I saw the doc early this evening. We're both puzzled as to why this is not resolving itself while I am on so many meds. He wants to do a scope - and since it's been over 5 years since my last, I agreed. BUT it's about
5 weeks away.
I did ask about
the steroid enemas. He gave me a script
for them. Said it wouldn't hurt to try them - but did say that we're not sure where the inflammation is and if it's all over the enemas aren't going to help much. E's won't be in until Friday - and hopefully the pharmacy will be
open and not have its employees on the run from Ike. My fingers are crossed for only rectal inflammation - but my "gut" tells me it's more.
I know for a "normal" flare that inflammation usually starts in the rectum. For a flare like this (antibiotic induced), can the inflammation start anywhere???
I wish there would have been an alternative for those dang antibiotics! The pain and inflammation was SO bad... There was no waiting it out :( I did not have a root canal - yet. I saw another dentist and she thought it might have been a bite problem and polished the crown more to adjust the bite. This then showed (a few days later) that another filling the other dentist had done was hitting. She fixed that too. But I'm still not out of the mouth pain yet - I have an old metal filling that is deteriorating and might be hitting! All on one side at least - so I can chew on the other side. But before we play with that old filling, I'm going to wait a week and see if my poor jaw will heal from the other issues. She mentioned it was like a bruise and takes time to heal.
Doc also mentioned switching from Asacol to Lialda when I'm done with my Asacol. Surprisingly he brought up probiotics as well. I said that I'd been on them for a couple of years and doubled my dose while on antibiotics in the hope of avoiding exactly what happened.
Right now I'm just hanging on for the ride - there is far too much happening in life right now! I'll hang on tight and hope not to go flying ;-)
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Asacol 12 per day, Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08: Next infusion: 10/07/08
Last Prednisone dose: 7/15/08