Love these side effects

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Regular Member

Date Joined Aug 2008
Total Posts : 469
   Posted 9/7/2008 4:10 PM (GMT -6)   
I am waiting for my asacol to come in from medco.  I just looked up the side effects:
Acne; back or joint pain; constipation; diarrhea; dizziness; gas; general feeling of being unwell; hair loss; headache; heartburn; increased sensitivity to sunlight; loss of appetite; mild abdominal discomfort or pain; nausea; runny or stuffy nose; sneezing; vomiting.
Now, I think some of you know me well enough by now.  I try to look at the humerous side and try to keep a positive attitude.  I loved the "hair loss" part - I know where I can get hair you guys - I work for a hair replacement company!  Then I saw loss of appetite - oh goody I'll finish losing the weight I gained from quitting smoking.  Oh abdominal discomfort or pain, nausea, runny or stuffy nose sneezing?  Woohoo The best one? vomiting.  Now what more can I ask for?
I hope you all are having a wonderful Sunday - we do have many things to be thankful for!
Diagnosised 08/25/08
Currently Flaring - Lucky Me
Mega Probiotic
Multi Enzyme

Elite Member

Date Joined May 2003
Total Posts : 30999
   Posted 9/7/2008 4:37 PM (GMT -6)   
I've used Asacol for almost 20 hairloss.
Everything has reported side doen't mean we got them. As well, even the placebo has side them.

*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Veteran Member

Date Joined Jun 2008
Total Posts : 2865
   Posted 9/7/2008 4:58 PM (GMT -6)   

Gigi - the only way you can find out is by trying it.  I tried other Melasamine - including Rowasa and the side effects finally caught up with me BUT I am doing good and seem to be about 90% in remission - D stopped, bleeding stopped from all I can see - no bad cramping - more like normal!  I just had to stop the medication but that is just me - many here use Asacol and get great results.  I do believe the worse was the sweating and chills and maybe the nausea - cut back on doseage but didn't help but it sure does for some.  Give it a try - don't talk yourself into side effects.  For one thing - you are a LOT younger than I am!


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 1X3- discontinued for now
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa nightly - discontinued for now

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 9/7/2008 5:12 PM (GMT -6)   

It's true that all drugs have side effects. Here are some commonly used drugs.

Side effects of aspirin:

  • nausea
  • vomiting
  • stomach pain
  • heartburn
  • hives
  • rash
  • swelling of the eyes, face, lips, tongue, or throat
  • wheezing or difficulty breathing
  • hoarseness
  • fast heartbeat
  • fast breathing
  • cold, clammy skin
  • ringing in the ears
  • loss of hearing
  • GI bleeding

Side effects of Tylenol:

  • wheezing or difficulty breathing
  • liver damage 
  • easy bleeding or bruising
    Side effects of oral contraceptives:
  • weight gain
  • nausea
  • breast tenderness
  • headaches
  • mood changes
  • blood clots
  • We always have to weigh the potential benefits against the potential bad effects.

    Judy - Southern US 
    Moderate to severe left-sided UC (21 cm) diagnosed 2001.
    Avascular necrosis in both shoulders is my "forever" gift from Entocort.
    Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
    Co-Moderator UC Forum
    Please remember to consult your health care provider when making health-related decisions.

    Veteran Member

    Date Joined Mar 2008
    Total Posts : 2855
       Posted 9/7/2008 5:20 PM (GMT -6)   
    I participated in the study of this drug before it was made available, and they took note of everything I experienced during that time, even things mostly likely not related to taking the drug, or obviously caused by the disease and not the drug (diarrhea? duh), all which ends up listed as side effects. So take the list with a grain of salt.
    I have tons of thick hair and don't think I have any side effects (but after 20 years, what would normal feel like?). I know it worked remarkably well and saved me from surgery back in the 1980's.
    49 year old female, diagnosed UC/pancolitis 1985, no surgery but much suffering.
    Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
    Currently tapering off presnisone from lingering flare;
    August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, etc. diet which resolved flare. Also Replete probiotic, DGL (licorice root, slippery elm), Permeability Factors. Slow-release iron and B-12 shots for severe anemia.

    potty girl
    Veteran Member

    Date Joined Dec 2006
    Total Posts : 835
       Posted 9/7/2008 6:46 PM (GMT -6)   
    I do have the hair lose but luckily new hair grows back in and I had lots of it to begin with. But so far it keeps me feeling pretty good most of the time so I wouldnt care if I went bald its only hair. And I dont have to take any of the other drugs, that probably have worse side effects. But like they all said everything has side effects. But sometimes the cure can be worse then the disease.

    synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
    nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
    carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,

    lil slowpoke
    Regular Member

    Date Joined Sep 2006
    Total Posts : 290
       Posted 9/7/2008 7:00 PM (GMT -6)   
    Half of those symptons can be from the UC! I had some heartburn from it, but it's pretty well tolerated by most people. I try to be positive, too, that's why I spell my name this way at healingwell. Merry
    uc since feb '05
    colazol 9 day, calcium, multivitamin, fishoil
    atenolol, bc pills,( for migraine relief )
    back on canasa
    stonyfield farm yogurt

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