Help to control D

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IndianaUC
Regular Member


Date Joined Feb 2007
Total Posts : 212
   Posted 8/30/2008 8:22 AM (GMT -6)   
I have been flaring for a couple of months now. I'm slowly getting a bit better, but I just cannot get the D under control. It doesn't matter what I eat or what I do. I will have D every time I go. I have an 8 hour time period from when I eat to when I have to go to the bathroom. So when I have breakfast at 8am I know at 5pm I will have to go to the bathroom. It will be D every time. I don't take fiber on a regular basis. The fiber I do take is Citrucel which I just mix into water and drink. It reminds me of that powdered drink Tang.

Any suggestions?
- DXed with "left sided" UC in 1998. DXed with "proctitis" Oct. 2007
- Sulfasalazine 3 500mg tabs twice daily
- 500mg Vitamin C, 1 Multivitamin, L-Glutamine
- Max Acidophillis EC Capsules 350Mg(7 types of bacteria with over 42 billion viable cells) with 50 Mg colostrum & 50 Mg FOS(fructo-oligosaccharides)
- Experimenting with this or that on occasion. Always open to new ideas.
- Colonoscopies - 2 (Due for my next one ASAP)
- Strangely I find that eating a turkey and ham sub from Subway with lots of vegis will help me come out of a flare. Why I don't know. I stay away from fats or my D will just get worse.


Lucky777
Regular Member


Date Joined Aug 2008
Total Posts : 128
   Posted 8/30/2008 9:09 AM (GMT -6)   
I am starting to think that "under control" is not a relative term. I think I have my daily routine 'under control", by managing what I eat and when, but I am far from excited about my days. I do however (at my doctors direction) take two Imodium every morning when I wake up with the rest of my arsenal of pills. That seems to give me some help for the afternoons and my evenings (on really really good days) are maybe just a little gas passing on the toilet or just rumblings. I do not take the imodium on the weekends unless I know I am going anywhere - my theory is that if my body decided to stop-up at any time during the Imodium timeframe, that the weekends would be a good time for my guts to relax a bit more naturally. Having said that, my weekends are ussually worse than my week days, and I sacrifice them.

And, for the citrucel - here's a tip. Ditch the water and mix it with OJ or Sunny-D or Hawaiian Punch. Quite tasty. I was not a fan of citrucel and water, unless you cut way back on the water.
Sean - 31

UC Since April 2006, diagnosed 2007 (Flex-Sig)
4 x Liada (2 am 2 pm)
175mg Azathioprine
2 x Imodium
Remicade consult scheduled


potato
Regular Member


Date Joined Jun 2008
Total Posts : 281
   Posted 8/30/2008 11:07 AM (GMT -6)   
I'm having the same problem.  I've improved a little when I switched to metamucil wafers, though.  I started with citracel, which I think has aspartame, which I think can be hard on us, then to benefiber wafers, and they were definitely no improvement.
 
The metamucil wafers are tasty enough, but they do have more calories.   
Potato...  Female, 58, dx mild left sided ulcerative colitis 11/07
asacol 3 3x a day 
cortenema (generic) am & pm Rowasa every other day 
culturelle, benefiber wafers  generic acidophilus, metamucil wafers
children's vitamin, Vitamin E 400 mg
omeprazole 2x a day
oxazepam when needed, lomotil or ImodiumAD (but not in the same day)
 
 
 
 
 
 


IndianaUC
Regular Member


Date Joined Feb 2007
Total Posts : 212
   Posted 8/31/2008 7:48 AM (GMT -6)   
I was wondering about Immodium. How often I should take it. I took two last Sunday and the next two days I felt miserable. I did good after that they BAM! I felt sick again. I've been eating really good. I've stayed away from all the fats as not to aggravate my guts any further. I took 2 this morning so I could go out and do some much needed shopping. I have lost a lot of weigh due to the D. Frankly I needed a little weight loss, but this concerns me.

I actually don't mind the taste of the Citrucell. It seems that if I use a whole scoop in a large glass of water things seem to firm up. I had been thinking of doubling that and see if things get better or if I should just do the 1 scoop 3 times per day. I'll give that a try and see what happens. Maybe I need to train my guts how to behave all over again. Maybe they forgot. wink
- DXed with "left sided" UC in 1998. DXed with "proctitis" Oct. 2007
- Sulfasalazine 3 500mg tabs twice daily
- 500mg Vitamin C, 1 Multivitamin, L-Glutamine
- Max Acidophillis EC Capsules 350Mg(7 types of bacteria with over 42 billion viable cells) with 50 Mg colostrum & 50 Mg FOS(fructo-oligosaccharides)
- Experimenting with this or that on occasion. Always open to new ideas.
- Colonoscopies - 2 (Due for my next one ASAP)
- Strangely I find that eating a turkey and ham sub from Subway with lots of vegis will help me come out of a flare. Why I don't know. I stay away from fats or my D will just get worse.


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 9/1/2008 10:01 PM (GMT -6)   
I've used immodium sparingly because after a day or two on it, I have a day or two of catch-up that is worse than the original problem. Luckily for me I have a goofy work schedule (includes 12 hour shifts and rotating shift work every month). I end up having a couple days off every couple of days. One thing that I've been doing lately on work days to help control the D naturally is that I don't eat anything for at least 4 to 6 hours after I get up. I'll drink some veggie/fruit juice and gatorade, but no food. Then I'll eat a couple of decent meals at work (bowl of cereal and usually pasta, maybe a snack as well), and then a little something before bed. I don't have to go to the bathroom as much if I don't have solid food in me, so I can keep my time in the restroom down to about 4 BMs a shift. Plus a couple or 4 at home. Not an ideal situation, but it is helping me to function right now.
Brandon
 
Diagnosed w/ moderate UC in May '06, had symptoms for years prior to dx - currently flaring
Taking Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, and fexofenadine for allergies


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 9/2/2008 12:28 AM (GMT -6)   
I would only use immodium as an emergency tool, (if you really needed to do something or go somewhere).I'VE ONLY EVER TAKEN ONE A DAY during a flare because i find by the end of the day the cramps become very acute and that i will usuallt=y have increased symptoms for a day or two after.
Marty
                                     keep the faith 

         asacol/proctifoam/
Zoton (lansoprazole)/pred/colofac


       
                   http://www.myspace.com/martylogue


schrek-chewbacca hunk
Veteran Member


Date Joined Jun 2005
Total Posts : 2666
   Posted 9/2/2008 6:54 AM (GMT -6)   

Sadly, I think Marty is right.  Everybody is different however...and if it works, and your doc is OK with it...then stay the course.

Hope you and everyone feels better.

bob 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 9/2/2008 8:44 AM (GMT -6)   
Try eating a bowl of plain boiled rice daily. Farina (cream of wheat) & cream of rice (hot) cereals can also help with D. I never saw improvement with pysillium, but reduction in inflammation by Rx meds enabled me to get onto a pretty "normal" diet, which eventually controlled the D. I wouldn't recommend taking Immodium or any other otc med on a regular basis. Some gastros would write you a script for Lomotil and/or anti-spasmodics to help control D if they think you need more than anti-inflammatory meds. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 9/2/2008 8:52 AM (GMT -6)   
On my GI's instruction, I took Imodium once or twice a day when I was working out of my flare. Be sure to check with your doctor, though. I have proctosigmoiditis, so the Imodium is a bit less likely to cause problems. In some people it can help lead to toxic megacolon and emergency surgery if misused.
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

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