Sara14-- Online citation RE use of steroid enemas

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Old Hat
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Date Joined Feb 2007
Total Posts : 5182
   Posted 9/8/2008 8:25 AM (GMT -6)   
Last week you asked me to recommend a source you could show your gastro at next appointment. Suggest you have a look at v. 4 of Salix Pharmaceuticals IBD patient newsletter on their Website.  cool  It was written by a leading subspecialist gastro (Kornbluth at Mt. Sinai in NYC) who provides a chart listing what meds are commonly used for different degrees of inflammation. He put rectal corticosteroids in the box for "mild" inflammation, below 5-ASAs-- meaning that they are a recognized option for that category of UC when 5-ASAs don't do enough. Hope this helps your case! Definitely keep us posted. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

kops2da
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Date Joined Jun 2008
Total Posts : 2865
   Posted 9/8/2008 8:51 AM (GMT -6)   

Thanks so much.  I am one of those looking to try something beyond the 5-ASA as I am apparently sensitive to Colazal and Rowasa.  I checked the article out and looks like Rectal corticosteroids may be help to me.  Before I had to stop the other meds I seem to be almost in remission.  Still, after over a week I don't have blood, etc. but still having some discomfort, sweating, nausea and indigestion.  I see the NP on Friday.  I wonder if I could use the corticosteroids without side effects.  I will see what the doc says.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 1X3- discontinued for now
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa nightly - discontinued for now
 
 
 
 
 
 


Old Hat
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Date Joined Feb 2007
Total Posts : 5182
   Posted 9/8/2008 10:01 AM (GMT -6)   
Sodbuster19 wrote recently in another thread that his doctor gave him steroid suppositories trying to clear up the end of a flare & they are working well & quickly for him. / Old Hat

quincy
Elite Member


Date Joined May 2003
Total Posts : 30611
   Posted 9/8/2008 10:42 AM (GMT -6)   
Elaine..were you not using cortifoam already?

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4236
   Posted 9/8/2008 11:13 AM (GMT -6)   
Thanks so much, Old Hat! I really appreciate you taking the time to find this for me.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa nightly; Canasa weekly; Viactiv; Metamucil wafers; multivitamin


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 9/8/2008 11:26 AM (GMT -6)   

Although the article wasn't hard to find, here's a link to make it super easy :)

http://www.salix.com/gastroenterology-resource/patient/newsletter/vol4/index.aspx

Great article!  Thanks Old Hat for the tip.


Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission?!?!?
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08:  Next infusion: 10/07/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/8/2008 1:39 PM (GMT -6)   

quincy --I was using Proctofoam which has less steroids, I understand.  My research tells me that it is for hemmroids mostly and anal area.  It agreed with me but was not stopping the bleeding and the doctor thought Rowasa would work better and go up further. 

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 1X3- discontinued for now
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa nightly - discontinued for now
 
 
 
 
 
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4236
   Posted 9/8/2008 2:14 PM (GMT -6)   
Is there a difference between Proctofoam and Cortifoam?

Thanks for the link, dakotagirl.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa nightly; Canasa weekly; Viactiv; Metamucil wafers; multivitamin


potato
Regular Member


Date Joined Jun 2008
Total Posts : 281
   Posted 9/8/2008 2:44 PM (GMT -6)   

This is a good article.  As a side note, I liked that he mentioned that occasional bleeding might not be enough to warrant a call to the doctor.  I even had bleeding occasionally even when I was on prednisone, but not consistently.

I've been using generic hyrocortisone enema for a little over a month, for a flare.  I started with using it am and pm.  It improved my flare I'd say about 50% within the first couple of days and the bleeding stopped but major D hung on.  In the past couple of weeks, that improved along with decrease in urges and I've been working at tapering it, but the occasional bleeding slowed my progress. 

After reading this article, I may give try the every other day approach sooner... or, not use the entire bottle.  I keep trying to incorporate Rowasa, but it hasn't helped much and I may be sensitive to it.

I hope the steriod enema works for you, Sara.   

 


Potato...  Female, 58, dx mild left sided ulcerative colitis 11/07
asacol 3 3x a day  cortenema (generic) am & pm Rowasa every other day  am
culturelle, benefiber wafers  generic acidophilus, metamucil wafers
children's vitamin, Vitamin E 400 mg
omeprazole 2x a day
oxazepam when needed, lomotil or ImodiumAD (but not in the same day)
 
 
 
 
 
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 9/8/2008 3:26 PM (GMT -6)   
Yes, there is a difference between Proctofoam & Cortifoam. The 1st is 1% steroid, the 2nd is 10% steroid. / Old Hat

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4236
   Posted 9/8/2008 5:26 PM (GMT -6)   
Thanks, Old Hat and potato.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa nightly; Canasa weekly; Viactiv; Metamucil wafers; multivitamin


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 9/9/2008 8:17 AM (GMT -6)   
You're very welcome, Sara14! I believe that more can be done (safely!) to get you to remission-- a bit of tweaking with meds & maybe finding an unsuspected dietary irritant or two. AND MANY THANKS to DakotaGirl for posting the Salix link!!!!! Those IBD patient newsletters have lots of useful info. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/9/2008 8:45 AM (GMT -6)   

Question about Rectal corticosteroids before I see my NP Friday.

Does this amount of rectal steroids cause any side effects like the pills?  I have a cornea disease and chronic dry eye which can be made worse by prednisone - any experience with that out there?

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
Colazal 1X3- discontinued for now
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Starting Rowasa nightly - discontinued for now
 
 
 
 
 
 

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