can I get a shrek update?????

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philly-fan
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 9/11/2008 9:16 PM (GMT -6)   
Hi everyone, I've been in remission for a year and only peek in occasionally, but I haven't seen anything on Shrek. Does anyone know how he made out with his surgery??
 
Steve


Asacol 1200mg-3x a day

Probiotic=metagenics ultra flora plus DF

Hydrocortizone when needed

Off the prednesone since September 8th (omg)


Heart meds

Lipitor,Toprol, aspirin 81

synthroid


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 9/12/2008 11:51 AM (GMT -6)   
He last updated us around the middle of August. One of the doctors treating him had just given approval for him to resume Remicade. We're all hoping to hear from him again soon! / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

schrek-chewbacca hunk
Veteran Member


Date Joined Jun 2005
Total Posts : 2666
   Posted 9/15/2008 8:52 AM (GMT -6)   

Thank you for asking about me.  I am among the living and doing a bit better day by day.  It hasn't been an easy trial though - I am grateful for seeming to come out of this mostly intact.  Colitis wise, I just had my second Remicade last week - and it hasn't kicked in yet.  I am hoping that three times is the charm as it was the first time pre leg/foot surgery.  I was off remi for eight months and the colitis raged back pretty soon - a comment that remi i short lived when stopped, another doctor had also just mentioned last week.  As a stop gap, I am using tincture of opium to stop the D when it gets intolerable.  Interesting that a very simple diet seems to suit me best right now - and also portion size has direct correlation between my symptoms and feeling poorly. 

Charkot disease wise I am a physical therapy monster trying desparately twice a week to make this body/legs/feet do what they are supposed to.  I am still walking like frankenstein - and I just got my new support braces/shoes which complete the look - But as I said, I am very fortunate to be walking with my own legs nomatter how limpy.

I go home on the 27th of this month from my nursing home - and although the stairs (three flights) will present a challenge - I will think of it as more physical therapy.  I am going to wear one of those emergency buttons just in case of a fall, but again, I am not bitter about that.

I am going home to my wife who will no longer have to come to this home everyday ater work - bless her.  She will still have to take on the lionshare of cooking and housekeeper - my chores and loves pre surgery - but I am just excited to be in our own little home here in DC and in Pennsylvania (one flight of stairs there).  Just being together again will make my heart sing and improve my health I believe.  Not to mention my beloved cat, exotic goldfish (one died while I was away-boo), my bird, turtle - and all my wildbirds I feed both in PA and DC.

I have lots of little projects to take on when I get home, photograph scanning, recipes that need to be organized properly, and try a little fall gardening - if I can.

I do have to go back to the hospital for an outpatient surgery the first week of November to have a small lump removed from my right abdomen.  The doctors think it is a fibrous or fatty tissue disconnected from absilutely everything and just above the abdominal wall.  Although they think it's nothing - we are going to have it removed and biopsied earlier rather than later.  November is when the surgeon is next available.  I am not overly concerned about it - as two doctors think it is usually 99.9% benign - and a result of tissue taken from my abdomen to transplant into my MRSA infected foot last May.  If not for that transpant, they would have had to amputate my leg.

Still I remain positive.  Once that is passed I will look forward to the holidays, cuddly warm nights with my wife reading to each other by the fire - cat firmly entrenched between us.

At this point I also want to thank all the wonderful people here who I love so much.  Many of you are so new since I left seven months ago for the hospital.  Even though I am no longer a moderator or very frequent poster - I hope to be back much more often when I am home on my regular computer.  In the meantime I wish you all love and hugs - and improved and continued health.

With all my love

bob 

     


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 9/15/2008 9:09 AM (GMT -6)   
Bravo!!!!!!!!!! It's great to read that the surgery/nursing home ordeal will soon be over & you can return home. Best wishes for steady progress with physical therapy. We look forward to having you back writing more often than you've been able to during the past seven months. Terrific!!!!!! yeah !!!!!!!!! / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 9/15/2008 10:40 AM (GMT -6)   
You are still our bluebird of happiness, and I'm so happy to see you feeling better and looking forward to all the goodness that awaits you at home. Therapy isn't a fun thing to do, but you have a strong will, and I know you will achieve. Good luck with the Remi and hope it starts to kick in very soon for you. Glad to hear from you, Bob!

Carol

Remicade - will have my 24th infusion on October 2
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 9/15/2008 3:38 PM (GMT -6)   

You are such an inspiration to us all Bob.You always look on the bright side of evrything!! I'm so happy that you are getting back home. Your plans for when you get home sound great, just take it easy for the first few weeks Bob, you will probably find that you will tire very easily.

    So pleased to hear from you, we were all so worried about our big wookie!!lol

                                       jane and beth send their love

                                                           Marty


                                     keep the faith 

         asacol/proctifoam/
Zoton (lansoprazole)/pred/colofac


       
                   http://www.myspace.com/martylogue


philly-fan
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 9/15/2008 4:25 PM (GMT -6)   
I'm so happy everything is going well and you are soon to be home. We heal faster at home.
Your positive attitude has touched myself and many people on the site. I'm looking forward to seeing your post in the future. Good luck with the remi and everything else.
Steve


Asacol 1200mg-3x a day

Probiotic=metagenics ultra flora plus DF

Hydrocortizone when needed

In remission since 9-8-08 (shhhhh)


Heart meds

Lipitor,Toprol, aspirin 81

synthroid


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 9/15/2008 4:38 PM (GMT -6)   
Bob, as a new member may I just say it's wonderful to meet you? Your strength, sunny spirit, and love of life shine through. All the best to you as you prepare to go home --
emory
40 years old and female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
UNTIL 9/4/08: Canasa 1000 mg suppositories nightly, 25 mg hydrocortisone suppositories in a.m.
CURRENTLY: Proctofoam at bedtime
Effexor 37.5, Clonazepam .5 mg (or more) and Trazodone 50 mg for sleep
2.5 mg methimazole for thyroid
Recently started probiotic (Garden of Life Primal Defense Ultra) and acupuncture
Osteopenia (and I haven't even taken steroids!)


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 9/15/2008 8:26 PM (GMT -6)   
glad to hear you will be home soon, you will probably feel even better there. so happy you are feeling better.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.

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