Cellcept guinea pig, hope not to flare

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Veteran Member

Date Joined Jul 2007
Total Posts : 2148
   Posted 9/5/2008 3:26 PM (GMT -6)   
So my kidneys are not in remission and I am seriously ticked.  I am down to 5mg of pred (it is an evil friend, like a backhanded compliment.......)
So mon I see my Neph and I think I will be on Cellcept.  I will have to get off the Azathioprine, can't be on both at the same time.
I dont know of anyone who's ever been on Cellcept for UC and there is not much data out there.
So please wish me luck.  I go about 1-2 times a day sometimes I even skip a day and have my life partially back. 
going through all this I do not feel like myself anymore.......I am going to ask Neph to recommend someone I can talk to about living with chronic illness
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!

Old Hat
Veteran Member

Date Joined Feb 2007
Total Posts : 5185
   Posted 9/5/2008 4:05 PM (GMT -6)   
Is there anything about it on ccfa.org Website? The main issue is that you HAVE to take care of your kidneys. It's such a bummer that you got MCD; I hope the neph can advise you about counseling. Do you have any possibility of using steroid enemas while on Cellcept? Just try to get enough rest & stay as positive as you can; right now you may feel that you're getting nowhere, but you really did put up a good fight since your flare last fall. Brava! / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])
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