I have been having "pencil stools" for over a year and have a lot of pain with a bm even when I am not flaring. My GI says I have "lead pipe syndrome" which he describes as "your colon looses its own natural folds and creases from continuous scarring over the years." This in turn leads to the pencil stools and pain with bms. He didn't tell me anything about
the diameter of my colon when I had my last scope but I have tried multiple remedies for the pencil stools at his insistence and nothing has worked - - they are still about
the diameter of a pencil. I just generally feel very swollen/bloated in my lower abdomen. I am about
to take the big plunge to surgery since I have abdominal pain every single day & my quality of life is seriously effected.
Dx UC 1979 at age 14 - (I know, some kind of record)
Was Mildly Chronic (flares every couple of years) until last 2 years now Chronically Acute
Can only get about a month symptom free between flares now
Asacol, Canasa, Rowasa, Cortifoam (on Sulfasalazine for 28 years previously also Pred)
GI Doc recently told me I have "lead pipe syndrome" which is advanced scarring of colon
No surgery - multiple colonoscopies reveal uc "from rectum to appendix"
My Best Friend is My Shih Tzu/My worst enemy is uc