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Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 9/7/2008 12:13 PM (GMT -6)   
I feel that many of us add things to our drug regimine to see what works and what doesn't work.  For example, enzymes, probiotics, etc............Do many of you use immodium or anything else for the D?
 
Gigi1227
 
Diagnosised 8/25/08
Canasa
Asacol
Multi Enzyme
Mega Probiotic
Psyillum
 
Thinking of adding nicotine patch (don't want to go back to smoking, but if nicotine helps then I will be able to try it and keep my quit) and thinking of adding immodium!

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 9/7/2008 12:30 PM (GMT -6)   
I don't know that I would use immodium on a regular basis, I think long term use can increase the risk of toxic mega colon.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 9/7/2008 12:32 PM (GMT -6)   
Thanks pb4 !

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 9/7/2008 12:40 PM (GMT -6)   
I use one-half a pill in the mornings, just before leaving the house, when I'm flaring (only then). It helps calm things a little, but doesn't completely stop things so I think would avoid that toxic colon thing. One whole pill makes me uncomfortable, I only do that when I have to run a meeting or it will be difficult or awkward to find a bathroom. I haven't used two pills at once in years. Remember the bottle directions are meant for people with an accutate case of D, not chronic.
A few other remedies for the D have been mentioned here, too, but that's what I do. I've thought about trying the metamucil (pills, because the wafers have gluten).
49 year old female, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering off presnisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, etc. diet which resolved flare. Also Replete probiotic, DGL (licorice root, slippery elm), Permeability Factors. Slow-release iron and B-12 shots for severe anemia.
 


Delarge
Regular Member


Date Joined Mar 2007
Total Posts : 157
   Posted 9/7/2008 1:48 PM (GMT -6)   
I add a certain substance which apparently is unmentionable here, it begins with an "m". Tremendously effective.

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 9/7/2008 1:48 PM (GMT -6)   
I've only used Immodium a couple times, and that was when I had a presentation and when I had unending diarrhea not related to UC. I've been told NOT to use it if I'm bleeding.
Female, Age 19
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (3 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort
 


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 9/7/2008 1:50 PM (GMT -6)   
Good advice everyone - I will not use it - will talk w/ my doctor tomorrow while Jim (dh) is being scoped.

potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 9/7/2008 2:09 PM (GMT -6)   
I use immodium when I have to go somewhere early in the mornings, it does give me a little stomach upset. but it serves its purpose.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 9/7/2008 2:15 PM (GMT -6)   
Hey Gigi, what about increasing your fibre a little more? Do this slowly of course, like every second day take a little more than what you're already taking everyday and then after about a week (or how ever long it's taken for you to adjust to the increase) then just start taking the increased amount daily.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 9/7/2008 4:26 PM (GMT -6)   
The GI doctor told my son he could take Immodium when he was going to PA from SC (9 or 10 hours) in a 14 passenger van to play lacrosse . I worried a lot about that trip, but thanks to Immodium, he did pretty well.
UC Mom
Son diagnosed 10, 2006 at age 15
6MP 100 mg. per day
Vitamin Supplements
Culturelle


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/7/2008 5:08 PM (GMT -6)   

My doctor often prescribes Imodium according to my NP.  I take only 1/2 at a time early morning when I have to go out. Use it when traveling also as little as possible and eat very light. It never makes me constipated and things seem to keep moving along which is the risk - causing megacolon.  Please run it by your doctor - we are all so different. 

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 1X3- discontinued for now
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa nightly - discontinued for now
 
 
 
 
 
 


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 9/7/2008 5:11 PM (GMT -6)   
The Herbal form of Imodium is Bael Fruit Capsules and won't cause Toxic Megacolon as it is natural I think.

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Mesalazine Suppository at night.


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 9/7/2008 10:52 PM (GMT -6)   
ComedyDork said...
I've only used Immodium a couple times, and that was when I had a presentation and when I had unending diarrhea not related to UC. I've been told NOT to use it if I'm bleeding.


My doctor also said I can't use Immodium if I'm bleeding.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare till the present.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema/suppository, Salofalk tablets 500mg x 3/day, Azathioprine 75 mg. Warfarin for my Deep Vein Thrombosis which resulted from diarrheas and dehydration in Feb 2008.
Supplements: Probiotics, Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsule (Metamucil)


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 9/7/2008 11:10 PM (GMT -6)   
My GI must be crazy cuz he's totally fine with it. He told me that just as long as I don't go over the recommended dosage it's fine. I haven't ever had a problem with it. Without it I probably wouldn't have made it through high school.
Sam 19 year old college student
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, Imodium when I need it
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/8/2008 9:36 AM (GMT -6)   

I so agree Sam.  I am fifty years older than you are and so thankful for Imodium in the appropriate doseage - as little as works for you.  My doctors over the years have recommended it for IBS and now UC.  Everyone should, however, talk with their doctors about using it - we all have somewhat different conditions and systems.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 1X3- discontinued for now
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa nightly - discontinued for now
 
 
 
 
 
 

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