I call them "Random Attacks" because I have no idea what they are or when they'll strike.
For the last 2½ years I've had them. They usually happen once or twice every few months.
Here's what happens:
I get menstrual type cramps that are very sharp. They come in waves of very painful to "oh my god" painful. They burn strait through to my lower back.
It feels like I have to pee and poo. But I don't.
Some times my "girly area" is on fire, but not always. (Sorry for my immaturity)
If I do pee a little it is brownish-red.
At this point I take Tylenol and go to sleep.
When I wake up the attack is over and when I pee out my full bladder it is brownish-red.
After that wake-up pee my urine is back to normal.
If I do not go to sleep then I've had attacks that last 20-90 minutes.
They are very painful and I can not function when they strike.
No doctors know what this is. It is NOT a UTI or bladder infection because I've peed in many cups.
I've given up bothering doctors because they just tell me it's UTI/bladder infection and then I pee in the cup and it's not.
As I said, they happen every few months. If it was UTI/bladder infection it wouldn't just go away.
Brought it up with the GI about
a year ago. He just says it's from the UC. But how?? I think he's stupid.
Anyone have any similar experiences or have any ideas?
Diagnosed with UC in August 2005.
Suffered for my whole life before being diagnosed.
Told to "Eat more fibre."
6mg x 1/day
Salofalk 1500mg x 4/day
Entocort increased to:
9mg x 3/day as of 2.14.08