I seen my GI yesterday for my check up. Right now, I am in sort of limbo with my Uc symptoms. I will go from having a few really good days of solid bms, no blood and only once a day to having a bad couple days with D x's 4 a day with a bit of blood. I have been yo-yo'ing like this for quite a while. My GI had me do another blood test because he said that I am just below the toxic level for 6mp and wants to keep an eye on it. My body is barely metabolizing 6mp and the risk of toxicity won't allow me to increase my dose. So if I have to stop 6mp or lower my dosage, I can guarantee that I will flare because I am barely holding it together right now. The doc seemed happy that for the most part I have no or very little bleeding and that I have managed to stay off Colocorts for about
2 months. I asked him when do you say enough is enough and consider surgery. He felt that I wasn't quite ready for surgery yet and mentioned that he has a few more tricks up his sleeve in which I quickly replied that I will NOT do Remicade. He sort of wrinkled his nose and asked why???? He also told me that by having surgery that I would be trading one set of problems for another and I already know that but at least I will be free of this frustrating disease. He seems to be anti-surgery unless there is no other alternative. And I like his conservative approach however he is not the one that has to deal with the daily frustrations that this disease can make. So I am going to give it a while to see what happens and if I continue to flare or yo-yo or if the 6mp turns toxic, I plan on going to another doc for a second opinion. I really hate to do that since I have been with my doc for 14 years. But I have to look out for my best interest both physical and emotional.
Oh, btw I brought up my abdominal bloating and pain. He felt that it is female organ related so off I go again to see the GYN.