UC and Endometriosis

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Regular Member

Date Joined Sep 2008
Total Posts : 24
   Posted 9/7/2008 9:59 PM (GMT -6)   
I am new to the group, and happy to find it.  I was diagnosed with a mild case of UC in March 2008, after I had a colonoscopy to see if endometriosis had penetrated my bowel.  It had not, but instead I came away with a shiny new disease: UC.  I take 3 Asacol (400mg) two times a day, and have been feeling good until about 3 weeks ago, when I started having blood, mucus, tenesmus, frequency, urgency, etc.
Originally I thought all of that was due to my bowel endo; I know I have adhesions on the outside of my bowel and elsewhere, and that general region (also on my left side, where my one remaining ovary is stuck to everything else courtesy of the endo and adhesions) is generally gummed up.  Because of the bowel endo, I have had a long history of bowel symptoms associated with my periods.  But after reading through some of the messages on this forum, I think this is actually a UC flare.
My question is: does anyone else have *both* UC and endo, especially endo on the bowel?  If so, how can you tell what is causing your symptoms?  Any good ideas for managing them?  I've worked with acupuncturist and nutritionist (but will go back again for more specific goal of managing UC).  Both endo and UC, as I understand it, are diseases related to the immune system.  Does anyone else have any insight into these dual problems?

Also, does a UC flare make your back sore?

Thanks in advance!

Elite Member

Date Joined May 2003
Total Posts : 30993
   Posted 9/8/2008 2:36 AM (GMT -6)   
Hi..welcome to the forum!

I was diagnosed with endo, but had a total hysterectomy at age 38. Never a happier day.

From the literature, they consider endo a secondary autoimmune disorder...who knows, with hormone fluctuations, what's implanted wherever, it'll react. If it's causing any bowel symptoms, it could very well exacerbate or trigger UC flares.

UC flares as well as endo will cause pain in the back.

I would suggest you start rectal meds to deal with the inflammation at that end...consider that UC starts there and no matter how high the extent of your UC, it'll be the last place to heal. Start them sooner than later.

It's the chicken or the egg....

I didn't know I had endo until I had tubal ligation 3 years after I was diagnosed with UC. I didn't even find out I had endo until the first appointment with the doctor when I commented that after the surgery it was the only pain-free period I had in my entire life. His response was "oh, well that was probably because I had inadvertently burst the endometrial cyst on your ovary". Endometriosis??? I was shocked.

I had a year of hell periods and bladder problems after that...leading me to another gyno, a urologist (suspected interstitial cyctitis) and ultimately had the hysterectomy a year later. I never regretted the decision.

I don't think accupuncture will help your UC directly, but it will help with what "it" does and ultimately you'll feel/cope better overall. The less stressors you have, the easier it might be for you to deal with UC.


*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 9/8/2008 2:07:28 AM (GMT-6)

Regular Member

Date Joined Jul 2008
Total Posts : 94
   Posted 9/8/2008 10:52 AM (GMT -6)   
I had endometriosis that finally ended up in a hysterectomy at the age of 34. I felt absolutely GREAT for about 3 years and then became sick as a dog, ended up I had UC. Not sure if there is any link between them but i did end up with both.
Diagnosed with UC 3/2008
Currently trying to taper off of Prednisone
Entocort 9mg daily

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