Prednisone taper

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Whyohwhy
New Member


Date Joined Aug 2008
Total Posts : 15
   Posted 9/5/2008 6:42 PM (GMT -6)   
SO i saw the stand in gi doc today, because my regular is out of town. These doctors visits are getting really frustrating, the whole system makes it hard to blame the doctors though. Anyways, that's another subject.
According to this doctor, since this is my first time on Prednisone like this, and my symptoms weren't severe, he recommended a taper of
40mg for 5 days, 30 5 days, 20 5 days, 15 5 days, 10 5 days, stop.
Now i want to get off this stuff ASAP, and i know it all depends on how my body responds as the taper lowers, but does this seem like a reasonable taper? I just ask because it seemed like lots of people on here tapered down from 40mg for 2-3 months, not 5 weeks.
God will take you through hell, just to make it to heaven.


UC Sucks
Regular Member


Date Joined Sep 2008
Total Posts : 23
   Posted 9/5/2008 6:50 PM (GMT -6)   
I think it matters how long you have been currently taking this course of Prednisone. If I get my symptoms under control within a month, my doctor allows me to taper 10 mg per week. However I have had flares where every time I tried to taper AT ALL, my symptoms would come rushing back. For me, my body lets me know if I am tapering too fast, and my advice would be to get off of the prednisone as quickly as your body allows. To me this seems like a reasonable taper though...
29 year old female
Diagnosed with UC 2005
Current regimen: Mid flare... :-(
Asacol 4800 mg/day-Prednisone 30 mg/day-Remicade Q8weeks
Used in past:  Sulfasalazine and 6MP.


Whyohwhy
New Member


Date Joined Aug 2008
Total Posts : 15
   Posted 9/7/2008 12:32 AM (GMT -6)   
Thanks for the reply UC sucks. lol, I love that name, best on this site.

I hope its reasonable to drop that fast, I'll see my regular gi in about 10 days so ill be at 20 mg by then and see what he says. I thought it was odd to stop at 10mg, when our normal body only allows for 7.5mg naturally. I thought you had to drop below that level before stopping. I'll see what my regular gi says.
TO answer your question, this course is right now day 4 on 40 mg. It's helped a little, but not a lot. Not sure how much to expect at day 4. I've read so many different accounts of being on this stuff.
Started the sc diet yesterday and hopefully that will start helping while im on the prednsisone.
God will take you through hell, just to make it to heaven.


mh53mike
Regular Member


Date Joined Aug 2008
Total Posts : 149
   Posted 9/7/2008 1:47 AM (GMT -6)   
Prednisone is different for everyone, so you shouldnt be comparing your taper with others really cause it varies so much and might just confuse the hell out of you. The reasons they vary are due to the persons UC symptoms and how serious the flare is etc. Also some people just respond better to prednisone, some develope tolerances to it etc.

But I can tell you some basics about it. If your fairly new to prednisone its probably going to work fast and you wont need that long of a taper or a high dosage. In my expierences with prednisone if your UC symptoms are not gone within the first two highest dosage tapers and you keep tapering your UC flare will most likely come right back to full strength as you never really got rid of it. And like UC said you get off it as quickly as your body allows, I am curently on a tapper i started at 60mg for 2 weeks and now have been stuck at 40mg now for 3 weeks...it sucks cause i am seeing some bad side effects. There are many tapers out there...yours looks like a basic example. Hope it works for you.
26y old male med disharge veteran
 
Diagnosed with UC (lower proctitis) in 2004
Current daily treatment:
1000mg sup asacol
2400mg oral asacol
40mg prednisone
75mg azathioprine
20mg Nexum
 
Still 4-5 bloody, mucus bowel movents a day! Blah...


Whyohwhy
New Member


Date Joined Aug 2008
Total Posts : 15
   Posted 9/7/2008 6:38 PM (GMT -6)   
Thanks MH,
"In my expierences with prednisone if your UC symptoms are not gone within the first two highest dosage tapers and you keep tapering your UC flare will most likely come right back to full strength as you never really got rid of it"
_I think that's great advice, I'll watch for that. today is day 5 at 40mg, tommorow i start the 5 days of 30mg.
This is my first time and I would love for it to be the last, I believe it's possible, I'm gonna do everything I can. I'm really excited about the possibilities of the SC diet. I've basically been on it for 2 days and today. Kind of odd to be starting it while on prednisone, but i figure the sooner the better. I know some people take a while for it to really help them so I'll have to keep that in mind with my prednsione decisions.
I don't notice a huge difference, but definetly a growing subtle improvement, no major side effects so far. I hope that continues.
God will take you through hell, just to make it to heaven.


joolspirog
Regular Member


Date Joined Jul 2007
Total Posts : 29
   Posted 9/7/2008 7:13 PM (GMT -6)   

Hi Guys,

Do not want to alarm anyone but tapering steroids can be life threatening if you cut too quickly, your body needs time to have the capability to make cortisol again and, personally, I go by 5 mg every 7 days to 10 mg and then I go by 1 mg per 5 days till I feel I can cut completely and so I am told by my specialist that the last few milligrammes are the ones to keep longest.  I have 3 times tapered a little too quickly, had terrible headaches and lots more and then flared up within a month at most so have not really been off of the roids much at all.

I would suggest you speak to your professionals and make sure you suffer less and have a good chance for your own cortisol to be made before you cut the steroid completely.

As before , I am only offering advice and in no way is this to be confused with being told a definite.  I am still learning myself, each day is another lesson but I do have some good people around me now on a popular networking site that help me and encourage me greatly and i truly wanted to just die.  I have learned that we all have many problems that add to this illness but that there can be times that remission will come with no real effort. A definite that I can say is that we all can react differently to the meds and some of us get very bad side effects from the immune suppressants, me being one of them.

One guy gave me perspective today by telling me " This is not a life threatening disease" and I truly needed to hear that, the surgery is not a nice or good thing but it is an end to this so for those , like me, that cannot go down the immune suppression route, that is an option and life can return to a decent level. I would wager tha many of the Crohn's people would take this op is they knew it would be an end to it.  I am now thinking of having the diseased part of my colon removed first and hope that it will stop, if not then J pouch. I don't mean to sound cold but we do have a cure even if that cure is a very harsh option.

PLEASE take care with the cutting regimens of steroids good people.

 

Much love to you all and blessing be upon you ALL

 

Julian x 

 

 


Whyohwhy
New Member


Date Joined Aug 2008
Total Posts : 15
   Posted 9/10/2008 3:30 PM (GMT -6)   
Just an update. This is day 8 overall on prednisone, 5 days at 40 mg, today is day 3 of 30 mg. Definetly improving!
I've also been on the sc diet for 6 days also. Unfortunetly doing both at the saem time doesnt allow me to really gauge the effectiveness of either. I believe they're both helping. This SC diet is crazy but I'm actually enjoying it.
Now I just need to cross my fingers and hope i can continue this taper with no ill side efffects.
hope everyone reading this is doing well today.
God will take you through hell, just to make it to heaven.


joolspirog
Regular Member


Date Joined Jul 2007
Total Posts : 29
   Posted 9/12/2008 12:11 PM (GMT -6)   
Hi all,

I had an alarmed young girl talk to me today who is back flaring up as she has cut to 15mg of pred and the specialists have told her she needs endoscopy and colonoscopy as she should be improving and they have scared her witless with cancer stories. I just wanted to say that not all of us get better on steroids and many then flare when cutting down and that this is not unusual. I would have hoped these specialist would have told her to go back up to a point where she was asymptomatic and then cut more slowly. I am so angry at these people scaring others with no good reason. Pred is not a cure and we all react differently.

Hope you all have as good a weekend as possible

Julian

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 9/12/2008 12:22 PM (GMT -6)   
I personally would not go from 10 to 0, in your shoes, I would cut by 10mg till I got to 20mg then taper by 5mg per week until I got to 5mg and then would do 5mg every other day and then stop.

I have been on pred for a year and I am now down to 5mg and will be doing 5mg/2.5 mg alt days for 6 weeks, then 2.5 mg a day for 6 weeks then 2.5 mg every other day for 6 weeks. I was mainly on pred for my kidneys also benefitted my UC.

Even being at 5mg has helped my swelling go down!
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


joolspirog
Regular Member


Date Joined Jul 2007
Total Posts : 29
   Posted 9/12/2008 12:44 PM (GMT -6)   

Hi Beth,

I notice you are on Azathioprine( Imuran). I was under the impression that if you take the immune suppressants then you should be in remission ?. I was told they call them steroid sparing drugs but that they can take anything up to 6 months to work properly. I just noticed several people on these drugs but still flaring and wonder if it is worth doing if this still happens.

Waddyathink ?

 

Julian


Whyohwhy
New Member


Date Joined Aug 2008
Total Posts : 15
   Posted 9/12/2008 2:17 PM (GMT -6)   
thanks for all the replies.

beth 75, I really like your advice! In fact it's just about the plan i thought of to talk to my regular GI about. I'll see him on Tuesday when i'm on day 4 at 20 mg, day 14 overall and see what he has to say about the last tapering part. TO me it seems awfully important to slow down the taper so your body can adjust. But i know everyones situation is different. I'll be very interested to hear what my Gi has to say on Tuesday.

An interesting note on Prednisone and me, It's a slow gradual thing with me it appears. It didn't hit me like "Wham",but I'm feeling better everyday even though my dosage has been lowered from 40 to 30 now. I'll start 20mg tommorow. It'll get interesting soon, cross your fingers for me.
Again i can't state this enough, I have faithfully been following the SC diet for 8-9 days now. How much of a role that's playing? I wish i knew.
God will take you through hell, just to make it to heaven.

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