Checking In - long hiatus

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

:)
Regular Member


Date Joined Feb 2008
Total Posts : 182
   Posted 9/10/2008 12:34 AM (GMT -6)   
Hi All,
 
It's been a loong while since I've been here last. That's a good sign. Thank G-d, I've been feeling well and normal and almost forget that there's a hibernating monster with a mind of it's own in my gut. I'm reminded 2x daily when I take the meds.
Well, all's been quite on this front since I'd been diagnosed about 21 months ago. Until my Dr. decreased my daily Asacol dose to 6 a day, down from 8 a day, about 4 months ago. Well, a month later, the sleeping giant 'rear'ed its head and started its grumbling. With some Rowasa enemas for 2 weeks and then maxing out the Asacol dosage, to 12 a day, things quited down, literally. Things have been quiet for a month now. I hope to decrease soon and stay well and maintain equilibrium with this.
 
My hunch is that we decreased the Asacol too much for it to do its job.
 
On the side, I've never felt better since taking up walking/jogging/running at intervals. I'm still a beginner/intermediate, yet I feel great all around and feel more in shape and better physically for it. I'm human and fight the same battles as everyone else to eat right and muster the energy to work out. My efforts at trying to eat right and excersize right works sometimes, though fails at others. I find that it's all a process and it has a snowball effect. Excersizing makes me want to eat right and I get energized to eat right by thinking about how much I've put in towards my goal... I also found that drinking a significant amount of water a day REALLY clears out my digestive system, to the extent that if I DONT drink enough, boy, do I feel it.
 
I really want to thank all the moderators and people involved in this forum. I've gained alot of insight, support and comraderie from this community. I knew there was always a place to turn for advice, opinions, EXPERIENCE, support and humor. Especially since the dr.'s don't provide much of that stuff.
I'm quite busy with work and graduate school now, so I won't have time to check back here often.
Keep up the good work!
 
:)
Dx: Dec. 2006 with UC
F, 23, NYC
Thank G-d - Prednisone then 6MP, Rowasa and Asacol brought remission
Now Asacol 4tabs 2x a day.
Muiltivitamin, Iron and Folic Acid supplements


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 9/10/2008 12:42 AM (GMT -6)   
Nice to see you again :), I'm happy for you that you don't have to be here and certainly hope things continue to go well from here on out...exercise is a wonderful thing, I love it and it's helped me immensely so I know what you mean, same with the water thing.

Here's wishing you continued success and a joyful healthy life.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


:)
Regular Member


Date Joined Feb 2008
Total Posts : 182
   Posted 9/10/2008 12:56 AM (GMT -6)   
Thank you for your kind words pb4 and the same good wishes to YOU!
Dx: Dec. 2006 with UC
F, 23, NYC
Thank G-d - Prednisone then 6MP, Rowasa and Asacol brought remission
Now Asacol 4tabs 2x a day.
Muiltivitamin, Iron and Folic Acid supplements


quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 9/10/2008 1:05 AM (GMT -6)   
Great news!! Thanks for popping in for an update!

Curious..is your UC throughout your colon? You might not have had to increase if you started the Rowasa earlier.

Both should be tapered, however..the Asacol by one pill a month. The Rowasa should be tapered as well to a maintenance dosage.

Be well,
quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5191
   Posted 9/10/2008 12:03 PM (GMT -6)   
You're getting to be a UC veteran-- catching flares early. Way to go! Good luck with grad school; what are you studying? Hope you can update us in the future as time permits. It will be a good inspiration for younger forum members hoping to get their normal lives/interests back. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

:)
Regular Member


Date Joined Feb 2008
Total Posts : 182
   Posted 9/16/2008 1:12 PM (GMT -6)   
Quincy - my doctor has described it as pancolitis and sometimes left sided. Whats the connection between the Rowasa and pancolitis?
I used th Rowasa for a week. And next week, i will discuss with my dr. about decreasing the Asacol.

Old Hat - I'm studying School-Community Psychology. Thank you for your trademark insightful/encouraging comments. Thanks for the invitation, maybe i will check back in more often...

Take care!
Dx: Dec. 2006 with UC
F, 23, NYC
Thank G-d - Prednisone then 6MP, Rowasa and Asacol brought remission
Now Asacol 4tabs 2x a day.
Muiltivitamin, Iron and Folic Acid supplements


quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 9/16/2008 1:20 PM (GMT -6)   
Hi..My point is that if your UC is mostly left-sided at this time, keep a maintained dosage to keep the areas above the sigmoid nice and calm. Something's working from pancolitis to limited during flares...so don't mess too much with that. 8 might be the magic number for you considering you have a large area to keep quiet.

You should also taper the Rowasa and then keep on them maybe twice weekly or once weekly. That will keep the lower inflammation in check and your flares may only be limited to the rectum.

A good price to pay for keeping your colon quiet as long as possible.

If you do increase to 12...taper by one a week or every two weeks if you're tapering the enemas....to 8

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, September 23, 2018 2:14 AM (GMT -6)
There are a total of 3,005,801 posts in 329,264 threads.
View Active Threads


Who's Online
This forum has 161804 registered members. Please welcome our newest member, FADE IN:.
209 Guest(s), 6 Registered Member(s) are currently online.  Details
Sarge 83, FADE IN:, JOKERWILD477, CatLady18, fiddlecanoe, colitisresearch