Probiotics and Urgency

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Gargamel
Regular Member


Date Joined Apr 2006
Total Posts : 172
   Posted 9/7/2008 1:50 PM (GMT -6)   
Who on this forum can tell me the best probiotic to treat urgency related to Colitis?

Tried - Culturelle, Digestive Advantage and VSL#3.

What else...

Thanks,

G

Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 9/7/2008 1:58 PM (GMT -6)   
Still new to this grrrrrrrrr disease and I have only tried a Mega Probiotic. Haven't been on it long enough to know.

Gigi1227

Diagnosised 8/25/08
Currently Flaring
Canasa
Asacol
Mega Probiotic
Multi Enzyme
Psyillum

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 9/7/2008 2:16 PM (GMT -6)   
Although I have good results from taking probiotics honestly I can tell you it doesn't necessarily aid with the urgency issues, not for me at least, for me takinging probiotics daily has aided mostly in frequency issues but not urgency.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 9/7/2008 6:00 PM (GMT -6)   
I use Replete ($$$). I believe in it, but I still have some urgency issues, especially with those first bites of breakfast...
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering OFF presnisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, etc. diet which resolved flare. Also Replete probiotic, DGL (licorice root, slippery elm), Permeability Factors. Slow-release iron and B-12 shots for severe anemia.
 


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 9/7/2008 6:07 PM (GMT -6)   
I have found no improvement after 9 months of probiotics.

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Mesalazine Suppository at night.


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 9/7/2008 6:58 PM (GMT -6)   
I have found that the probiotics help with the gas.
Age: 48
location: Seattle, Wa
currently in small flare, tail end of colon
Diagnosed with UC in June 2006
Medications: Asacol 3 pills 3 x/day, Cortifoam at bedtime, Canansa in the morning
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis


mh53mike
Regular Member


Date Joined Aug 2008
Total Posts : 149
   Posted 9/7/2008 7:22 PM (GMT -6)   
During a flare i found that probiotics is kind of like peeing on a forest fire! It doesnt do much good...thats just me though. Right now the only probiotic i take is GNC's Naturla Brand Super Acidophilus. Oh and digestive enzyms.


26y old male med disharge veteran
 
Diagnosed with UC (lower proctitis) in 2004
Current daily treatment:
1000mg sup asacol
2400mg oral asacol
40mg prednisone
75mg azathioprine
20mg Nexum
 
Still 4-5 bloody, mucus bowel movents a day! Blah...


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 9/7/2008 7:46 PM (GMT -6)   
I don't think there's necessarily a particular probiotic to address urgency. Once you find the right probiotic formulation for you - and there are folks on this forum that have had success with different brands - your gut ecology will improve and all of your symptoms will begin to resolve.

If you don't notice at least some improvement within a month, you need to either try a different brand or you may need to back up and eliminate an overgrowth of bad gut flora that's keeping the probiotics from working.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 9/7/2008 8:12 PM (GMT -6)   
Yes I certainly wouldn't give up on probiotics all together just because you don't find it effective enough or at all...you just need to keep experimenting until you find what works for you and I'm sure there's something for everyone...although if you're eating a high abundance of junk food, you'll always have bacterial over-growth and have a harder time getting your gut flora balanced which in turn leads to exacerbation of symptoms, so it's not just a matter of taking a good probiotic and expecting that alone to do wonders, diet and even regular exercise factor in huge as well.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 9/18/2008 3:46 PM (GMT -6)   
I see Natrem Trinity has Gelatine, does anyone know a famous, potent probiotic that is 100% vegetarian?

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Mesalazine Suppository at night.


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 9/18/2008 3:50 PM (GMT -6)   
Wha is replette? Do we take it for a week and all is well?

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Mesalazine Suppository at night.


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 9/18/2008 5:30 PM (GMT -6)   
From what I've read, it is marketed to be used when you have to take antibiotics, so like for two weeks. My naturopathic doctor had me taking one-half a dose each day(although I misunderstood the first week and used a full dose)(he said he suggested one-half because of the cost) for two months, then he says he'll switch me to a pill which I expect to take forever. Some healthy people take probiotics daily just to help digestion.
It's about $35 for seven full doses. It's a powder to mix in water or anything else, comes in refrigerated packets, tastes good.
I also stopped the gluten at the same time, so I can't know for sure what worked, but I am doing great, better than I have in years.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering OFF prednisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, etc. diet which resolved flare. Also Replete probiotic, DGL (licorice root, slippery elm), Permeability Factors. Slow-release iron and B-12 shots for severe anemia.
Sept: Mild case of thrush in throat, prescribed antifungal mouthwash.


Lucky777
Regular Member


Date Joined Aug 2008
Total Posts : 128
   Posted 9/18/2008 7:10 PM (GMT -6)   
Probiotics are supposed to help urgency? I didn't think anything but perhaps anti-spasmatics helped with urgency. If I could get rid of my urgency (or as I call it immediacy) then I would be half tempted to just live out my life with blood and mucous perfectly fine.

It's the urgency that affects me the most. Keeps me from doing almost anything, and lends itself to the most embarrassing situations of my life (unrelentingly it seems). I take probiotics because I thought they helped my colon be healthier overall, but didn't know they were supposed to have an affect on urgency.

SO, if this conversation continues down the route of urgency, I hope someone can come up with the best way to "cork" the bum.
Sean - 31
Prednisone again for another 12 days, 25mg
UC Since April 2006, diagnosed 2007 (Flex-Sig)
4 x Liada (4 am)
175mg Azathioprine
2 x Imodium (on days where I have to leave the house)
Remicade infusion starting
1 x 1000mg Fish Oil Cap
Activia yogurt and SCD-like foods to see if I can make a change. Just got in my 4 day trial of Haldi.


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 9/18/2008 7:12 PM (GMT -6)   
I found that metamucil helped the best with urgency.
31 yr old female, currently pregnant. Due 1/09.
Diagnosed 2/29/08 with Mild Universal UC
I've had UC since 2000 but was in remission for most of those 8 years med free
Lialda Colazal & Asacol made symptoms worse, MUCH worse
Not taking any more meds for now. Trying a holistic approach.
Dare I say...REMISSION.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 9/18/2008 7:55 PM (GMT -6)   
Probiotics don't likely help with urgency specifically...I use probiotics and fibre supplements along with bee propolis and other natural anti-inflammitories and although I've improved with over all symptoms (espceically bleeding, lower back pain and BM frequency) urgency is still my #1 complaint even with using probiotics, fibre supplements and natural anti-inflammitories all on a daily basis.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


mommafreds
Regular Member


Date Joined Sep 2007
Total Posts : 41
   Posted 9/18/2008 10:27 PM (GMT -6)   
I take align and flora q. I switched to align as the doctor gave me samples. I think I did much better on flora q and since i am trying to get out of a flare I decided to take it again. It seems to have a different bacterial than the others. They make a generic now of flora Q. It is risaquad (the walmart pharmacist told me about it.) I have taken it for a few days and I think it was 33$ for 30. I am going to see a new GI doctor who is supposed to be one of the best in st louis for u.c. I plan on discussing these and others with him such as vsl#3. I will report what he says. Its hard to tell if it helps with urgency for me as I am getting better and I am not sure what is helping me or if its the combo of everything I am doing.
DIAGNOSED 2004 PANCOLITIS
CURRENT MEDS: PREDNISONE 20MG (DOWN FROM 40MG)DAILY
AZATHIOPRINE 100MG DAILY
ASACOL 400MG 4TABS THREE TIMES/DAY
PROBIOTICS: FLORA-Q AND ALIGN
ANTIDEPRESSANT: BUDIPRION 150MG DAILY
SUPER B COMPLEX WITH C VITAMIN DAILY
OSCAL WITH D TWICE DAILY


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 9/21/2008 9:30 PM (GMT -6)   
For urgency, try one-half an immodium, it will help without working so well you can't go when you need to.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering OFF prednisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, dairy-free (other sensitivities) etc. diet which resolved flare. Also Replete probiotic. Slow-release iron and B-12 shots for anemia.
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 9/22/2008 7:28 AM (GMT -6)   
Urgency is usually related to rectal inflammation, and usually most effectively treated with rectal mesalamine or steroids. Probiotics may decrease gassiness, increase the firmness of the stool and help prevent C. diff., but I've never heard anything about them helping urgency.
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5968
   Posted 9/22/2008 12:51 PM (GMT -6)   
Urgency is one of my problems too.  That, having to "go" five or six times a day (ten yesterday..bad day) and bleeding.  By urgency, I take it you mean pressure in the rectum.  I seem to have constant pressure.  Been taking probiotics, flaxseed oil capsules, calcium and multivitamin in addition to all my meds.  I haven't tried metamucil because fiber always sent my UC into a tailspin, but you think it would work?

beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 9/22/2008 1:32 PM (GMT -6)   
The only thing I've found to help with urgency is getting out of my flare! No probiotic has helped me with that particular issue, but they have benefitted me in other ways. Keep trying until you find the right one for you. You might ask your doctor for some help, although many docs out there aren't really up to speed on probiotics yet. Maybe you could help enlighten your doc, and that would benefit their other patients. My current doctor stays very up to date on UC treatments and he is able to explain how different brands help out. You can also try a google search. I once found a very useful site that listed many of the different strains of probiotic bacteria, and what they specifically help with.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06 - currently flaring
Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Prednisone 30mg


Winter
Regular Member


Date Joined Sep 2005
Total Posts : 210
   Posted 9/22/2008 1:58 PM (GMT -6)   
I went to my Dr on Thursday & she suggested Align probiotic. It is about $34 for a months supply. They come in a card with the days of the week to help you keep up with taking your medicine. I have only been taking it for 3 days now so can't report any changes yet.

Asacol 6 tablets twice daily
Remicade every 8 weeks
Folid Acid daily
Methotrexate 3 times a week
Iron supplements
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, July 16, 2018 1:16 PM (GMT -6)
There are a total of 2,982,052 posts in 326,959 threads.
View Active Threads


Who's Online
This forum has 161807 registered members. Please welcome our newest member, jjmcd123.
396 Guest(s), 14 Registered Member(s) are currently online.  Details
notsosicklygirl, Balladeer, mattamx, DonN, balingtwine, tickbite666, jjmcd123, Manny321, Serenity Now, RandyJoe, Hoagie, Missouri, sierraDon, InTheShop