A flare or not???

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Regular Member

Date Joined Dec 2007
Total Posts : 151
   Posted 8/30/2008 10:47 AM (GMT -6)   
I have really odd symptoms,  its symptoms that I get when I"m flaring,  but none of the GI part of it....its odd.   I have been tapered off the prednisone for a few weeks now,  and initially I attributed it to that,  but I haven't bounced back yet.   I have joint aches,  severe fatigue,  and canker sores in my mouth,  but no diarrhea,  blood ,  mucous,  or urgency, or pain.  Its odd...i talked to my doctor on thursday, and he ordered some bloodwork,  a CBC,  thyroid and vit b12 level.  My CBC was a bit low on RBC's but not any worse than in the past,  and my HGB and HCT were ok,  the rest was all ok...so I don't understand...its weird..I'm just so tired of being so tired and achy!!  
41 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).   Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05. (Complete remission from Nov. 07 to July 08 d/t Remicade) But,  a flare July 08,  currently controlled with prednisone and last remicade on July 31st...Hope it stays that way!!!
Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07, 2/14/08, 4/10/08, 6/08, 7/31/08.  6-MP 100mg daily, Pentasa 500mg twice a day, Lantus insulin 15 units daily, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily,  and pro-biotics daily. (currently on pred taper...down to 5mg twice a day)

Regular Member

Date Joined Jun 2008
Total Posts : 57
   Posted 8/30/2008 7:12 PM (GMT -6)   
I'm finding that it takes me a while to "bounce back" after a flare. I know what you mean - the BMs are pretty normal, no blood, mucous, etc., just all those lingering side effects. The fatigue is the most annoying. But, I also find that when I start to feel better, I feel really great for a while. Then, another flare. :( Oh, the ups and downs of this disease! Hope you're feeling well soon.
*Diagnosed pancolitis 10/07 (6 months pregnant w/ 2nd baby)
*Currently in remission
*Tapering prednisone - at 20 mg
*Lialda (3 x a day)
*Calcium, multivitamin, Metamucil, iron, fish oil, probiotics

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