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Veteran Member

Date Joined Feb 2005
Total Posts : 1373
   Posted 9/1/2008 11:18 PM (GMT -6)   
Hey everyone...
  Sorry to report that I've moved out of my house and am staying at a ranch nearby...  I have my horse and dog with me and have the house to myself during the week as the owners work in the bay area and only come here on weekends..
   So, I'll post more later, I don't feel much like typing....  just wanted to let you know that things are going downhill for hubby and I......
Diagnosed with U/C January 31st, 2004, IBS on July 21st, 2006 
 No remission no more.. lol.. Flaring now for 3 weeks. Blood and mucus and cramps.. argh!!! Meds are Rowasa, Canasa and Culturelle 1x a day, plus an occasional Xanax if I feel stressed out.... 

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 9/1/2008 11:43 PM (GMT -6)   
(((((((((((((((((((((HUGS SUSIE))))))))))))))))))))))

My bum is broken....there's a big crack down the middle of it! LOL :)

Veteran Member

Date Joined Nov 2005
Total Posts : 2045
   Posted 9/2/2008 1:32 AM (GMT -6)   
Sorry Susie i missed your other posts.I just hope that things work out for you.My thoughts are with you.
                                     keep the faith 

Zoton (lansoprazole)/pred/colofac


Elite Member

Date Joined May 2003
Total Posts : 30984
   Posted 9/2/2008 2:35 AM (GMT -6)   
You know what's best, not that you didn't give it a fair shot many times. I hope he's feeling better, however. Tough when you both have health issues to deal with as well as other marriage stuff.

It's been a rough ride for you. Keep us posted. It's good you have a place to stay for now.

*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Regular Member

Date Joined Jul 2008
Total Posts : 124
   Posted 9/2/2008 5:21 AM (GMT -6)   
Best wishes, look at the positives

6 Asacol tabs/day
1 Pentasa Suppository / day
Fish oil 3/day (omega 3 only)
Multivitamin and mineral 1/day
Folic Acid 1/day
Aloe Vera 3/day
Specific Carbohydrate Diet SCD
Turmeric 3/day
Currently in no mans land between flare and remission

Veteran Member

Date Joined May 2008
Total Posts : 574
   Posted 9/2/2008 7:25 AM (GMT -6)   
A big hug for you ge strong xx
  Diagnosed 22.5.08 with Lft sided U/C
  Meds Predfoam 20mg 2x day stopped started Salofalk supps 1gm 26/6/08
  Mesalazine 400mg 2 tabsx2 day

schrek-chewbacca hunk
Veteran Member

Date Joined Jun 2005
Total Posts : 2666
   Posted 9/2/2008 7:40 AM (GMT -6)   

Hey Susie, you have been there for me so many times, I'd like to return that favor.  Please take care of you during this bad time...and try to look for that light at the end of the are such a good and loving woman, and you deserve the's hoping and praying that you find personal joy and it comes to you soon.

With all my love and hugs,


Veteran Member

Date Joined Jun 2008
Total Posts : 2865
   Posted 9/2/2008 9:42 AM (GMT -6)   

Sorry this happened to you.  Sounds like predisone is not your husband's only problem.  I know my husband is wonderful but NOT when on predisone.  I have to keep reminding myself of that but he realizes it which is good.  One reason I am hoping to avoid predisone myself - who knows how it will affect me!!

Good luck!  ElaineNY

68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 1X3- discontinued for now
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa nightly - discontinued for now

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 9/2/2008 9:48 AM (GMT -6)   
(((((Susie)))))) I'm sorry things are going this direction. From your earlier posts, I know you've really tried to save your relationship. I hope that whatever life brings you now will be accompanied by more joyful times.
Judy - Southern US 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

Veteran Member

Date Joined Nov 2005
Total Posts : 2045
   Posted 9/2/2008 10:00 AM (GMT -6)   
Didn't know what was going on when i responded to your post earlier.I just wanted to let you know that oi'm really thinking about you and hope that things work out for you.This is a masiive change for you, one that can only be for the best in the long run i feel.
                                     keep the faith 

Zoton (lansoprazole)/pred/colofac


Veteran Member

Date Joined Feb 2005
Total Posts : 6448
   Posted 9/2/2008 11:16 AM (GMT -6)   
Hey Susie; take care of yourself. Good to know that you have a safe place to stay. I'm sorry things haven't worked out -- you've given it every shot possible. ((Hugs)) my friend and let us know how you are doing.


Remicade - will have my 24th infusion on October 2
Vitamin B-12/Biotin, Probiotics
Co-Moderator for the UC Forum

Regular Member

Date Joined Aug 2008
Total Posts : 63
   Posted 9/2/2008 11:59 AM (GMT -6)   
Splitting up is never a nice thing, it hurts, creates sadness and upset.  But with it brings something positive. I don't know your history or anything about your relationship but I do believe that when a relationship comes to an end change is good. Change is necessary.  it means you are doing something to help yourself (yourselves) taking a step out of the negative situation you were obvioiusly in and doing something constructive and positive instead of destructive and negative.  You could end up back together but one way or an other you need to move towards making things better.
I'm not minimizing your situation. I don't know anything about it but I do feel that when it comes to an end there is only one way things can go - UP!
take time to grieve for the relationship you obviously thought would work at one point and then look forward. 
Hope it gets easier soon for you. :-)
40 year old female. Ireland.
Diagnosed Left sided UC in June 08.
Asacolon 2400mg per day
Also taking Calcium, Acidophilis, Zinc, Vit C, Vit B complex, Omega 3 and Evening Primrose
I'm on my own little planet..but that's okay they know me there.

Veteran Member

Date Joined Jul 2005
Total Posts : 1614
   Posted 9/2/2008 2:55 PM (GMT -6)   
Thinking of you

Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Diosmin(for leg and vein support)

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 9/2/2008 2:57 PM (GMT -6)   
((Hang in there)) I am not quite sure what is going on since I haven't had time to read many posts lately. But I am thinking of you too and I know you will do what is best.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE


Veteran Member

Date Joined Mar 2008
Total Posts : 2855
   Posted 9/2/2008 3:18 PM (GMT -6)   
I wish you peace.
49 year old female, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering off presnisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, etc. diet which resolved flare. Also Replete probiotic, DGL (licorice root, slippery elm), Permeability Factors. Slow-release iron and B-12 shots for severe anemia.

Veteran Member

Date Joined Feb 2005
Total Posts : 1373
   Posted 9/3/2008 2:27 PM (GMT -6)   
Thank you all so much.... I've been pretty depressed the last few days, not knowing where I'll end up and all that. I thought the place I'm staying now was only a temporary thing, but in talking with the owner of the house yesterday, she assured me that if I need to rent and stay for a loooooong time, I'm welcome..... that was probably the BIGGEST load off my mind... Plus there is room here for me, my horse and my little dog.... I haven't felt like I had a home now for a while and after talking with Chris, the girl who ownes this ranch, I can stay as long as I want and rent the entire lower level of the house. She even asked me what she could to to make me feel more comfortable.. I was amazed with her generosity, when she hardly knows me yet..

Your posts brought me to tears... (happy ones)... The feeling of being cared for and thought about is such a healing thing when you are going through something like this. I am a bit overwhelmed with things still, but did manage to find a part time job painting houses for a painting contractor and still doing my hay business which has been getting busier every month. So, I should be fine financially and I know the emotional part will take some time, but with friends and support, that part will be all the more easier to recover.

Bob (Shrek), You've been there for me as much as I for you... you are a very kind and generous man with your emotions and it goes a long way with people here at healingwell..... Quincy, you know my history pretty well and yes, I've tried to make it work for a long time, but lately I've been pounding my head against a brick wall and it was starting to really hurt! I felt bad leaving him while he's still recovering, but it was so bad..... I can't even put it in words.... Red, Fatboyslim~ you guys are awesome and always there when I need a boost!!!

Loneylane... We've got to get together.. now I have more time available.... Sweat Peas sometime soon perhaps????? :)

And, To all the other replys here... I can't thank you all enough for reaching out and sharing your thoughts and wishes... they mean more to me than I can express right now and just know that I'm doing a bit better now that I know that I can stay here as I really like it here! There is no TV, and NO Internet connection so I had to buy one of those wireless network cards and it seems to work pretty well even though I'm out in the country.

Thank you all again SO MUCH~~
Diagnosed with U/C January 31st, 2004, IBS on July 21st, 2006 
 No remission no more.. lol.. Flaring now for 3 weeks. Blood and mucus and cramps.. argh!!! Meds are Rowasa, Canasa and Culturelle 1x a day, plus an occasional Xanax if I feel stressed out.... 

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