Do you ever feel?

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Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 9/9/2008 6:12 PM (GMT -6)   
I am still new to this disease diagnosised 8/25/08, and I am ashamed to say, I am already sick and tired of meds.  I've never had to take meds on a regular basis and this is getting neausiating.  It's time for my canasa suppository - I don't want to take it because I am already tired of sticking something up my bum every evenings.  Of course I will take it because it's suppose to help.  Just am sick of this mess already.  Gosh, it's terrible being an instant gratification gal and not being able to get it.
 
Gigi1227
 
Canasa
Asacol
Psyllium
Multi Enzyme
Mega Probiotic

Lucky777
Regular Member


Date Joined Aug 2008
Total Posts : 128
   Posted 9/9/2008 6:31 PM (GMT -6)   
I absolutely hate the arsenal of pills I take each morning. SO I feel ya.

But I take them, just as you do, for the hopes that I can eventually be back to normal one day. Patience is kicking my butt though, so I understand.
Sean - 31
Prednisone again for another 12 days, 25mg
UC Since April 2006, diagnosed 2007 (Flex-Sig)
4 x Liada (4 am)
175mg Azathioprine
2 x Imodium (on days where I have to leave the house)
Remicade infusion starting
1 x 1000mg Fish Oil Cap
Activia yogurt and SCD-like foods to see if I can make a change. Just got in my 4 day trial of Haldi.


hamley
Regular Member


Date Joined Sep 2008
Total Posts : 52
   Posted 9/9/2008 6:47 PM (GMT -6)   
I feel you on the rectal meds. Who wants to stick something in their bottom every night?! And I live in a dorm! I always think about the other kids partying and doing normal things at night, while I"m sitting in my room playing with bum medicine and fighting to stay awake! What a life.
Female- almost 21!
Diagnosed 9/1/08
Rowasa 4g
Hyoscyamine .125mg
Percocet 5-325 mg


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 9/9/2008 6:52 PM (GMT -6)   
Yes, Gigi, I absolutely DO feel. And the uncertainty is so hard: will this treatment work? will this make things worse? will I ever feel ok in the mornings again? will I ever eat anything other than bananas and chicken? (And my god, I loathe bananas.)
40 years old and female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
UNTIL 9/4/08: Canasa 1000 mg suppositories nightly, 25 mg hydrocortisone suppositories in a.m.
CURRENTLY: Proctofoam at bedtime
Effexor 37.5, Clonazepam .5 mg (or more) and Trazodone 50 mg for sleep
2.5 mg methimazole for thyroid
Recently started probiotic (Garden of Life Primal Defense Ultra) and acupuncture
Osteopenia (and I haven't even taken steroids!)


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 9/9/2008 6:54 PM (GMT -6)   
Yeah, I'm not a fan of popping stuff up my butt every night. I remember last semester, people would be out in the dorm's hallways talking and whatnot, and I would be going to bed at midnight after sticking meds up my butt.
Female, Age 19
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (3 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4236
   Posted 9/9/2008 7:16 PM (GMT -6)   
I really feel for those of you who are in college and have this. I am so glad I didn't get this until after I graduated. I hate taking my meds every day, too, but you do get used to it. Every once in a while, I'll get really annoyed by it for a day or two, but mostly it's just habit now and I don't think about it too much.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa nightly; Canasa weekly; Viactiv; Metamucil wafers; multivitamin


quincy
Elite Member


Date Joined May 2003
Total Posts : 30611
   Posted 9/10/2008 12:31 AM (GMT -6)   
Definitely been there, but I can tell you that after nearly 20 years, it's been worth taking the meds.

You'll have to get over the rebellious stage, for it'll hurt you the most.
Taking a day or two here and there to not take meds is fine, but eventually it'll catch up.

Nothing good about having UC or taking meds....literally a pain in the arse.

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 9/10/2008 5:25 AM (GMT -6)   
Yes, I too feel for those of you that are so young and in college - that has got to be tough. And you guys are right, of course I do take my meds. LOL yesterday I thought did I take all I am suppose to take? I am going grocery shopping today so I plan on getting a "pill" box to help keep me organized. Oh my mega probiotic says I need to keep it in fridge. Do you all keep yours in fridge? Do you think it would be okay if I put them in my Pill box to take w/ me to work and they were out of fridge from like 6:30 a.m. to noon? Hard to remember to get the bottle out of fridge at work to take home w/ me.

Gigi1227

Diagnosised 8/25/08
Canasa
Asacol
Mega Probiotic
Multi Enzyme
Psyllium

Today starting on nico patch

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/10/2008 6:17 AM (GMT -6)   
I take a total of 22-24 pills a day - 9 Colazal, 1-2 6mp, 1 Pro-Bio, 1 Prilosec, 1 Forvia, 1 Biotin, 3 Neurontin, 1 Skelaxin, 1 Singulair, 1 Zyrtec and 2 Tylonel Simply Sleep. Oh and on occasion, Norvasc. I am a pro when it comes to swallowing more then 1 at a time but lordy do I HATE taking them. I hate having to rely on them to make me feel somewhat normal. I hate putting all these things in my body. But I have no choice - with out these meds, I would be a painful mess crying in the corner. It's a sad sad thing to have to take all these medications for sure. But I look on the bright side - it could always be so much more worse for someone who suffer worse things. And yes, a pill organizer is a godsend for me. Without it, I would just stare at the cupboard like an idiot thinking ummm ok which one???? :)


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
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