Hi Taylor and Burnabygirl
A flare up is going heaps of times to the toilet. Oh lucky us. THe only *Good* thing about
having this thing is that people comment on how lovely my skin looks, so clear............ Well, their skin would be clear too if everything they ate went through them. ;)
Prior to being correctly diagnosed, I went to an Iridiologist who said that I had 'silken eyes'. Was wondering if that was a pick up line but it meant that I never get colds or flus or if do, they're over and done with in about
2 days. THis is extremely true. It's because our immune system is too fast and that's why it's gone into overdrive and attacks the bowel as it no longer recognises it as 'self'. He also said that I had a leaky gut and that I don't digest my food properly. That would explain why AFTER I eat that my stomach at times makes very loud gurgling noises.
Burnabygirl, I would get my blood count checked if I was you. When I bleed it's full on and in Feb, they don't know how much blood I had lost prior to the blood transfusion as they couldn't get any out of my veins (they were even checking my toes). That particular weekend, 5pm Sat they took blood and it was 128, 7am, it was 61 and I didn't get transfusion started until 10am and the nurses had had to change the bedsheets twice.
A 17 year old girl in the hospital bed next to me had been going 20 times a day and bleeding each time for a couple of months. THe GIs told her that it wasn't necessarily how many times you go to the toilet but the amount of blood that is coming out. I would suggest you ask for a colonoscopy to be done.
Also, did they give you a list of foods, herbs and liquids to be careful of whilst on warfarin?? You have to keep your VIt K count between 250 and 500 micrograms a day as too much can thin your blood even more and affect your INR levels.
I know medical care is expensive in the USA. Thank God here in Australia we have Medicare and the PBS (Pharmacuetical Benefits Scheme) where the Government provides free hospital care and subsidised prescript
ions. I have a team of different specialists and my visits to the hospital is covered under Medicare. Drug wise, I only pay like $30 for a script
to be filled rather than the full price which can be over $200. I can only sympathise with you re medical costs. Being sick is bad enough but medical expenses on top..... my vitamin bill is expensive enough.
Officially diagnosed Jan 2005 with UC & anthropathy arthritis, RV Fistula April 2005
Misdiagnosed for over 20 years re the above!
4 DVTs and 1 PE (blood clots) Nov 2007 (caused by flare ups)
Oesteopenia in right hip and spine (caused by pred)
Present meds: 6 x 750mg Colazide, 50mg 6MP, off warfarin but on stage 3 clinical drug trial Rivaroxaban
Take 1000IU Vit D, calcium, magnesium, vit C, vit B, Evening Primrose Oil