Ahhgh, back pain

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CheesePuff
Regular Member


Date Joined Oct 2007
Total Posts : 92
   Posted 9/10/2008 6:24 AM (GMT -6)   

I posted about this before, but still struggling with the pain, so hoping you could give me some help with what to ask my doc on Friday, when I have my appointment.

  Basically, I have had really bad back ache since April this year. When I complained this to my GB, all he asked me to do is take painkillers without even looking at my back….

 

Anyhow, the pain is between my shoulder blades and wakes me up every night approx 2 – 4 am, without a fail. The pain is so severe that it feels like there is a metal band around my chest and breathing increases the sharpness. I cannot stay in bed, but once I’m up, it eases off quite a bit and I can go about my chores as normal. Also, I seem to have lost some of my rotating mobility, ie. cannot turn my back / shoulders as far as before…

 

Any idea what this could be? I have been to massage therapy with no help. Have been to Physio, but it doesn’t seem to help either….

 

Apologies for the long post, but I am at the end of my tether and soo tired as cannot get proper sleep and just don’t want my GB to fob me off again…


UC since 1995, PanColitis diagnosed May 2007
100 mg Imuran 9th month TTC
4 * 800mg Asacol
Iron Supplement
400 mg Folic acid
Multi vitamin supplement
Nearly in remission, only slight cramping


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/10/2008 7:27 AM (GMT -6)   
I recommend you go have an MRI of your neck. I had the exact same symptoms as you. It felt like a knife jabbing me in between the shoulder blades and I also had that band like feeling around my ribs in the back. It turned out that I have 1 bulging disc and 1 slight herniated disc in my C5/C6 and C6/C7 vertebrae. If you do have disc problems, inflammation can press on the nerves which in turn can cause the muscles to contract. Muscles are a tricky thing to get out of spasms and usually requires one, two,three or four of the following: rest, heat or cold, muscle relaxers and exercise. Breathing also aggravated mine. I'm not sure if this is what you have but it's an idea to persue. It took my doctors 4 years to finally diagnose my problems. I went thru the whole gamet of testing including physical therapy, muscle relaxers, pain managment, rheumatologists, EMG's, MRI's (but at the time, not of my neck), bloodwork, xrays and finally a neurologist. It was the neurologist that was able to find my disc problems.
 
Edited to add:  I now have had a serious of 3 epidural injections in my neck and the relief is astounding.  I am also on a nerve pain medication as well as a muscle relaxer.  I still have periods of sharp shooting pain but not nearly as bad as it was.  I would wake up in the mornings only to feel like I got hit and ran over 10 times by a semi truck before the epidural injections.
 
But you need to persue this matter - no need to be in pain when you don't have to.


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 

Post Edited (Red_34) : 9/10/2008 6:31:53 AM (GMT-6)


lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 9/10/2008 7:39 AM (GMT -6)   
I also recommend the MRI, but if it shows nothing I would try acupuncture. I had a back ache (not as severe as yours) and acupuncture is the only thing that helped.
diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female


CheesePuff
Regular Member


Date Joined Oct 2007
Total Posts : 92
   Posted 9/10/2008 9:52 AM (GMT -6)   
Thanks. I'll try to get a referral from my doc to get my back X-rayed and take it from there. It's frustrating that here in Ireland you have long waiting lists for healthcare, even though one has private health insurance.... Especially if you have to get any type of scans done. Last time I was ona waiting list for 6 months to get my gallstones diagnosed...
UC since 1995, PanColitis diagnosed May 2007
100 mg Imuran 9th month TTC
4 * 800mg Asacol
Iron Supplement
400 mg Folic acid
Multi vitamin supplement
Nearly in remission, only slight cramping


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 9/10/2008 2:47 PM (GMT -6)   
I thought of arthritis, which I have experienced temporary bouts of, related to the UC. I had it in my rib cage, similar symptoms and it also hurt to breathe. Meds cleared it up pretty easily. So keep that on the radar.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering OFF prednisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, etc. diet which resolved flare. Also Replete probiotic, DGL (licorice root, slippery elm), Permeability Factors. Slow-release iron and B-12 shots for severe anemia.
 


CheesePuff
Regular Member


Date Joined Oct 2007
Total Posts : 92
   Posted 9/15/2008 5:51 AM (GMT -6)   
Hi Guys,

Just a quick update and another rant! Had my appointment with the GP on Friday. First of all he was trying to dismiss me again with poor posture & standard muscle pain and was trying to send me off with again more painkillers and suggested I start swimming! This time I totally broke down, I mean totally. Ended up sobbing my heart out, how embarrassing, but I suppose it was worthwhile, as he finally took me seriously.

He ordered blood tests for the Arthritis level (can’t remember what that is called, HB something) and referral to the rheumatologist once the blood test results are back. Also, once I showed him the rash which I have on my both shins (red itchy rash) and the dry flaky skin under my hairline, he admitted that I’m pre-disposed to Arthritis because of UC and the rash could be another symptom. So I left the surgery with more painkillers, cream for my rash and shampoo for my hairline 

Does anyone have Arthritis alongside with the UC and what the symptoms are? Also, what are the treatments options?

Thanks again, I don’t know what I’d do without this board…
UC since 1995, PanColitis diagnosed May 2007
Multiple Gallstones
100 mg Imuran 9th month TTC
4 * 800mg Asacol
Iron Supplement
400 mg Folic acid
Multi vitamin supplement
Nearly in remission, only slight cramping


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 9/15/2008 6:32 AM (GMT -6)   
Scando - I had arthritis before I was diagnosised w/ UC. I started flaring last May and my arthritis is up w/ the UC. Some mornings I wake up and can't open my hands - my knees and ankles hurt - rest of my body feels it as well, but those are the main places.

Hope this helps!

Gigi1227
Diagnosised 8/25/08 GRRR
Currently Flaring GRRR
 
Canasa
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
 
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/15/2008 7:12 AM (GMT -6)   
If you were to be diagnosed with arthritis, it depends on which type you have as to what the treatment would be. I believe your doc tested you for HBLA-27 (I THINK this is the right combo of letters! lol) which if it comes out positive, it can mean that you have AS which is a common form of arthritis with UC. It affects mostly the back. I was tested for that but mine came back negative. I HOPE this is not what you have because I have heard that it can get very painful. But at least the doc is taking you seriously now and I hope you find some answers soon but don't give up. YOU know that something is wrong and sometimes it is up to YOU to find the cause of it.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


CheesePuff
Regular Member


Date Joined Oct 2007
Total Posts : 92
   Posted 9/15/2008 7:59 AM (GMT -6)   
Thanks Red ! It's just so frustraing, when you have to fight for everything here. My GP is extremely nice and knows my UC well and is very symphatetic to that, but if I have any other issues, he belittles them, as my UC is the "big one" as he describes. He even onec told me that many people wuoldn't even work anymore... Thanks for your support, it's sometimes more than I get from my hubby

I will get the results next week, let's just ho[pe they come back negative!
UC since 1995, PanColitis diagnosed May 2007
Multiple Gallstones
100 mg Imuran 9th month TTC
4 * 800mg Asacol
Iron Supplement
400 mg Folic acid
Multi vitamin supplement
Nearly in remission, only slight cramping


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/15/2008 8:49 AM (GMT -6)   
I had a very good doc like that. He was great but he couldn't see outside the box of Uc. So I switched to another doctor and I am glad I did. The doc I am with now, her mother had UC (she had a colostomy) so she knows what other little goodies come with having UC. She is gem that I will not be giving up anytime soon! Sometimes yes we do have to fight for what we feel is wrong with us. Doctors don't know it all and sometimes it's up to us to help them connect the dots.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 9/15/2008 11:46 AM (GMT -6)   
Arthritis with UC happens and can be temporary. I was prescribed Voltaren for the arthritis I felt in my rib cage. It worked quickly and I didn't have to take it very long. Voltaren, like celebrex, can have bad side effects.
I hope you get some relief
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering OFF prednisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, etc. diet which resolved flare. Also Replete probiotic, DGL (licorice root, slippery elm), Permeability Factors. Slow-release iron and B-12 shots for severe anemia.
Sept: Mild case of thrush in throat, prescribed antifungal mouthwash.

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