Saw a Rheumatologist yesterday

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 9/12/2008 6:07 AM (GMT -6)   
I saw a rheumatologist yesterday to talk about my arthritis and joint pain. He reviewed al the UC medications I have taken in the past and performed a physical checkup on me. My worst joint is my left shoulder so he gave me a cortisone injection for it. The injection has not helped yet. I asked him about Celebrex for my arthritis and he gave me 3 weeks worth of sample and a prescription. He said if the samples help then use the prescription. He said Celebrex is considered a NSAID but that it is not as bad for UC as most and said to just watch my bleeding. If it increases then stop it. Has anyone here taken Celebrex before?
Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 9/12/2008 10:00 AM (GMT -6)   
I had good luck with Voltaren when I had temporary arthritis related to UC (in my rib cage, of all things), but it is also a NSAID and has risks. It worked immediately so I didn't have to take it very long.
I took Celebrex for my back, and don't remember that it made my UC worse. Now my insurance won't let me have it, so I've only used samples, short term.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering OFF prednisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, etc. diet which resolved flare. Also Replete probiotic, DGL (licorice root, slippery elm), Permeability Factors. Slow-release iron and B-12 shots for severe anemia.
Sept: Mild case of thrush in throat, prescribed antifungal mouthwash.


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 9/12/2008 10:18 AM (GMT -6)   
I haven't taken Celebrex, but I do take Naproxen daily for my arthritis. My GI is aware, and also knows that without the Naproxen I would be non-ambulatory within 48 hours. It has never bothered my UC.

I'd say just keep a close watch on your bleeding, and be sure to take it with food to protect your stomach.
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 9/12/2008 12:01 PM (GMT -6)   
I took Celebrex and made my flare at the time much worse. Did help the joints though.
*******Donna*******
 
South of Boston, Ma
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin 5000mcg, Fibercon.
 


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 9/12/2008 11:51 PM (GMT -6)   
Thanks everyone. I have read some interesting information about Celebrex and other Cox 2 inhibitors at:
 
 
I think I’ll give it a try starting tomorrow or should I say today (it is just after midnight). I’ll keep a close watch on my UC symptoms

Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 


kaykay29
Regular Member


Date Joined Aug 2008
Total Posts : 28
   Posted 9/13/2008 12:04 AM (GMT -6)   
I am currently on Plaquenil per my rheumatologist and I'm getting pretty good results. You do have to be monitored by your eye Dr. every six months though because it has the potential for side effects that can change your vision.
Dx UC 1979 at age 14 - (I know, some kind of record)
Was Mildly Chronic (flares every couple of years) until last 2 years now Chronically Acute
Can only get about a month symptom free between flares now
Asacol, Canasa, Rowasa, Cortifoam (on Sulfasalazine for 28 years previously also Pred)
GI Doc recently told me I have "lead pipe syndrome" which is advanced scarring of colon
No surgery - multiple colonoscopies reveal uc "from rectum to appendix"
My Best Friend is My Shih Tzu/My worst enemy is uc


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/13/2008 7:39 AM (GMT -6)   
My grandmother was on Celebrex for many many years for her arthritis. My primary wanted me to start this one time but she placed a call to my GI and he vetoed the idea. I am a bleeder so I guess he didn't want to risk it with me. I hope that it works and I will keep my fingers crossed that it helps you Paul. Oh and btw, a cortisone injection can take up to 2 weeks before you notice a difference but the typical response is 2-7 days.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 9/14/2008 7:22 PM (GMT -6)   
Thanks Sherry, I have read a few studies that suggest that NSAID are not as bad for UC patients as most GI think. It’s a mater of weighing the possible gains against the possible risks. If the Celebex aggravates my UC I can just stop taking it.

A few years ago I had cortisone injections by the same doctor in my heals for my Plantar Fasciitis. It took about 3 days to work and it lasted for about 6 months. I went back to the doctor for another injection and he said that I should wait at least a year between injections. After the year my feet weren’t as bad so I never got another injection. A few months ago before starting prednisone my Plantar Fasciitis was acting up again. The prednisone completely cleared it up and it hasn’t come back yet. My arthritis and joint pain in other parts of my body are almost back to the way they were before pred. My worst pain is in my left shoulder. For the last 2 weeks my shoulder pain has been constant. Today it has been on and of for several hours at a time. I don’t know if that means the injection or the Celebrex is starting to work.
Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 26, 2018 10:11 AM (GMT -6)
There are a total of 3,006,769 posts in 329,394 threads.
View Active Threads


Who's Online
This forum has 161850 registered members. Please welcome our newest member, thegrandgut.
219 Guest(s), 14 Registered Member(s) are currently online.  Details
JayMot, Mind body spirit, StanInCA, mattamx, PeterDisAbelard., BossJ, island time, Michael_T, Calibren, Anitas, Almost a 10, BillyBob@388, paisan, Shayanv