Hi....yes, I have PSC diagnosed via MRCP (I refused the ERCP), but markers lean towards PBC (primary billiary cirrhosis)...mine is in early stages, with liver enzymes in the normal range now thanks to the URSO. My UC is mild, limited at this time to the lower rectum...treated with Asacol and Salofalk retention enemas. Maintaining the status quo.
How were you diagnosed with PSC? through MRCP or ERCP?
In your situation, I'd do as much research as possible. Have you seen a liver specialist?
I don't think my experience will be as helpful as those suggested by Sue. Another place you should check out is http://www.pscpartners.org/
Lots of great info in the newsletters.
Somehow I tend to believe that the PSC does better if the colon is behaving nicely....maybe having your colon removed will be a good thing overall. Definitely do the research on that aspect. I know that if one has a liver transplant, the UC can get worse...chicken or the egg...but something to consider for your future.
I'm sad to hear you have PSC. I hope you get the support and answers to your questions.
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!
Post Edited (quincy) : 9/8/2008 11:57:56 PM (GMT-6)