2 months in remission but cant get fitness level back

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Aug 2008
Total Posts : 2
   Posted 9/2/2008 2:44 PM (GMT -6)   
Its been 2 months since my last flare up and I've been back playing football for about a month but im struggling to get my fitness back and its really getting me down.

Has anyone had the same problem?

Im on asacolon and imuran at the moment

Veteran Member

Date Joined Mar 2008
Total Posts : 2855
   Posted 9/2/2008 2:53 PM (GMT -6)   
My experience is that it takes very little time to lose your fitness, and a long time to get it back.
(I golf and do strength and flexibility training)
49 year old female, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering off presnisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, etc. diet which resolved flare. Also Replete probiotic, DGL (licorice root, slippery elm), Permeability Factors. Slow-release iron and B-12 shots for severe anemia.

Veteran Member

Date Joined Mar 2007
Total Posts : 679
   Posted 9/2/2008 3:29 PM (GMT -6)   
It will take time...one of the quickest ways to increase stamina is cycling, preferable on a stationary bike. You can go at your own pace without putting pressure on your body.


Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.

Post Edited (NuffinButtTrouble) : 9/2/2008 9:05:47 PM (GMT-6)

Regular Member

Date Joined May 2003
Total Posts : 297
   Posted 9/2/2008 5:43 PM (GMT -6)   
Can't really give you any input buddy. I work out through my flares. I've kept this lifestyle since high school.
Age: 30
Sex: Yes please!
Location: Missouri
Diagnosed with UC in 1997.
Medications: 100 mg Azathioprine a day, Mesa rectal meds
Supplements: calcium, and multivitamin
No. of colonoscopies: 5
Last scope: 6/7/08-everything looked ok.

Veteran Member

Date Joined Aug 2007
Total Posts : 2202
   Posted 9/2/2008 5:53 PM (GMT -6)   
Could you be more specific? Cardiovascular fitness? Muscletone? Strength? Endurance? All of the above?
Diagnosed with ulcerative colitis spring 1999.
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.

Regular Member

Date Joined Aug 2008
Total Posts : 149
   Posted 9/2/2008 7:37 PM (GMT -6)   
I have had UC for almost 4 years now, and my fitness has suffered since. Its hardered to stay motivated, i get winded and just plain tired easier. I have accepted it and just work slower through my workouts with less wieght. Most of the time when i start coming full through i will get a flare and have to start over again...Such is life with UC sry to say. Look to a good diet and supplements to maybe help you out.
Diagnosed with UC (lower proctitis) in 2004
Current daily treatment:
1000mg sup asacol
2400mg oral asacol
40mg prednisone
75mg azathioprine
20mg Nexum
Still 4-5 bloody, mucus bowel movents a day! Blah...

Elite Member

Date Joined May 2003
Total Posts : 30213
   Posted 9/3/2008 2:03 AM (GMT -6)   
Are you eating enough?
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Regular Member

Date Joined Aug 2006
Total Posts : 49
   Posted 9/3/2008 2:53 AM (GMT -6)   
I was in the same position as you about 10 months ago when I finally got into remission for the first time in ages. Having been very fit before my diagnosis back in 2003 I really wanted to get back into shape. I had been going out on my bike for the previous year when I could, which would vary from every couple of days to once or twice a month, so I had at least been keeping as active as I could. In March I started playing squash a couple times a week and going to a gym, I would use the bike for 30 mins to start with followed by some weights. Since then I've been going to the gym 6-7 days a week spending a hour plus on the bike (hard cycling), then 45 mins or so on weights, increasing the weight considerably. I even managed a 10 mile run on Sunday (I ached on Monday as I hadn't been for a run for over 10 years!) I would say I'm close to the fittest I've ever been, the only annoying thing is food. I find red meat especially non processed doesn't agree with my UC, this limits the amount of protein I'm getting so although I'm doing loads of exercise and weights and have always been slim I've actually lost a little weight and not bulked up at all.

The best advice I could give would be to stick to an exercise you can do on your own to start with, so you can set your own pace. You also need to make sure you're eating the right amount of the right foods. I found energy drink tablets really useful, especially to start with when I was feeling a lack of energy.

If anyone has any advice on protein and protein suppliments your comments would be welcomed.
Diagnosed 2002, had first endoscopy on my 27th birthday!!
Preds x 5mg a day
Azathiaprine x 200mg a day
In remission since November 2007 - best since diagnosis

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, March 21, 2018 8:14 AM (GMT -6)
There are a total of 2,942,167 posts in 322,827 threads.
View Active Threads

Who's Online
This forum has 161223 registered members. Please welcome our newest member, Megan Trepp.
339 Guest(s), 11 Registered Member(s) are currently online.  Details
island time, Searose, JNF, Michael_T, kloz31, Saipan Paradise, AimeeOx, garyi, OriolCarol, Tashin, Lanie G