Specific Carbohydrate diet?

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Several questions
New Member


Date Joined Aug 2008
Total Posts : 5
   Posted 9/13/2008 11:16 PM (GMT -6)   
Do any of you have any experience with the Specific Carbohydrate diet?

elliekate
New Member


Date Joined Mar 2008
Total Posts : 16
   Posted 9/14/2008 12:12 PM (GMT -6)   
I've been on the Specific Carbohydrate for about 7 months. I can answer a few questions.
 
EKW
UC
SCD 7 months
Lialda

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 9/14/2008 3:03 PM (GMT -6)   
elliekate said...
I've been on the Specific Carbohydrate for about 7 months. I can answer a few questions.
 
EKW
UC
SCD 7 months
Lialda
How's it working?



Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4X2)
Corti Foam p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!

Post Edited (bbc) : 9/25/2008 8:30:45 AM (GMT-6)


Several questions
New Member


Date Joined Aug 2008
Total Posts : 5
   Posted 9/14/2008 3:53 PM (GMT -6)   

1.  I'm wondering about how bad your symptoms were before you started and how long until you started noticing some changes.

2.   When you started did you do four days of the most basic part of the diet . . .  chicken broth etc before adding any other foods?

3.  How are you doing now and how strictly are you keeping to the diet?


Whyohwhy
New Member


Date Joined Aug 2008
Total Posts : 15
   Posted 9/21/2008 8:45 AM (GMT -6)   
I'm giving it a shot. Having to take prednsione for the first time, shook me up enough to decide to try it. I've been strictly sc diet since Sep. 4th. Unfortunetly for experiments sake, I started Prednsione on the 3rd.
I don't know what's helping more and won't really be able to judge till I get off prednisone, hopefully in 12 days.
SO, as far as my early impressions of SC diet, I actual really enjoy this diet. If you enjoy cooking and learning about foods, it can be a lot of fun. ( homemade Almond flour will be one of my staples for the rest of my life whether i'm on this diet or not!) Oh and the fruits! I eat more fruit and vegetables in one day then i did in a whole week maybe 2 weeks before. So even if the science behind the diet doesn't work for you, why not try it?
If i find it's not really helping much after i get off of prednisone, I'll have better habits nutrition wise and I'm sure will be better off.
I mentioned this diet to my gi doctor last tuesday, so i had been on it for 2 weeks or so. He actually was excited for me and mentioned he had 2 patients of his that have had GREAT results. One off of medication all together, the other reduced medication. He also said 4-5 patients of his had no effect on the diet. My question is out of these 4-5, how many really followed the diet strictly? I can see how this diet would be really really dificult to follow for soem people. Luckily for me, my circumstances in life allow me to easily be able to follow the diet.
There's a wealth of info online about this diet, and a very supportive group of people who are on the diet.
I've done lots of research on this diet the last 3 weeks and I'm amazed and honestly heart broken that the medical community at large doesn't want to look at this diet or any other, and just nutrition in general as an aid or even an alternative to drug medications. Only those who seek out these answers, can benefit from them. It took me 17 months and 4.8 grams daily of asacol not working for me to seek out other options.
For me, I hope diet (whether the sc diet or anything else) works to maintain remission of this disease and allaws me to be medication free, THAT IS MY GOAL. If not, maybe experimenting with diet will at least help me put together the pieces of the messed up puzzle life gave me called ulcerative colitis.
God will take you through hell, just to make it to heaven.


jenjim
Regular Member


Date Joined Apr 2008
Total Posts : 55
   Posted Yesterday 9:50 PM (GMT -6)   
I'm interested in this diet. What is the difference between it and the gluten free diet? Is it like the gluten free diet, with additional restrictions? I'l look at the website.
Thanks for the help.

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted Today 8:50 AM (GMT -6)   
Yes, the SCD is gluten-free and is more restrictive because it's totally grain-free, whereas the gluten-free diet allows rice and other non-glutinous grains.

I've used it off and on and have found it to be very helpful. Over time, with experimentation and a food journal, you'll learn to identify your "safe" foods and those that cause problems for you. You may find you have to tweak the diet a little. The SCD allows some forms of dairy, but I was personally never able to tolerate the homemade yogurt or other allowed dairy products.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted Today 6:30 PM (GMT -6)   
This won't be much help, but I did the SCD for 8 days when my symptoms were really bad. I gave up on it because it was so restrictive and I was so weak that I couldn't handle being in the kitchen cooking every single thing I ate. It was exhausting. I give a lot of credit to anyone who can stick to this, because its rough. I suppose it gets easier once you get used to it.

I will say that I continue to make the homemade yogurt, because the probiotics definitely seem to help. So even if you try it and don't want to stick to it, you may want to keep up with the yogurt. Its very good mixed with honey.

PS. I didn't see any improvement during the time I was on the diet, but I know you're supposed to stay on it for a month before giving up on it.
Katie, 30.   Chicago 'burbs.
DX:  Pancolitis
Current Treament:  Asacol 1200 MG 3X daily, Cortenama 100 ML nightly, Iron 325 MG 3X daily, Zoloft 50 MG daily, Bentyl 20 MG and Tylenol (as needed).
Diet/Exercise:  Avoiding trigger foods, eating very healthy.  Yoga or walking, when possible.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa.
Status:  Flare
 
 


toriblue
New Member


Date Joined Sep 2008
Total Posts : 14
   Posted Today 6:40 PM (GMT -6)   
HI
is there somewhere online i can find this diet? Thanks

jenjim
Regular Member


Date Joined Apr 2008
Total Posts : 55
   Posted Today 8:45 PM (GMT -6)   
It sounds really rough, no rice stuff or gluten. I use all rice stuff when I try to be gluten free. It's an added challenge to cook for kids/husband and separate food for me! I already eat no dairy. I think I have the probiotic area covered (since I eat no yogurt) with the VSL#3).
I would really like to know how to know what it is that is affecting me after I ate it. In other words, how long does it take to see a problem in the colon (last 15 inches affected by UC) from something you ate? People I know with stomach problems feel a stomach ache soon after they eat something that doesn't agree with them.
This is so frustrating! It's just so nice to have all of you to get ideas from! Thanks! I'll try almost anything short of Remicade, I'm just not ready for it quite yet.

Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted Today 8:56 PM (GMT -6)   
This is the official website:  http://www.breakingtheviciouscycle.info/
 
You might also want to try www.pecanbread.com
Katie, 30.   Chicago 'burbs.
DX:  Pancolitis
Current Treament:  Asacol 1200 MG 3X daily, Cortenama 100 ML nightly, Iron 325 MG 3X daily, Zoloft 50 MG daily, Bentyl 20 MG and Tylenol (as needed).
Diet/Exercise:  Avoiding trigger foods, eating very healthy.  Yoga or walking, when possible.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa.
Status:  Flare
 
 


Junipergirl68
New Member


Date Joined Sep 2008
Total Posts : 11
   Posted Today 8:57 PM (GMT -6)   
I just purchased the book Breaking the Vicious Cycle which outlines the SCD diet. I am slowly easing myself into it - no dairy except for the allowable cheeses, nuts, eggs, fish, fruits and veggies - I am going to be buying some almond flour tomorrow as well to try the muffins. I also purchased a juicer today so that I can make sure that I am getting my nutirents. I will have to make updates to let you know how the SCD works for me. I am trying juicing and SCD because I am at the end of my rope. I have been into my specialist twice in one month and things are still not great but I do NOT want to go on prednizone or the immune suppresants. I am hoping to calm things down.

I am in a little different position than most on here because I tend to have constipation, bad gas, bleeding, mucus and abdominal pains with my UC. And god only knows it is not for a lack of drinking water or eating healthy ... I am a fitness freak! lol As for reaction time to foods, usually if something does not sit well with me I will get bad gas, sever bloating and pain and be in the washroom with 60 to 90min ... either with gas and mucus or diarrhea. Hope this helps and that you feel better.

toriblue
New Member


Date Joined Sep 2008
Total Posts : 14
   Posted 9/26/2008 8:34 AM (GMT -6)   
Hi Junipergirl I too have very similar symptoms, i am trying the SCD diet, dont know how i will do. I havent eat food in weeks so my willpower is down, but i am very nervous i cant stop the bleeding even with Asacol, mesalamine and cort enemas. Let me know how you do with the diet, it's good to have support.

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 9/26/2008 8:52 AM (GMT -6)   

The Web site www.scdiet.org is actually the official SCD site.

The diet is as much work as you make it. If you bake alot of almond flour stuff (which you shouldn't be doing when you first start the diet) and always eat complicated recipes, then yeah, there's a lot of cooking involved. But if you eat simply, you can make it pretty easy. I buy organic meats - grilled chicken, deli ham and turkey, scramble eggs, make quick stews in the crockpot, bake squashes, pears and apples, boil or nuke veggies and veggie mixes. If you do want something made with almond flour, there's a quick bread recipe that's cooked in the microwave you can whip up in five minutes. I'm not big on cooking and I don't spend alot of time in the kitchen.

To know if the diet is helping you, you have to give it at least a month and sometimes much longer. Any type of dietary manipulation is not going to be a quick fix. It doesn't work like pharmaceuticals. Dietary changes allow the gut to heal in that you're eating things that are easily digested by a compromised gut and you're beginning to rebalance the gut flora. I actually experimented for a couple of years with diet and supplements before I found the combination that would allow me to maintain long-term remission.

The only way you can know what foods are problems for you is to keep an accurate food journal. When you have a flareup of symptoms, look back over the past couple of days to see what you've eaten. Jot down the foods you suspect might be a problem in the margin. Over time, you'll see the patterns develop. Eliminate the culprits and see how you feel. After a couple of weeks, reintroduce them. If you're going to have a reaction, it will probably be much stronger when you reintroduce after clearing it from your system and then you'll know for sure.


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


Junipergirl68
New Member


Date Joined Sep 2008
Total Posts : 11
   Posted 9/26/2008 8:55 AM (GMT -6)   
Hi Toriblue,

Nice to hear from someone who experiences similar symptoms to me - makes me realize that I am not alone :) I started the diet yesterday - I guess I am lucky because I eat lots of fruits, veggies, chicken and eggs already - never was a huge pasta or bread eater or dairy person either since they have always been an issue for me. My one big hurdle is going to be giving up my oatmeal in the morning .... and my chocolate chip cookies or any cookies for that matter on the weekend!! lol However I did make an almond flour pancake with egg whites this morning and covered it with sliced banana and a little honey and it was GREAT!! And I have been researching lots of sites for great recipes that I will be trying ie. www.pecanbread.com. I think I am going to be seeing alot of cooking and baking in my future!! I have never been a baker but grinding my own almonds and baking this morning was impowering ... and later today I am off to buy a new fancy food processor ... woohoo ... who knew I could get excited about this!!! lol

Let me know how you make out on the diet too - I would really like to know - and I hope that you start feeling better and that the bleeding stops. I know how depressing it can get. I seem to bleed everyday with mucus and forget what a normal BM looks like! Take care.

Whyohwhy
New Member


Date Joined Aug 2008
Total Posts : 15
   Posted 9/29/2008 7:46 AM (GMT -6)   
This Diet is Pretty darn cool you guys, I'm having a blast eating all these fruits and almond flour goods.
I made macaroons the other night, so so good. I really need to start selling those,lol. And the peanut butter caramels, everyone in my family loved those. This diet is really easy after a few weeks for me, 26 days actually, you just gain a new perspective on eating and go with it. There's plenty of stuff to eat, you just might have to work a little harder to get it or make it. But I'm single, so i understand it's easier for me then some.
4 days till I'm off the pred and can really judge this diet's effectiveness, but so far so good. And with health,comes hope,and that's a beautiful thing!
I just wanna be healthy


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 9/29/2008 7:58 AM (GMT -6)   
Whyohwhy - Are you seeing improvement in your symptoms?  If so, how long were you on the diet before you did?  I don't know if you saw my earlier post, but I tried the SCD when I was really sick for about 8 days and just couldn't manage all the cooking.  I was too weak and trying to take care of my son at the same time, so I gave up.  Now that I'm doing a little better, I've been thinking about giving the diet another shot. 

Katie, 30.   Chicago 'burbs.
DX:  Pancolitis
Current Treament:  Asacol 1200 MG 3X daily, Cortenama 100 ML nightly, Iron 325 MG 3X daily, Zoloft 50 MG daily, Bentyl 20 MG and Tylenol (as needed).
Diet/Exercise:  Avoiding trigger foods, eating very healthy.  Yoga or walking, when possible.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa.
Status:  Flare
 
 


Junipergirl68
New Member


Date Joined Sep 2008
Total Posts : 11
   Posted 9/29/2008 9:39 AM (GMT -6)   
Just a quick update on my progress on the SCD diet ... unfortunately it did not work for me because I think that it is designed mainly for people who have chronic diarrhea with their colits and I am the opposite with constipation ... so it bunged me up more!! But that is good news for those of you who do have the D - it might help with lessening WR visits. And the almond flour recipes are good and not that hard to read - and the source of my constipation ... that along with the cheese!! lol

Good luck to all!
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