My "Random Attacks", do you have?!

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Asia
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 9/5/2008 1:50 AM (GMT -6)   
I call them "Random Attacks" because I have no idea what they are or when they'll strike.
For the last 2½ years I've had them. They usually happen once or twice every few months.

Here's what happens:
I get menstrual type cramps that are very sharp. They come in waves of very painful to "oh my god" painful. They burn strait through to my lower back.
It feels like I have to pee and poo. But I don't.
Some times my "girly area" is on fire, but not always. (Sorry for my immaturity)
If I do pee a little it is brownish-red.
At this point I take Tylenol and go to sleep.
When I wake up the attack is over and when I pee out my full bladder it is brownish-red.
After that wake-up pee my urine is back to normal.
If I do not go to sleep then I've had attacks that last 20-90 minutes.
They are very painful and I can not function when they strike.

No doctors know what this is. It is NOT a UTI or bladder infection because I've peed in many cups.
I've given up bothering doctors because they just tell me it's UTI/bladder infection and then I pee in the cup and it's not.
As I said, they happen every few months. If it was UTI/bladder infection it wouldn't just go away.

Brought it up with the GI about a year ago. He just says it's from the UC. But how?? I think he's stupid.

Anyone have any similar experiences or have any ideas?
Diagnosed with UC in August 2005. 
Suffered for my whole life before being diagnosed. 
Told to "Eat more fibre." 
 
Currently on:

Salofalk 1500mg x 4/day
Entocort
6mg x 1/day
Entocort increased to:
9mg x 3/day as of 2.14.08


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 9/5/2008 6:48 AM (GMT -6)   
could you be having kidney stones?
Jessica 27/F 20mg pred
Remicade
Lialda 2.4GM
Citalopram 20 MG
omeprazole(for acid reflex)
Tried (Entorcort EC 9ml/day and Prednisone, Asacol ,colazal, Culturelle, dicyclomine)


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/5/2008 7:13 AM (GMT -6)   
I think you should see a urologist because it sounds like it has something to do with the kidneys and/or bladder going on. I found this on Wrongdiagnosis.com

http://www.wrongdiagnosis.com/symptoms/brown_urine/causes.htm
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


barbl
Regular Member


Date Joined Jul 2006
Total Posts : 320
   Posted 9/5/2008 11:04 AM (GMT -6)   
The only time that happened to me I was misdiagnosed with a UTI, a week later the kidney stone struck shocked
Dx'D in 1990. Remission 1991 - 1/2005
Both flares were in extremely stressful times in my life
Colonoscopy 10/2005 80% of Colon diseased, or as I like to say "Intestinely challenged"
*****9/2007 dumped my GI who I refer to as "Satan" New GI, new med TOTAL remission with in 2 weeks.
Colazal 9 capsules a day*****


quincy
Elite Member


Date Joined May 2003
Total Posts : 30971
   Posted 9/5/2008 1:47 PM (GMT -6)   
Definitely get in with a urologist...it'll pay off big time. I went through the same thing...but I had endometriosis, fibroids and bladder irritations with some infections due to all happening at the same time.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Asia
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 9/5/2008 2:33 PM (GMT -6)   
How would you know? Are stones big?
The other day when I had a random attack there was small pink(?) flecks of what looked like tissue on the toilet paper.
I've had this before after an attack, but not every time.

How is it diagnosed?

Suffered for my whole life before being diagnosed.

Told to "Eat more fibre "



Currently on:

Salofalk
1500mg x 4/day
Entocort 6mg once a day
Imuran 150mg once a day


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/5/2008 5:15 PM (GMT -6)   
Real big stones are really painful and usually have to be either crushed by laser or removed surgically but if they are small then they don't cause too much grief unless they get caught in the ueter(sp?). They come in different shapes and sizes too. To know if you have a kidney stone, you first need to see a urologist and they can do a CAT scan to see if you have one.
 
Edited to add: if in fact you do have stone, which btw as a Uc'er you are more prone to them - this is another extra manifestation of Uc, that a small one will be passed thru the kidney, into the bladder and then thru the urethra.  I heard that it can be extremely painful when passing a stone.  If the stone gets caught in the ueter (which is the opening from the kidney into the bladder), then it can cause bleeding and pain and requires immediate medical assistance.


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 

Post Edited (Red_34) : 9/5/2008 4:18:38 PM (GMT-6)


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 9/5/2008 8:55 PM (GMT -6)   
A kidney problem was what sprung to my mind when you said you were peeing dark urine. I second the suggestion that you get in to see a urologist.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa nightly; Canasa weekly; Viactiv; Metamucil wafers; multivitamin

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