I have UC & my daughter was dx at age 18 with "indeterminate" IBD. (Pathologically, they could not decide if it was Crohn's or UC. Per her Dr, this is the case approx. 5-10% of the time. Symptom-wise though, they feel like her disease "behaved" more like UC.) She has had the j-pouch procedure. My case is more chronic in nature, while her's was very acute - - so much so that she had her first surgery to remove part of the colon just a few months after her initial diagnosis due to lack of response to prednisone IV, remicade, etc., etc.. We have had many "heart to heart" talks about our situations and neither of us has ever wished we weren't born because of UC. I think we both have a very strong will to live. I have to say though, that I cannot imagine how a younger child (less than teens) would cope with such a disease but maybe they do better than I can imagine. Everyone always says kids are so resiliant.
Dx UC 1979 at age 14 - (I know, some kind of record)
Was Mildly Chronic (flares every couple of years) until last 2 years now Chronically Acute
Can only get about a month symptom free between flares now
Asacol, Canasa, Rowasa, Cortifoam (on Sulfasalazine for 28 years previously also Pred)
GI Doc recently told me I have "lead pipe syndrome" which is advanced scarring of colon
No surgery - multiple colonoscopies reveal uc "from rectum to appendix"
My Best Friend is My Shih Tzu/My worst enemy is uc