new Remicade warning

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Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 9/5/2008 9:45 AM (GMT -6)   
hey people! So I read in my local paper today that the FDA wants a new warning placed on Humira, Remicade, Enbrel & another biologic (I forget which one)- that the use of these can increase your susceptibility to possibly fatal fungal infections. Specifically, histoplasmosis. I guess they've discovered that doctors are ignoring the rise in histoplasmosis cases amongst users of these biologics. Honestly...... I dunno...... between the potentially fatal viral infections, the potentially fatal fungal infections, & my entirely non-fatal UC....it just stinks! I am beginning to really dislike being on a megadose of Remi & Imuran. However, I really don't want to give my colon the old heave-ho. What's a person to do?!?!?!
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 9/5/2008 9:49 AM (GMT -6)   
Having lived on both sides of the fence, I would give the colon the old heave-ho. Life is very good of the medication and the flare/remission/flare/remission carousel.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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