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Samynic
Regular Member


Date Joined Aug 2008
Total Posts : 56
   Posted 9/5/2008 7:20 PM (GMT -6)   
No one on here really talks about the pain being a major issue for them. That is my biggest issue. Pain on the left side and just during this current flare it hurts up top too (I hope it hasn't spread) Then actually going is really painful and I am exhausted and in terrible pain after im done. I started on tylanol and that didnt do much then they gave me tylanol with codine and it worked for a while. Then stopped and I started hydrocodone 5.500 then 7.5 and now i am on roxicodone which is basically oxycontin. It is kinda like morphine and sedates my guts and puts me in a less stressful state and I can feel normal for a couple hours.

But does anyone else have this pain and get prescribed pain meds for it?

sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 9/5/2008 7:23 PM (GMT -6)   
i have horrible pain at times


i used to use my hubby's hydrocodone on long road trips only.... and I thought about asking for a prescription, but then I heard that meds like that can mask other things and things can go bad and you won't know it .. so I got scared and I just sorta deal with the pain.
Kara, 21F Married.
Diagnosed March, 2007, but was going through testing for a year before diagnosis.
Left Sided UC. Currently in a flare.
Medications:
Lialda - 4 pills in the morning w/ food.
Steroid Enemas


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4189
   Posted 9/5/2008 7:25 PM (GMT -6)   
The pain was my biggest issue when I first got UC and before I was on meds. It was unbearable. I could barely even stand up...I was basically just lying on the bathroom in pain scared I might die (not to sound dramatic, but that's really what I thought might happen since I didn't know what was wrong with me). My pain was throughout the entire abdomen. Tylenol and Aleve both did nothing for me at that point. The doctors refused to give me any pain meds. I think they gave me a shot of something like Tylenol (I forgot what it actually was) once while I was in the clinic (after I asked for something for the pain numerous times) which helped very slightly, but it wore off quickly. I'm glad they prescribed you something and that it's helping, at least a little bit.
 
I should add that since I've been on Asacol and Rowasa, I barely have any pain at all...only mild pain/discomfort once in a while, but nothing compared to that horrible pain I had when UC first came into my life.


Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa nightly; Canasa weekly; Viactiv; Metamucil wafers; multivitamin


Samynic
Regular Member


Date Joined Aug 2008
Total Posts : 56
   Posted 9/5/2008 7:29 PM (GMT -6)   
really they wont give them to you? I dont know what I would do if i didnt have them, it is the only way I can function somedays


i dont have insurance and ran out of all of my meds except 4 more Canasa so to treat this terrible flare im having I only have my pain meds, probiotics, aloe vera juice and sleep

IT SUCKS
22 years old
Diagnosed with UC June 2005 at age 19
Just graduated from Virginia Tech but unemployed because current flare has left me out of commission
Have taken: Cortifoam, Asacol, Dicyclomine, Prednisone, Sulfasalazine, Cipro, Flagyl, Codine, Hydrocodone, Roxicodone, Canasa, Zoloft, Probiotics (recent), Aloe Vera Juice


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4189
   Posted 9/5/2008 7:34 PM (GMT -6)   
Well, they wouldn't give them to me then...it was before they had figured out a diagnosis for me and I think they didn't want to give me any pain meds before they knew exactly what was wrong with me...don't know if they'd give them to me now either though, but I haven't (luckily) needed to ask.

That totally sucks you don't have insurance. Maybe you could try calling your doctor to see if he or she could give you some free samples of meds. Or you could call the companies who make your medications...some of them have financial assistance programs to help you out if you don't have insurance.

Side note: I heard that aloe vera juice can make some people have diarrhea (not sure what your symptoms are), but just something to be aware of if you're already suffering from that.

Welcome to the forum, by the way.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa nightly; Canasa weekly; Viactiv; Metamucil wafers; multivitamin


Samynic
Regular Member


Date Joined Aug 2008
Total Posts : 56
   Posted 9/5/2008 7:40 PM (GMT -6)   
it has actually helped a lot... i started the canasa last night and now when I feel the sudden urge, and go to the bathroom nothing happens... i went from going a million times to basically none WHY CANT THERE BE A HAPPY MEDIUM IN MY LIFE?!?!?
22 years old
Diagnosed with UC June 2005 at age 19
Just graduated from Virginia Tech but unemployed because current flare has left me out of commission
Have taken: Cortifoam, Asacol, Dicyclomine, Prednisone, Sulfasalazine, Cipro, Flagyl, Codine, Hydrocodone, Roxicodone, Canasa, Zoloft, Probiotics (recent), Aloe Vera Juice


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4189
   Posted 9/5/2008 7:48 PM (GMT -6)   
That sucks. I feel like that too sometimes. When I was flaring really bad that would happen - I'd have the urge to go but then nothing would come out sometimes. I hope you can find some way to get into remission soon.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa nightly; Canasa weekly; Viactiv; Metamucil wafers; multivitamin


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 9/5/2008 9:32 PM (GMT -6)   
yeah, pain is major issue for me as well.
i have so much pain it actually makes me puke while im sitting on the toilet trying to "go". 
god its horrible.
i am also on oxycontins (endone in australia).
nothing else worked so doc gave me those.
 
if i didnt have it, i dont know what i would do.
i cant even move sometimes.
 
oh.. and a good idea is to take stool softeners as well. the oxycontins cause constipation and stool softeners make it much more pleasant in that regard.  dont take laxatives or anything that causes cramping or spasms.  only plain old stool softeners.
should do the trick.
steph - 32 - female - UC since 2000
currently flaring again..  grrr! (triggered by stress - grrr)
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
prednisolone 25mg x1 a day (ick ick and did i say ick?)
tumeric capsules x3 a day
 
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/6/2008 5:16 AM (GMT -6)   
Oh yeah, the pain can get intense for sure! I don't have pain now though I am in a mild flare and for that I am extremely grateful. But when I am in a full on flare, I can barely get off the couch and when I do, it's to use the bathroom only to feel faint and have cold sweats because it hurts so bad. In one of my worse flares, my GI gave me Darvocet and told me to use them sparingly because narcotic pain relievers can slow down the colon too much and that is not a good thing either if done for long term. Now that I have had this horrid condition for 16 years, I can't do narcotic pain relievers at all because it constipates me so severely (just 1 dose) that I believe I am setting myself up for toxic megacolon. And now THAT is a scary scary thought.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 9/6/2008 6:00 AM (GMT -6)   
Yes, I too have pain. Love going to the restroom and having my trash can in front of me in case I get sick. The funny thing w/ me, the friday before my scope on Monday the skin on my right side is tender to the touch by my rib cage and around to the back. The tenderness is still there. There is no rash or anything. Anyone know what this could be?

Gigi1227
Diagnosised 8/25/08
Asacol
Canasa
Multi Enzyme
Mega Probiotic
Psyillum

hamley
Regular Member


Date Joined Sep 2008
Total Posts : 52
   Posted 9/6/2008 9:03 PM (GMT -6)   
Pain for me is one of my biggest complaints (aside from the blood). When I get severe cramps, I get sharp pains all throughout my stomach that actually radiate down to my toes. It's so bad I feel nausiated but am in too much pain to actually throw up! I swear I almost went suicidal after 7 straight hours of that last week- who wouldn't ?! My doctors had no problem giving me pain meds, and I'm not afraid to take them. I actually have to take a percocet every morning because I wake up with a little attack from my nightly enema.

When I don't have an attack, my stomach is generally sore to the touch. How long does this last?

female- 21
Diagnosed this past week
Rowasa
Hyoscamine
percocet

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/7/2008 4:57 AM (GMT -6)   
What is the extent of your UC Hamley? Do you know?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 9/7/2008 11:53 AM (GMT -6)   
The pain can be excruciating and exhausting during a flare. It's not constant, just spasmodic. I can't imagine non-Rx meds would help. Otherwise, I thought maybe I didn't have any pain but my naturopath pointed out I was probably just used to it and, you know, I think he is right...

Samynic, try going to a safety-net clinic and see if they can work out some free or cheap meds with the drug company, they have programs for that. (But don't expect them to give you pain meds, they get too many patients coming in just to get fixes so might not believe you, according to my friend who is a nurse practitioner at a clinic). Or see if you can get some free samples if you have a regular GI.
49 year old female, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering off presnisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, etc. diet which resolved flare. Also Replete probiotic, DGL (licorice root, slippery elm), Permeability Factors. Slow-release iron and B-12 shots for severe anemia.
 

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