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Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 9/1/2008 10:28 PM (GMT -6)   
My son seems to be anemic. He has Crohns. The doctor told him to try to take an iron pill but did say he may have to adjust his dosage depending on how it affects him in the bathroom. I hate to see him get worse in that department. Our whole family just started taking multivitamins (Flinstone complete). It says it has 100% recommended daily allowance for iron. Would this be enough?
--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 9/1/2008 11:25 PM (GMT -6)   
I am also mildly anemic because of my rectal bleeding. But my doctors said I don't need iron pills yet. I went to see a Chinese herbalist doctor yesterday with the intention of getting some natural supplements. To my surprise, he just asked me to eat more beef. He said beef is the best source of iron. And he didn't sell me anything. confused
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare till the present.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema/suppository, Salofalk tablets 500mg x 3/day, Azathioprine 75 mg. Warfarin for my Deep Vein Thrombosis which resulted from diarrheas and dehydration in Feb 2008.
Supplements: Probiotics, Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsule (Metamucil)


Yujin
Regular Member


Date Joined Feb 2008
Total Posts : 55
   Posted 9/2/2008 2:13 AM (GMT -6)   
thats correct Red meat is good source of Iron.. and also you can try to eat LIVER...
Diagnosed with UC on 2007. Undergone Fistulotomy on 2005. Taking Generic Asacol 400mg 3X a day... "HEALTH IS WEALTH"


men8ifr
Regular Member


Date Joined Jul 2008
Total Posts : 124
   Posted 9/2/2008 2:49 AM (GMT -6)   
I would guess iron is not being absorbed properly so 100% suppliment would not be enough also however have a look at this http://www.newtreatments.org/dmso.php which would indicate increasing iron consumption will make inflammation worse, would this tie in with what your doctor is indicating? If so is there any way to get iron by injection directly into the blood? Also consider chelated iron I can't say if it's better/worse but it's a different type of iron and may be better.
Ian

6 Asacol tabs/day
1 Pentasa Suppository / day
Fish oil 3/day (omega 3 only)
Multivitamin and mineral 1/day
Folic Acid 1/day
Aloe Vera 3/day
Specific Carbohydrate Diet SCD
Turmeric 3/day
Currently in no mans land between flare and remission


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5190
   Posted 9/2/2008 9:53 AM (GMT -6)   
My gastro, who subspecializes in IBD treatment, says that iron can "clump" in the intestines. It's a good idea to consult your son's gastro about the best type of supplement for him to take. You could also look into Forvia, the vit/mineral supplement that is especially designed for IBD patients' known deficiencies. Several members writing here report good results from taking it over time. I myself do better with the Centrum vitamins than other commercial brands. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 9/2/2008 4:21 PM (GMT -6)   
Ask about Slo FE, a time release formula so less harsh. I understand Target offer a less expensive store brand. I think you need more than 100 percent to rebuild stores, but I'm not certain.
49 year old female, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering off presnisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, etc. diet which resolved flare. Also Replete probiotic, DGL (licorice root, slippery elm), Permeability Factors. Slow-release iron and B-12 shots for severe anemia.
 


Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 9/2/2008 10:45 PM (GMT -6)   
When I was severely anemic I was taking three 365 mg iron tablets a day. I got better within two months. However, I still have to take one of those a day... I'm still anemic, but not as bad.
21 years old

Diagnosed with moderate/severe UC June 2007, I've had it since December 2006.

Taking Lialda 3x a day<---NOT ANYMORE. I got pancreatitis from them. I stopped taking Lialda 8-19-08. Ugh!! All I take now is just my 3 Entocort in the morning, and 1 iron pill in the afternoon. Makes me nervous.


kelleygirl
New Member


Date Joined Sep 2008
Total Posts : 5
   Posted 9/3/2008 1:09 AM (GMT -6)   
I've been having a flare, and a couple weeks ago I started taking Florodix, a liquid iron supplement.  I am doing significantly worse--don't know if it's a coincidence.  I had read that iron often exacerbates colitis, but I thought the liquid was easier on your system.
 
I'm only on Asacol and probiotics (VSL 3).  I had been in remission for 4 years and I'm HOPING to ride it out.. The thought of going on prednisone again just kills me.
 
Any thought about the iron?

men8ifr
Regular Member


Date Joined Jul 2008
Total Posts : 124
   Posted 9/3/2008 3:11 AM (GMT -6)   
I found this info on Iron chelators - I believe you can buy iron in this form as a supplement I would try these first.

. increased synthesis of the human iron-binding proteins (iron chelators) lactoferrin and transferrin which trap iron for use by human cells while making it unavailable to most microbes;

I think adverse reactions to iron may be because bacteria use it as a catalyst and produce gas (think bloating, pain) and OH radicals (cause ulcers)

an extract from a pubmed article

During inflammation, the superoxide anion (O-2) and hydrogen peroxide (H2O2) are produced by stimulated polymorphonuclear leukocytes and macrophages. The toxic effects of these reactive oxygen intermediates increase when traces of iron are present, because iron catalyzes the formation of the hydroxyl radical (OH.).

And a theory on UC which seems (in my opinion) to have some good supporting evidence

This is summary of what he discovered :

In healthy people, the iron that's in your food, is transported from your intestines into your blood. Iron is needed for creating hemoglobin (red blood cells). The picture below illustrates this :

Because of some unknown reason the transport mechanism, that should transfer iron into your blood, is defect in persons with Crohn's Disease.
Update (Feb 1,2001): The body's natural responce to an inflammation/infection is decreasing the iron transport from the intestines into the blood. This is done because bacteria need iron for growth. However when the inflammation is INSIDE the intestines, this defence mechanism works contra productive.
This causes the following situation :
Iron is a catalyzer in The Haber-Weiss reaction : h2o2 + Fe(iron) +2 --> Fe(iron) +3 + OH + HO (hydroxyl free radicals)

Simply said : A big amount of iron in your intestines creates a very big amount of hydroxyl free radicals !
Free Radicals can do substantial damage to your intestine cells.
As a result, your defence system initiates an attack on itself : The intestine cells. An inflammation is the result !
Even worse, the bone marrow, which is responsible for creating hemoglobin, doesn't receive any iron anymore.
Without the iron, it can't create red blood cells and thus the person gets anemia as a bonus !
The bone marrow sends a message to the intestines : "Please dissolve more iron and transport it to me !"
The intestines starts creating large amounts of soluble iron. It can't be transported to the bone marrow however.
Result : This is a vicious cycle, you won't be able te break !

Update (Feb 1,2001): The iron in the intestines causes a second problem. Because of the excess of iron in the intestines, the bacteria in the mucus of the intestines will thrive. It will completely destroy the natural balance of bacteria in the intestines. The bacteria start producing acids and the intestines cells have no protection for that. So, the amount of digestive enzymes also decreases rapidly.

I am trying a low iron diet at the moment (started yesterday) and will let you know how I get on...
Ian

6 Asacol tabs/day
1 Pentasa Suppository / day
Fish oil 3/day (omega 3 only)
Multivitamin and mineral 1/day
Folic Acid 1/day
Aloe Vera 3/day
Specific Carbohydrate Diet SCD
Turmeric 3/day
Currently in no mans land between flare and remission


kelleygirl
New Member


Date Joined Sep 2008
Total Posts : 5
   Posted 9/3/2008 5:21 AM (GMT -6)   
Thank you for that.  I'll have to look into those.  I'm bummed about the Florodix.  I thought it was perfect with Colitis because I'm normally borderline anemic, a woman which makes it worse, and bleeding during a flare, so I know it's been bad.  The Florodix makes me feel like a million bucks!  Energetic, stronger, not needing naps.  Oh well, will google around on the others.

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/3/2008 5:37 AM (GMT -6)   
Just a FYI, men need less iron then women. If men take too much iron, it can have a severe adverse affect on them. So you should ask the doc what is the proper dosage for a man. So for instance, if he is taking a multivitamin that has iron, then that has to account for the daily allowance and/or the increase.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
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