep up a team of surgeons.
 
When they were able to do a colonoscopy, I was only having what they term a mild flare!!! So, if you're on warfarin and bleeding, please go to A&E. Better to be safe than sorry. 
Officially diagnosed Jan 2005 with UC & anthropathy arthritis, RV Fistula April 2005
Misdiagnosed for over 20 years re the above!
 
4 DVTs and 1 PE (blood clots) Nov 2007 (caused by flare ups) 
Oesteopenia in right hip and spine (caused by pred)
 
Present meds: 6 x 750mg Colazide, 50mg 6MP, off warfarin but on stage 3 clinical drug trial Rivaroxaban
Take 1000IU Vit D, calcium, magnesium, vit C, vit B, Evening Primrose Oil 
 


healinggirl
New Member


Date Joined Sep 2007
Total Posts : 9
   Posted 8/29/2008 11:41 PM (GMT -6)   
I don't know what flaring even means - I have had Chronic Pan Ulcerative Colitis continually since the day I was diagnosed in February 2002. I have to go all day and all night, no relief. I have periods in the middle of the day when I *might* have a span of maybe 3-4 hours when I don't go, but then it starts back. Usually I am up at least once a night in the middle of the night to go, and sometimes it's so urgent that I have an accident on the floor in the bathroom before I can get to the toilet - midnight shower time. That's not fun at all. Sometimes it's been so bad I go a dozen times during the night. But not lately. For maybe the past year it's been once a night, so I have been grateful for that little respite. But during the day it's always bad- particularly in the evening between the hours of 5 pm and 11 pm or so. It's constantly go go go go go go go and go some more. Once I tallied it up and I went a total of 30 times in one day. I'd say about 20 is most likely my average. Is that what everyone else experiences, or am I really severe? I need to do something - have a test. I know I need a colonoscopy, but I have no insurance. I want to get Medi-Cal (or regular insurance $$ but it's too expensive! :( first in case they find something wrong. Does anyone know if a virtual colonoscopy would be good in the mean time??? Thanks so much. God bless everyone! :)
Taylor

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/30/2008 12:10 AM (GMT -6)   
Ab pain is also the nature of the beast.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 8/30/2008 12:24 AM (GMT -6)   
Thank you AussieGirl.
I have told my GI doctor about the bleeding 3 weeks ago and she didn't seem to be concerned. She agreed it's because of the Warfarin I take, though. And she asked me to use Salofalk suppository instead of enema, which I did. But the bleeding went on.

I started to see blood 2 weeks after I was completely off Prednisone in late May. It's interesting to note that on my worst days, when I was having 10+ Ds daily and was finally sent to ER (that's A&E in Aussie), there was no blood. And I have been taking Warfarin since mid February.
Anyway, I had an ultra-sound on my left leg 3 weeks ago. The DVT is still there, though very much resolved. I will still need the Warfarin for some time. I guess I will still see blood until I'm off Warfarin.
I use suppository and enema religiously. I have talked to my GI doctor over the phone again last week regarding the bleeding. She asked if I'd got worse. I said no. Then she said, "That's good. Let's wait and see."
And now I have the faint discomfort on my sides. Oh dear.

Taylor,
Your symptoms sounds serious. I wish you can get the proper medication you need and get better soon. In the meantime, please remember to keep hydrated. I got DVT because of dehydration.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare till the present.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema/suppository, Salofalk tablets 500mg x 3/day, Azathioprine 75 mg. Warfarin for my Deep Vein Thrombosis which resulted from diarrheas and dehydration in Feb 2008.
Supplements: Probiotics, Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsule (Metamucil)


AussieGirl
Regular Member


Date Joined Feb 2005
Total Posts : 92
   Posted 8/30/2008 1:01 AM (GMT -6)   
Hi Taylor and Burnabygirl
A flare up is going heaps of times to the toilet. Oh lucky us. THe only *Good* thing about having this thing is that people comment on how lovely my skin looks, so clear............ Well, their skin would be clear too if everything they ate went through them. ;)

Prior to being correctly diagnosed, I went to an Iridiologist who said that I had 'silken eyes'. Was wondering if that was a pick up line but it meant that I never get colds or flus or if do, they're over and done with in about 2 days. THis is extremely true. It's because our immune system is too fast and that's why it's gone into overdrive and attacks the bowel as it no longer recognises it as 'self'. He also said that I had a leaky gut and that I don't digest my food properly. That would explain why AFTER I eat that my stomach at times makes very loud gurgling noises.

Burnabygirl, I would get my blood count checked if I was you. When I bleed it's full on and in Feb, they don't know how much blood I had lost prior to the blood transfusion as they couldn't get any out of my veins (they were even checking my toes). That particular weekend, 5pm Sat they took blood and it was 128, 7am, it was 61 and I didn't get transfusion started until 10am and the nurses had had to change the bedsheets twice.

A 17 year old girl in the hospital bed next to me had been going 20 times a day and bleeding each time for a couple of months. THe GIs told her that it wasn't necessarily how many times you go to the toilet but the amount of blood that is coming out. I would suggest you ask for a colonoscopy to be done.

Also, did they give you a list of foods, herbs and liquids to be careful of whilst on warfarin?? You have to keep your VIt K count between 250 and 500 micrograms a day as too much can thin your blood even more and affect your INR levels.

I know medical care is expensive in the USA. Thank God here in Australia we have Medicare and the PBS (Pharmacuetical Benefits Scheme) where the Government provides free hospital care and subsidised prescriptions. I have a team of different specialists and my visits to the hospital is covered under Medicare. Drug wise, I only pay like $30 for a script to be filled rather than the full price which can be over $200. I can only sympathise with you re medical costs. Being sick is bad enough but medical expenses on top..... my vitamin bill is expensive enough.
Take care
B
Officially diagnosed Jan 2005 with UC & anthropathy arthritis, RV Fistula April 2005
Misdiagnosed for over 20 years re the above!
 
4 DVTs and 1 PE (blood clots) Nov 2007 (caused by flare ups) 
Oesteopenia in right hip and spine (caused by pred)
 
Present meds: 6 x 750mg Colazide, 50mg 6MP, off warfarin but on stage 3 clinical drug trial Rivaroxaban
Take 1000IU Vit D, calcium, magnesium, vit C, vit B, Evening Primrose Oil 
 


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 8/30/2008 1:32 AM (GMT -6)   
In England everything is FREE although some of us (myself included) have private medical insurance which is like a gold standard of health care where I am like a customer not a patient so treated very well. e.g. I can text and email my GI at any time and he calls me back right away.

Presicriptions cost £7 - so 3 months supply of Pred or Asacol would cost the standard £7. Hospital treatment, A+E, operations, doctors and specialists are all free. The National Health Service has it's critics but it is a magnificent example if British compassion.

Diagnosis Oct 07 and then Aug 08: 2 Patches of Mild Chrohn's Colitis (unconfirmed)
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate)


AussieGirl
Regular Member


Date Joined Feb 2005
Total Posts : 92
   Posted 8/30/2008 1:59 AM (GMT -6)   
I've experienced NHS when in England many many moons ago and found it to be good (although misdiagnosed!!). The same with the service here. I know Australia is having a medical crisis re the number of hospital beds and people waiting for elective surgery but I have no complaints what so ever. I've probably gone to practically every public hospital here in Sth East Queensland (mostly unwillingly) and cannot fault the care shown.

If you earn over a certain amount per annum and don't have private health cover, you get hit at tax time but as one friend pointed out, it's cheaper for her to pay it than to take out private cover. The private health companies here just look at the bottom line and their profits and if you take cover out after the age of 30, you get an excess charge on top each year, on top of the increasing charges.

7 pounds (sorry don't have the symbol on the keyboard) works out to be over $20 AUD. THe $30 is standard, whether the Dr writes out a month supply or 4 months supply. Great when they give you a script for 4 months supply and 3 repeats!!! Not trying to start a debate here but it's a pity USA doesn't follow suit. It would be awful to not go to hospital when desparately need to because you can't afford it.
Officially diagnosed Jan 2005 with UC & anthropathy arthritis, RV Fistula April 2005
Misdiagnosed for over 20 years re the above!
 
4 DVTs and 1 PE (blood clots) Nov 2007 (caused by flare ups) 
Oesteopenia in right hip and spine (caused by pred)
 
Present meds: 6 x 750mg Colazide, 50mg 6MP, off warfarin but on stage 3 clinical drug trial Rivaroxaban
Take 1000IU Vit D, calcium, magnesium, vit C, vit B, Evening Primrose Oil 
 


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 8/30/2008 3:19 AM (GMT -6)   
Yeah, the world's richest country not having Universal Healthcare is a disgrace in my opinion.

Diagnosis Oct 07 and then Aug 08: 2 Patches of Mild Chrohn's Colitis (unconfirmed)
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate)


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/30/2008 6:03 AM (GMT -6)   
I can't agree more LondonRed! I have great insurance but there are so MANY here that can't afford prescriptions or even to take their children to doctors for much needed vaccinations. We do have many agencies though that take care of the underpriveledged but it's a shame that our country doesn't do more ya know?

As for the original question, by far bleeding is much more serious then mucous. Like Pb said, our colons produce mucous naturally anyway and it can wax and wane even in a healthy person just by the foods that we eat. But bleeding can be much more serious because it can lower the blood count causing anemia. Anemia if left untreated can lead to a whole new slew of health problems.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
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Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4236
   Posted 8/30/2008 8:46 AM (GMT -6)   
Aussiegirl - Having IBD has nothing to do with how clear your skin is (at least not for me, unfortunately). I have really annoying acne all the time (and I'm 24 years old). I also have not heard that it has anything to do with how many colds/flus we catch. My colds definitely do NOT go away after just 2 days...they linger forever...sometimes for months, but they always seem to last for at least a week. The immune system is really complex...I don't understand all of it, but even if UC is caused by an overactive immune system, that doesn't mean every part of our immune systems are in overdrive. Just wanted to clear that up. That's great it works that way for you though...I'm jealous. =)

I think blood is worse than mucous.


Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa weekly; Canasa weekly; Viactiv; Metamucil wafers; multivitamin

Post Edited (Sara14) : 8/30/2008 9:22:06 AM (GMT-6)


AussieGirl
Regular Member


Date Joined Feb 2005
Total Posts : 92
   Posted 8/30/2008 9:17 PM (GMT -6)   
Hi Sara
I agree, everyone is different. I was told by the GI that my immune system no longer was seeing my bowels as self as somewhere along the line my sleeping T cells were woken. I find that being on the immunosuppressants, I have to be careful not to catch a cold, whereas before being officially diagnosed and not on any meds, I never got sick.

I was in Hong Kong in 2006 for 6 days and the pollution that comes over from Northern China is absolutely disgusting. You can't see the other side of the road for the 'fog' at times. Anyway, I had a metallic taste in my mouth on day 2 and by the 3rd day was starting to get really sick and feverish (you have to be careful re your temp as they have infrared at the hotels and airport and will take you off to the hospital if the infrared picks up your body temp is over a certain limit as they are very paranoid since SARS). Anyway, I purposely stopped my meds for my body to start fighting the illness rather than me and within 24 hours I just had a cough left. WHen got back home I started up the meds as whatever the pollution was doing to me, was completely gone.

Cheers
Officially diagnosed Jan 2005 with UC & anthropathy arthritis, RV Fistula April 2005
Misdiagnosed for over 20 years re the above!
 
4 DVTs and 1 PE (blood clots) Nov 2007 (caused by flare ups) 
Oesteopenia in right hip and spine (caused by pred)
 
Present meds: 6 x 750mg Colazide, 50mg 6MP, off warfarin but on stage 3 clinical drug trial Rivaroxaban
Take 1000IU Vit D, calcium, magnesium, vit C, vit B, Evening Primrose Oil 
 


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 8/30/2008 10:07 PM (GMT -6)   
AussieGirl,
Thank you for your advice. I have had a colonoscopy in April which confirmed that I have moderate to severe pancolitis. Since I'm on Warfarin I have blood work done every 2 weeks. I was found mildly anaemic. But my doctor said I don't need iron pill yet.
I should be thankful that I live in British Columbia, Canada where healthcare is provided by the govt for a small premium every year. I have to pay for my prescription, though.

It's interesting to find that I was very much like you. I seldom fell sick before I got UC. I had worked with a company for 7 years without taking one single day of sick leave. But now I am sick of having been sick for 11 months. shakehead

p.s. I was in HK in 2006 from late Nov to early Dec too. Ha ha.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare till the present.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema/suppository, Salofalk tablets 500mg x 3/day, Azathioprine 75 mg. Warfarin for my Deep Vein Thrombosis which resulted from diarrheas and dehydration in Feb 2008.
Supplements: Probiotics, Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsule (Metamucil)


AussieGirl
Regular Member


Date Joined Feb 2005
Total Posts : 92
   Posted 8/30/2008 10:21 PM (GMT -6)   
Hey burnabygirl!
I have to have more blood tests in November specifically for the GI (I think I should get a permanent tap in my veins from all the testing I keep having done) and they are testing my iron storage count as since the blood transfusions, my circulating iron count has been between anaemic and borderline. FIngers crossed my storage count is good as the GI said she will do an iron transfusion if it's not and I've been told that takes a full working day to have done. blah...

I've been to BC, loved it but not that keen on the cold. Where I'm now living is cold enough for me in winter but warmer than your side of the world :)
Officially diagnosed Jan 2005 with UC & anthropathy arthritis, RV Fistula April 2005
Misdiagnosed for over 20 years re the above!
 
4 DVTs and 1 PE (blood clots) Nov 2007 (caused by flare ups) 
Oesteopenia in right hip and spine (caused by pred)
 
Present meds: 6 x 750mg Colazide, 50mg 6MP, off warfarin but on stage 3 clinical drug trial Rivaroxaban
Take 1000IU Vit D, calcium, magnesium, vit C, vit B, Evening Primrose Oil 
 

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