What a week... (update)

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Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 9/13/2008 10:31 AM (GMT -6)   
I posted a question last weekend asking if anyone had experienced painful abdominal pressure and got several helpful responses.  But it got so bad that I decided a trip to the ER was necessary on Sunday night.  It turns out I was suffering from gallstones and mild pancreatitis.  My hemoglobin levels dropped while I was in the hospital and I nearly needed a blood transfusion (NO!).  Luckily it went back up long enough for me to have a colonoscopy and a laproscopic cholectomy (gallbladder removal) without a transfusion. 
 
My colonoscopy revealed that I have full-blown pancolitis, rather than just proctitis.  I'm really bummed about this, but I'm hoping that my new medication (Asacol) will finally help me out of this flare.  My hemoglobin has dropped again, so now I'm on iron as well. 
 
I just thought I'd post an update on all of this, since so many of you were offering support and advice when I was having so much pain.
Katie, 30.   Chicago 'burbs.
DX:  Pancolitis
Current Treament:  Asacol 1200 MG 3X daily, Cortenama 100 ML nightly, Iron 325 MG 3X daily, Zoloft 50 MG daily, Bentyl 20 MG and Tylenol (as needed).
Diet/Exercise:  Avoiding trigger foods, eating very healthy.  Yoga or walking, when possible.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa.
Status:  Flare
 
 


pixydust13
Regular Member


Date Joined Sep 2008
Total Posts : 28
   Posted 9/13/2008 1:24 PM (GMT -6)   
wow i hope everythings ok now, hopefully the asacol works, they wanted me to take that too but then when my doc said i had to take it several times a day i voted no and i got put on lialda instead. i saw that you take zoloft too, they wanted me to take that and i chickened out as soon as i read the warnings and side affects, in ur opinion just zoloft work for you? im so scared of new pills that ill just sit there in pain and crying for weeks instead of asking for help.
Kymie
Diagnosed June 2004
2.4 Lialda, 40mg Protonics, Flinstones vitamins(yummy),
Rhinocort nasal spray, albuterol, and Advair

Life is too short to wake up in the morning with regrets. So love the people who treat you right, and forget about the ones who don't and believe that everything happens for a reason. If you get a chance take it, if it changes your life let it. Nobody said it was going to be easy they just promised it would be worth it.


daniella510
Regular Member


Date Joined Apr 2008
Total Posts : 48
   Posted 9/13/2008 1:33 PM (GMT -6)   
Sorry to hear Katie.  I really hope the Asacol works out for you.  Maybe now that you know your diagnosis for sure it will help you and your doctor be able to treat it better.  Get some rest and *good vibes* to you!

Danielle  26/F
Dx: Pancolitis for 12 years
Meds: Asacol (400mg x12 daily)
         Prenatal vitamins + extra calcium supp.
         Fish Oil
         Culturelle x2 daily


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 9/13/2008 6:11 PM (GMT -6)   
I glad you are on the road to recovery.
I hope you are taking SLO-FE, it's easier on the gut than regular iron.
Be well!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering OFF prednisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, etc. diet which resolved flare. Also Replete probiotic, DGL (licorice root, slippery elm), Permeability Factors. Slow-release iron and B-12 shots for severe anemia.
Sept: Mild case of thrush in throat, prescribed antifungal mouthwash.


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 9/13/2008 6:53 PM (GMT -6)   
Pixydust - I just started taking the Zoloft, and my doc said it would take 2-6 weeks to see any noticeable effects. So I can't really comment on it now, but I'll write a post if I see a difference. I was scared to take it, too, but the stress/anxiety/depression caused by this disease just became too much to bear. I have a toddler son, and I just can't afford to be pissy all the time. Its not fair to him or my husband... or myself. ;-) If you're suffering that much, you should really give some new meds a chance. That's no way to live your life. You deserve to be happy!

Daniella - Thanks for the good vibes! I appreciate the support! ;-)

Peety - I haven't heard of SLO-FE, but I'll definitely look into it. So far (after two days) the iron tablets haven't caused any stomach upset, but if they do I'll keep your recommendation in mind. And thanks for the well wishes!! :-)
Katie, 30.   Chicago 'burbs.
DX:  Pancolitis
Current Treament:  Asacol 1200 MG 3X daily, Cortenama 100 ML nightly, Iron 325 MG 3X daily, Zoloft 50 MG daily, Bentyl 20 MG and Tylenol (as needed).
Diet/Exercise:  Avoiding trigger foods, eating very healthy.  Yoga or walking, when possible.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa.
Status:  Flare
 
 


jolly1975
New Member


Date Joined Sep 2008
Total Posts : 4
   Posted 9/13/2008 7:44 PM (GMT -6)   
Pixydust I have been taking zoloft since right after I was diagnosed and realized that the predisone was making me crazy but that was the only drug that would put me into remission and not to have my colon removed at the time. 2001 was when I found out I had uc.I was 21 years old and Had relatively know idea what I was in for but zoloft takes the edge off and reduces the anxiety by 100%.. You sound like you could use something like this! Do not worry about weight gain like so many of these drugs can cause the zoloft actually suppress your appitite. At least it did for me but I know that was one of my concerns at the time. I personally started out taking a low does and as I felt I needed more I just talked to my doctor..It is also very important not to read all of the side affects because what happens to some people does not happen to others.. Hope this helps!!!!!

hamley
Regular Member


Date Joined Sep 2008
Total Posts : 52
   Posted 9/13/2008 9:00 PM (GMT -6)   
I just got out of the hospital myself, but they didn't find anything as serious as what you went through.. I really hope you find some relief soon!
Female- almost 21!
Diagnosed 9/1/08
Rowasa 4g
Hyoscyamine .125mg
Percocet 5-325 mg


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 9/13/2008 10:42 PM (GMT -6)   
I'm sorry you went through all that! I hope you're feeling better.
Female, Age 19
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (3 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/14/2008 8:22 AM (GMT -6)   
Wow, what an ordeal you had to go thru! I'm glad you are feeling better and on the road to recovery. Goes to show you that even what we think are benign pains that it can be something much more serious.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Jjc2007
Regular Member


Date Joined Apr 2007
Total Posts : 194
   Posted 9/14/2008 8:54 AM (GMT -6)   
Katie

Sorry I missed your question.
I had to have my gall bladder removed when I was 27. And it was due to UC....I did not know until that time that UC could cause problems for the gall bladder and pancreas. I had been diagnosed with UC at age 15 and my worst years, when it was pancolitis, were between ages 15 and 35.....

Of course it was the dark ages when I had my gallbladder removed....1975. I was in the hospital for a week and the recovery was h*ll. Also when I first had colitis it came on so suddenly. By the time they figured out what it was, I needed six blood transfusions.

But here I am at 62, and while I still have UC and kept my colon, my disease is considerably less severe. I have an occasional flare, a yearly colonoscopy and can eat almost everything (I still cannot eat much chocolate).

Hang in there and hopefully you will feel better. My gall bladder pains was the worst pain I ever had. Mine had gotten so bad, it was totally infected and on the verge of bursting. I am glad you went to the ER.
diagnosed with UC in 1962
regualr meds:
Asulfadine (500mg tablets, 6 daily)
Folic Acid
Zantac as needed
open heart surgery in 2005 for removal of aortic root aneurysm


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 9/16/2008 12:29 PM (GMT -6)   
Thank you all so much for your encouraging words and wishes for wellness. This community has really gotten me through some tough times, and I can't tell you how much I appreciate it. Thanks for being there. :-)
Katie, 30.   Chicago 'burbs.
DX:  Pancolitis
Current Treament:  Asacol 1200 MG 3X daily, Cortenama 100 ML nightly, Iron 325 MG 3X daily, Zoloft 50 MG daily, Bentyl 20 MG and Tylenol (as needed).
Diet/Exercise:  Avoiding trigger foods, eating very healthy.  Yoga or walking, when possible.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa.
Status:  Flare
 
 

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