I have seen that a lot of people are misdiagnosed.
I was logging onto the CD forum because that is what my husband's dx is. He has been dx on symptoms alone and to make a long story short, he has had 2 colonoscopies, one a month after the first because he was worse, and a CT scan. Other than that his current Dr has given him meds and said "try this and if it works the you had this dx." he said the tests were all "inconclusive" and "it looks like hamburger meat in there"
We have good insurance, and he is also a veteran. So, he is going to go to the VA to get a second opinion. His appt. with the PCP is on the 10th and it will take a while to get into the specialist.
He was taking:
Canasa 1000mg, nightly, no change with or without
Colazal 2250mg 3x a day
Entocort EC 9mg, increased frequency and added night trips to RR
prescribed -6MP but concerns are too many
He is currently taking:
Tramadl, as needed, every 6 hours - this takes off the edge for him
Dicyclomine 10mg as needed, every four hours
1200mg 3Xa day, 800mg3x a day
Prednisone 40mg taper, tapering near the end
Intestinew, herbal seems to be helping
Centrum multi vitamin
Potassium RX - levels were "dangerously low"
We have recently started excluding things from our diet, to see if this helps him.
Husband Diagnosed CD '06:
secretary, cook, researcher, housekeeper, wife, nurse, comforter, etc.
and loving every minute of it!