UC & Lyme Disease Treatment

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DuxWoods
New Member


Date Joined Sep 2008
Total Posts : 5
   Posted 9/3/2008 11:01 PM (GMT -6)   
Hi There,  My husband has recently been diagnosed with Lyme Disease.  He has UC that is in remission (and has been off meds for UC for many years).  He cannot take antibiotics without flaring big time.  Has anyone out there been treated with antibiotics for Lyme or is currently doing so?  Thanks!

dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 9/4/2008 9:50 AM (GMT -6)   
Hi! Welcome to HealingWell :)

I'm not sure about about the treatment for Lyme. Have you investigated our Lyme forum? They might have more answers for you.
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission?!?!?
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08:  Next infusion: 10/07/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 9/4/2008 1:33 PM (GMT -6)   
The antibiotic effect (killing bacteria) can be corrected with good probiotics (adds back good bacteria), from what I've read.
49 year old female, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering off presnisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, etc. diet which resolved flare. Also Replete probiotic, DGL (licorice root, slippery elm), Permeability Factors. Slow-release iron and B-12 shots for severe anemia.
 


DuxWoods
New Member


Date Joined Sep 2008
Total Posts : 5
   Posted 9/4/2008 5:45 PM (GMT -6)   
Hi Peety & Dakotagirl,  Thanks for your replies.  Yes, I double posted at both UC & Lyme to cover my bets.  Thanks for the info!

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 9/4/2008 9:21 PM (GMT -6)   
My mom is on high doses of doxicyclone for Lyme and she has a "normal" digestive system. With doxi you can't eat right before or after the pill. It is tearing up her digestive track. She is naseuas all the time. Her doc now said she can have 3 crackers or so with the pill. She should be done with her course soon but I remember her specifically telling me "wow, you could never take this." It might be something to discuss with the doc.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 9/4/2008 9:21 PM (GMT -6)   
PS: are they sure it is Lyme? IBD can have a lot of similiar manifestations like joint pain.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


DuxWoods
New Member


Date Joined Sep 2008
Total Posts : 5
   Posted 9/4/2008 9:35 PM (GMT -6)   
Hi Fitzy,  Thanks for your reply.  Yes we are 95% sure it's Lyme--pretty much classic case with bull's eye and all the rest of the symptoms.  We are waiting for an appt. with a Lyme expert, and hopefully he will have had a patient with UC and Lyme before, but I thought I would post to see if anyone on this forum has had to deal with this situation.  Leaving the Lyme untreated would be detrimental to his health, but the traditional 30 day Doxy treatment could also nearly kill him.  He has used probiotics with Abxs, but they have not proven to work well enough with his system and the Abxs have sent him into a UC tailspin.  Dam*ed if you do and Dam*ed if you don't!  Thanks again.  If we get answers from the MD I can post if anyone has any interest.     

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 9/4/2008 9:47 PM (GMT -6)   
I hear Cipro is also rx'd for lyme at times and many people with IBD find relief from Cipro. (Although others have developed tendon damage from it.) But if I had to pick an rx to go w/ it would probably be one that is IBD friendly!
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.

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